WPI

05/20/2026

Fibromyalgia is a complex illness!

People are often surprised when they realize fibromyalgia is not “just pain.”

This graphic only lists 25 invisible symptoms… and honestly, that is just scratching the surface. 💜

There are hundreds of symptoms, overlaps, sensitivities, and nervous system-related struggles that people in this community experience every day.

Many suffer silently because so much of it is invisible to everyone else.

The exhaustion.
The brain fog.
The sensory overload.
The dizziness.
The sleep issues.
The random symptoms that make no sense to anyone except the people living through them.

And that is why support and understanding matter so much. 🦋

05/13/2026

Great work Solve ME/CFS!

05/12/2026

Check out this encouraging news!

Thanks to a generous gift from the Whittemore-Peterson Institute WPI, has launched an in-depth emergency department project with a clear and urgent goal: to develop clinical guidelines that improve how people with ME/CFS and Long COVID are treated in emergency settings, including more accurate specialist referrals and better diagnosis.

We all know how destabilizing the emergency room can be, especially for people with infection-associated chronic illnesses like ME/CFS and Long COVID. Concerns around receiving adequate and empathetic care are so profound that many avoid seeking emergency care when they need it most. That is a dangerous reality, and one we are determined to change.

Scientific Director Jaime Seltzer and clinicians at the Mayo Clinic have already collected invaluable data to inform this work. Soon, we will be launching a survey to expand that evidence base, and we want YOU to be part of it.

Your experience matters: your responses will directly shape the guidelines we develop.
The Whittemore-Peterson Institute’s grant funds the first half of this project. To complete it, we need your help.

Last week, we launched our fundraiser, where you can direct your gift toward this project or one of two other MEAction initiatives. More about those projects soon but they include Canary Corps and Advocacy! LINK IN COMMENTS!

This community’s support makes MEAction’s most challenging and impactful work possible. We are a small organization with extraordinary reach — and that is because of you. Thank you for everything you do and give.



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05/07/2026

It starts at the cellular level. When energy production is disrupted, every system feels it.

ME/CFS isn’t just about feeling tired—it’s about how the body creates and uses energy. Research shows abnormalities in cellular energy metabolism, which can impact everything from brain function to immune response.

Understanding the root helps us better support those living with it.

05/06/2026

Help us bring hope to millions living with ME/CFS.
Your donation to DiscoverME fuels vital research dedicated to finding answers, treatments, and ultimately—a cure.

05/05/2026

Myalgic Encephalomyelitis Chronic Fatigue syndrome, also known as, “MECFS”.
(ME) points to what’s happening inside the body with this multisystem disease affecting the brain, spinal cord, immune system, and more.
(CFS) describes how it often shows up: profound, unrelenting exhaustion and a pattern of disabling symptoms.

They are not the same—but they are not separate.
ME explains the biology. CFS reflects the clinical picture.
Together, ME/CFS is the medically recognized term used worldwide to capture both.
Because this illness is more than “fatigue.”And it deserves a name that reflects its full reality. As research continues and the picture becomes clear, we hope to see this name refined.

05/01/2026

These are some of the important factors that make this condition so detrimental in the lives of MECFS patients.

Research is bringing more & more to light, It’s time to start recognizance the biological significance of MECFS.

04/30/2026

When you donate to NavigateME, you’re helping build a lifeline for patients and families living with ME/CFS. Together, we can create a stronger, more informed community — one resource at a time.

04/29/2026

We’re honored to support this important project alongside The Network and the clinicians contributing their expertise to this work.

Too many people with ME/CFS and Long COVID avoid emergency care because of past experiences of misunderstanding, dismissal, or inadequate support. Improving education and clinical guidance in emergency settings is not just important — it’s urgently needed.

We’re grateful to help move this initiative forward and look forward to seeing the patient community help shape these guidelines through the upcoming survey. Thank you to everyone continuing to advocate, participate, and push for better care.

Check out this encouraging news!

Thanks to a generous gift from the Whittemore-Peterson Institute WPI, has launched an in-depth emergency department project with a clear and urgent goal: to develop clinical guidelines that improve how people with ME/CFS and Long COVID are treated in emergency settings, including more accurate specialist referrals and better diagnosis.

We all know how destabilizing the emergency room can be, especially for people with infection-associated chronic illnesses like ME/CFS and Long COVID. Concerns around receiving adequate and empathetic care are so profound that many avoid seeking emergency care when they need it most. That is a dangerous reality, and one we are determined to change.

Scientific Director Jaime Seltzer and clinicians at the Mayo Clinic have already collected invaluable data to inform this work. Soon, we will be launching a survey to expand that evidence base, and we want YOU to be part of it.

Your experience matters: your responses will directly shape the guidelines we develop.
The Whittemore-Peterson Institute’s grant funds the first half of this project. To complete it, we need your help.

Last week, we launched our fundraiser, where you can direct your gift toward this project or one of two other MEAction initiatives. More about those projects soon but they include Canary Corps and Advocacy! LINK IN COMMENTS!

This community’s support makes MEAction’s most challenging and impactful work possible. We are a small organization with extraordinary reach — and that is because of you. Thank you for everything you do and give.



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04/29/2026

This May, we’re shedding light on the science behind MECFS. Join us in raising awareness, sharing knowledge, and understanding the biology that affects millions, because understanding the biology is the first step toward better care, better research, and stronger advocacy.