Neuroendocrine Tumor Research Foundation

05/21/2026

Watch the latest episode of our Thrivership Series, now online.

Episode 37: Understanding Advanced Directives

This episode unpacks advanced directives and the importance of planning ahead with clarity, compassion, and intention. Advanced directives are one of the greatest gifts a person can give to themselves and the people they love. They can help to ensure that your wishes, dignity, and definition of quality of life remain at the center of your care. Join us as we explore practical steps, meaningful conversations, and ways to approach this topic as part of living fully and intentionally

Watch now ➡️ https://ow.lyzYZQ50Z2RYa

05/11/2026

Are you located in the Columbus, Ohio area?

Don't miss a free, in-person program to learn from leading experts in neuroendocrine cancer and make meaningful connections with fellow patients and caregivers.

Agenda topics include:

- What's new in clinical trials?
- What's new in treatments?
- Managing symptoms that impact quality of life
- Q&A with expert panel

REGISTRATION TODAY. Take a moment to register now as space is limited.

https://ow.ly/tvXs50YXPUl

05/07/2026

A new, NETRF-backed study by Carl Gay, MD, PhD, of UT MD Anderson Cancer Center looks at how chemotherapy may lead to treatment resistance and relapse in patients with small cell lung cancer.

https://ow.ly/3XTB50YWk4R

Researchers from The University of Texas MD Anderson Cancer Center have discovered that some cancer cells express the YAP1 protein only after treatment with chemotherapy, allowing them to survive by becoming more invasive and leading to treatment resistance with eventual relapse in patients with sma...

05/06/2026

Our latest episode of NETWise explores what it means to live in the unknown. From the shock of diagnosis to the ongoing reality of treatment decisions, scan results, and everything in between, uncertainty becomes a constant companion for many living with neuroendocrine cancer.

Patients, a caregiver and a physician share their personal experiences and perspectives on:

- The emotional impact of a cancer diagnosis and the shock that follows
- Why statistics and percentages don’t always translate to individual experiences
- The balance between seeking information and avoiding overwhelm
- The reality of “scan-xiety” and living between results
- How routines, movement, and mindset can create stability
- The importance of self-advocacy and trusted information
- What it means to not just survive—but thrive—within uncertainty

Listen here ➡️ https://ow.ly/gPG850YVzKs or wherever you get your podcasts.

05/04/2026

Over the weekend, a community of commitment and purpose was unmasked! 🎭 Supporters and special friends of NETRF gathered in New York City for "Masquerade," billed as the world's first immersive musical. This was a unique and joyful opportunity for us to show appreciation to these champions of neuroendocrine cancer research.

A special thank you to NETRF Board members Antony Detre and Elaine Nord, whose generosity made this event possible.💙

04/21/2026

This week, NETRF is at in San Diego, one of the world's largest cancer research conferences, with Chief Science Officer Anna Greene, Board Member Carrie Camino, and several NETRF-funded researchers raising awareness of neuroendocrine cancer.

Events like are critical for advancing cancer science, connecting the research community, and amplifying the patient voice.

Carrie's poster, "Thriving in the Gray," makes the case for patients and researchers working as true partners. As she puts it: "The best research happens when scientific expertise is combined with lived experience."

04/16/2026

Each year, Wayne, Shay, and Alana Firsty walk in memory of Julie Seltzer Firsty, Wayne's wife and Shay and Alana's mother, who died from lung neuroendocrine cancer in 2014. With every walk, they fundraise for NETRF, and over the years, the generosity of their community has added up to something remarkable.

Recently, the Firsty and Seltzer families reached a milestone: sponsoring a NETRF Mentored Research Award focused on lung neuroendocrine cancer. In February, Wayne and Shay visited the University of Colorado Anschutz Medical Campus to meet the scientists their fundraising is helping to support. As Wayne put it, "What was once a goal is now a REALITY."

Read their story and learn about the groundbreaking research their community made possible. ➡️ https://ow.ly/lBan50YKCoe

04/15/2026

We're bringing patient education to Columbus, Ohio on June 26!

Join us for a free, in-person program to learn from leading experts in neuroendocrine cancer and make meaningful connections with fellow patients and caregivers.

Agenda topics include:

- What's new in clinical trials?
- What's new in treatments?
- Managing symptoms that impact quality of life
- Q&A with expert panel

REGISTRATION IS OPEN. Take a moment to register now as space is limited.

https://ow.ly/IsLP50YK1af

04/10/2026

How does meaningful support for neuroendocrine cancer research change what's possible?

NETRF grantee Netta Mäkinen, PhD, shares how NETRF funding has shaped her career and her drive to find new treatments and eventual cures.

04/08/2026

☀️Summer is coming and so are two events designed just for the neuroendocrine cancer patient and caregiver community.

📍 NET Impact | Columbus, Ohio | June 26

💻 Know Your NETs | Online | July 18

Whether you're newly diagnosed or years into your journey, these programs are built to inform, engage, and empower you.

Get notified the moment registration opens 👉 https://ow.ly/pjCr50YFOco

04/02/2026

In the latest episode of the NETWise podcast, "Understanding Pathology," we look at the central role pathology plays in the diagnosis and management of neuroendocrine cancers — from initial biopsy through classification, grading, and treatment decision-making.

Drawing on insights from leading clinicians, pathologists, and researchers, this conversation offers a clear and informative look at how diagnostic precision is established and why it's essential.

Listen here or wherever you get your podcasts ➡️ https://netrf.org/podcast/episode-53-understanding-pathology/