North Carolina Down Syndrome Alliance

North Carolina Down Syndrome Alliance The NCDSA empowers, connects, and supports individuals with Down syndrome, their families, and the Community through outreach, advocacy and education in NC.

North Carolina Down Syndrome Alliance is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.

This summer, NCDSA Board Member, David Tran, and his family are going on mission trip to Guatemala to serve with the Teb...
04/15/2026

This summer, NCDSA Board Member, David Tran, and his family are going on mission trip to Guatemala to serve with the Tebow Down Guatemala organization, which helps provide resources to families. This includes a school where children can come learn and have therapies provided. They also have coffee shop that hires individuals with special needs.

We are thrilled to support the Tran family in their donation drive for supplies and YOU can help too! We will be accepting new or gently used toys, sensory items, educational items/toys, etc at our upcoming events and at the NCDSA Training Center throughout April (2621 Spring Forest Rd Suite 102, Raleigh, NC 27616).

While items in Spanish are preferred, English items that can be translated will also be a big help (for example, English word cards or flashcards are great because we can easily translate them and add the Spanish words ourselves, while books need those to be in Spanish).

Take action this month by sharing our call for Camp SHINE volunteers with teens/young adults you think would be a great ...
04/15/2026

Take action this month by sharing our call for Camp SHINE volunteers with teens/young adults you think would be a great fit!

Consider sharing with local schools, sports organizations, clubs, churches, colleges, etc! Our goal is a 1:1 for each camper, so that means we'll need over 80 volunteers for our two week long camp sessions!

Learn more here:
- Session 1: https://volunteer.bloomerang.co/volunteer/ #/join-party?k=cqdtq8ink6q1sa
- Session 2: https://volunteer.bloomerang.co/volunteer/ #/join-party?k=bv450lex30vxcr

Another fun playdate!While playdates make for great photos, it is just a sliver of the work that NCDSA does. Behind the...
04/14/2026

Another fun playdate!
While playdates make for great photos, it is just a sliver of the work that NCDSA does. Behind the scenes, and seldom captured in photos, our staff are working with legislators, advocating, educating medical providers, empowering parents and teachers, and welcoming new families!

Recording now available! https://youtu.be/l4N_5A5LSUU?si=RnKMQI9JI7SAbSZiLast week the brand-new NC Down Syndrome Collec...
04/14/2026

Recording now available! https://youtu.be/l4N_5A5LSUU?si=RnKMQI9JI7SAbSZi

Last week the brand-new NC Down Syndrome Collective launched their quarterly Lunch & Learn series with "Exploring Meaningful Employment." Jacklyn Boheler from Work Together NC walked us through the Work Together NC Employment Toolkit, a hands-on guide to discovering job interests, building skills, and connecting with inclusive employers. Self-advocate Treana Suggs and her dad, Tracey, also joined us to talk about Treana's path to employment and what it looks like today since she's settled into a job she loves.

This webinar is for anyone with Down syndrome (or their supporter) who's looking for employment resources to start or move forward in their employment journey.

Watch the recording here: https://youtu.be/l4N_5A5LSUU?si=RnKMQI9JI7SAbSZi

Save the date for the Annual NCDSA Family Picnic - June 6th! We'll be back at the Wake Forest Community House/ Holding P...
04/13/2026

Save the date for the Annual NCDSA Family Picnic - June 6th!

We'll be back at the Wake Forest Community House/ Holding Park Aquatic Center, offering indoor, outdoor, and water fun for ALL!

Please be aware, we will have a hard deadline for families who want to cool off in the Aquatic Center.

More information and registration coming soon!

“The greatest gift our parents ever gave us was each other.”Sibs, today is all about you! Join us in recognizing the ama...
04/10/2026

“The greatest gift our parents ever gave us was each other.”

Sibs, today is all about you! Join us in recognizing the amazing siblings in the NCDSA community!

We see you, we value you, and today, we CELEBRATE you!

Next month, Work Together NC, TLC Raleigh, and We Will Walk with You will be hosting an interactive event connecting Wak...
04/10/2026

Next month, Work Together NC, TLC Raleigh, and We Will Walk with You will be hosting an interactive event connecting Wake and Johnston County families with programs supporting college access, employment pathways, daily living skills, and community belonging

Each year, hundreds of students with disabilities in Wake and Johnston counties leave the school system and enter adulthood — a transition many families describe as falling off a “services cliff.” At the same time, thousands of people with intellectual and developmental disabilities in Wake County are waiting for the state’s Innovations Waiver, the primary funding source for adult disability services, often for years. During that same transition period, many parents reduce work hours or leave jobs entirely to provide support, creating a dual challenge for families navigating life after high school.

To help families better understand the resources available and begin planning for the future, community organizations from across the region are coming together to host “Paths to Possibility: Exploring Adulthood — IDD Resource Summit.” The event will bring together educators, service providers, advocates, and self-advocates to share practical tools and real-world pathways for life after high school for individuals with intellectual and developmental disabilities (IDD).

Sessions will focus on five key areas of adult life:
- Learning & Campus Life
- Employment & Purpose
- Natural Supports & Belonging
- Planning & Transition Tools
- Daily Living Skills

The event is designed to empower families and individuals with disabilities with practical information, personal connections, and actionable planning tools.

https://www.eventbrite.com/e/paths-to-possibility-exploring-adulthood-idd-resource-summit-tickets-1985051006998

TWO HOURS 'TIL GO-TIME!Log on at noon today to walk through Work Together NC's Employment Toolkit and hear from a self-a...
04/08/2026

TWO HOURS 'TIL GO-TIME!

Log on at noon today to walk through Work Together NC's Employment Toolkit and hear from a self-advocate about her own employment journey.

This session is for you if you're a person with Down syndrome looking for employment, you're a person with Down syndrome thinking about employment, or you love someone with Down syndrome who's looking for or thinking about employment.

We'll see you at 12!
https://zoom.us/j/99605368388?pwd=vmIsI0SspK838ohDv95crJNjKLx3X0.1

Meeting ID: 996 0536 8388
Passcode: 179872

Down Syndrome Network of Onslow & Carteret Counties (DSNOCC) Down Syndrome Association of Greater Charlotte Down Syndrome Association of Greater Winston-Salem - DSA of GWS Coastal BUDS of Southeastern NC

DON'T FORGET! Tomorrow, April 8, at noon the brand-new North Carolina Down Syndrome Collective is bringing you our first...
04/07/2026

DON'T FORGET! Tomorrow, April 8, at noon the brand-new North Carolina Down Syndrome Collective is bringing you our first Lunch & Learn session.

Jacklyn Boheler from Work Together NC will introduce the Work Together NC Employment Toolkit, a hands-on guide to discovering job interests, building skills, and connecting with inclusive employers.

No registration needed. The session will be recorded but we hope you'll attend live to ask questions and learn alongside other families.

https://zoom.us/j/99605368388?pwd=vmIsI0SspK838ohDv95crJNjKLx3X0.1

Meeting ID: 996 0536 8388
Passcode: 179872

Address

2621 Spring Forest Road, Suite 102
Raleigh, NC
27616

Opening Hours

Monday 10am - 3pm
Tuesday 10am - 3pm
Wednesday 10am - 3pm
Thursday 10am - 3pm
Friday 10am - 3pm

Telephone

+19842001193

Website

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Empower, Connect & Support

Our mission is to empower, connect and support the lifespan of individuals with Down syndrome, their families and the community through outreach, advocacy, and education in North Carolina. We strive to be an effective, compassionate, and comprehensive resource throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.