Living With Epilepsy Journey

12/29/2025

Today is making my boys exhausted ❤️

12/28/2025

Living with epilepsy presents significant challenges, particularly for those who are newly diagnosed. It is essential to recognize that good days and bad days will occur, often characterized by exhaustion, anger, and fluctuating emotions. Unfortunately, some friendships may be lost due to a lack of understanding or unwillingness to comprehend the condition. While it's crucial to anticipate such outcomes, it's equally important to acknowledge that those individuals were not genuinely invested in your well-being, especially considering the unpredictable nature of epilepsy and its debilitating side effects. Regrettably, some people may be hesitant to engage in social activities or vacations due to concerns about your condition. Sharing experiences and insights from others who live with epilepsy can provide valuable support and understanding. I’ve attached some answers, I’ve removed their photos and names for their privacy.

12/20/2025

Big thanks to

Jackie Cahill, Teresa Hall

for all your support! Congrats for being top fans on a streak 🔥!

12/20/2025

12/14/2025

When my mind plays games, I recently went on vacation, and the stress of traveling has been overwhelming. I feel confident in my planning and organization, but then things fall apart. It's as straightforward as trying to find my phone; I consistently misplace it in my carry-on. Then I forget my medication, followed by stress headaches, fatigue, and emotional turmoil. Everything builds up, and I become drained. My issue is that I continue to push myself and don't stop, even when it's clear I should. I only stop when my body can't continue. When I reach this point, I must stop, breathe, and recharge. If I don't, I become overly emotional and unable to function. Why does this happen? I'm not accustomed to being so sensitive to things. It's infuriating, and my emotions trigger anxiety, followed by tears. If not tears, I become angry. My husband has grown accustomed to this over the past four years. Nevertheless, the tears flow because I feel inadequate and worry that I'm placing too much stress on him. Again, it's not just seizures.

12/14/2025

Good evening warriors I hope your all well.