06/07/2025
June is Lipedema awareness month and honestly, the community is in a weird place.
Today, more people have heard of Lipedema than when I was diagnosed. Even if doctors do not know how to diagnose this connective tissue disorder, when I say to them that I have Lipedema, they nod and acknowledge that I have a loose connective tissue disorder that manifests as disordered and non--metabolic fat, chronic inflammation and pain, a broken lymphatic system, and that I was born this way.
Yet, there is no formal diagnosis code that is on my record, just communication notes with my doctors from the last 5 years. There are no FDA-approved medications for the treatment of Lipedema and yet droves of Lipedema patients are using GLP1 medications to manage the inflammation, swelling, fibrosis, and metabolic fat and lots are having success.
These medications come with a host of risks and side effects and not every Lipedema patient can use them. In addition, they're expensive if paying out-of-pocket, which I still do as insurance has denied the coverage of Zepbound and Mounjaro for me twice already. I also think my primary care physician is weary of my "advocate for me" letters.
Lipedema patients have not ever been 100% collectively supportive of fat liberation. We are as "anti-fat" as fatphobic gym bros sometimes. Some patients even go as far to asa to say, "I'm NOT fat! I have Lipedema," while also barely surviving anti-fat discrimination on a daily basis.
I understand how this "method behind the madness" is a trauma response to the discrimination and policing of fat bodies that Lipedema patients face. Hell, chances are, if you have stage 3 or 4 Lipedema and you're over 350lbs, you've survived the brunt of fat discrimination, bullying, humiliation, and loss of bodily autonomy and humanization.
Of course you're screaming at the top of your lungs, "I DID NOT CAUSE MY BODY TO LOOK LIKE THIS!" No one and I mean NO ONE knows what its like to live in a 400, 500, 600, 700+ pound body and BE SEEN like late-stage Lipedema patients. Of course, you are trying everything including disassociating yourself with the community of fat people fighting to be free of weight discrimination.
Separating yourself from the fat liberation community will not save you though. At the same time "EVERYBODY and they momma," is all of a sudden,(how did Lizzo put it?), "releasing weight." Eli Lilly's stock rocks between the mid $700s and mid $800s per share on a daily basis even while tariff talks and egg prices are trending on our social media feeds.
I still believe Lipedema Awareness has the power to change the world and how the world thinks about systems of care, hegemonial body standards, the diet industry, and accessibility. I have also lost nearly 100lbs while on compound Tirzepatide.
I believe in the necessity to normalize liberated fat bodies for the sake of racial, gender, disability, and q***r liberation movements. Its all of us or none of us. I also have a list of surgeons I plan to contact when I'm ready for my tummy tuck, Brazilian butt lift, and hopefully, natural b**b job... I'm going for tear-drop shaped implants personally.
Lipedema Awareness in 2025 is occupying the space of the messy-ass-middle.