Ainsley Faith and God’s Grace

Ainsley Faith and God’s Grace Meet Ainsley Faith! Diagnosed with bilateral renal agenesis (BRA) at our 20-week ultrasound.

***Ainsley update***05/30/2025It’s been a week! I can’t believe my last update was eight days ago. I’m happy to report t...
05/30/2025

***Ainsley update***
05/30/2025

It’s been a week! I can’t believe my last update was eight days ago. I’m happy to report that Ainsley finally seems to be on the right track.

Last Friday, Ainsley was transferred from “the floor” to ICU. The floor nurses were having trouble managing both Ainsley and their other patient(s), as she was requiring one-to-one attention. (Several nurses told me that they were only able to check on their other patient three times during their 12 hour shift. That’s not good for the other patient!) Depending on level of criticalness (I don’t think that’s a word), she could be 1:1 in ICU.

During rounds that Friday morning, the surgeon said it was quite possible that Ainsley would need to go to Interventional Radiology so that a drain could be placed in her abdomen to remove the fluid. If that wasn’t possible because of multiple pockets, he would need to take her to the OR for a “wash out”, basically irrigating her abdomen and cleaning out the infection. She had a CT scan on Friday (thanks to me and Chad both advocating that a CT scan would be fast, less traumatic, and less painful than two one-hour ultrasounds). The CT scan showed multiple pockets of fluid as well as infection.

Saturday morning, the surgeon took Ainsley into the OR for the wash out. When she came back to her room, she had a wound vac attached to the incision, as well as a drain in her abdomen. She was extremely uncomfortable and requested medication countless times.

Chad and I had planned to trade places on Saturday so that I could go home and see Bigs, along with Penny and Cookie. However, with the surgery, I wanted to stay bedside to comfort Ainsley. (There’s just no one like Mama during those times.) On Sunday, Chad and I DID trade places. We met in Federal Way so we could swap cars. I knew the girls were with Chad, but he surprised me by bringing Penny along, too. I had not seen HER in 16 days, and she was a sight for very, very sore eyes.

Since it was Memorial weekend, Chad had been camping at the river lot with the girls. One of the first things they asked me when we met was, “Can we go back to the river lot?” Oookaaayyyyy. 🙂 So to the river lot we went, where we all got to visit with friends and relax.

I think it was about 4:30 pm when I got there, and Mimi and Poppa immediately jumped out of their chairs and met me at the car. It was wonderful to see them, as it had also been 16 days. Two of our wonderful friends had considered going home earlier in the day, but they stayed on the off chance that I would visit. I’m so glad they did; it was a relief to be with friends after such a long and wild hospital stay.

The girls and I went home that night and slept in the “big bed” together. I actually slept for almost 12 hours—they played quietly in their tablets and ate snacks in the morning while I continued resting. It was absolutely glorious! No alarms, no nurses, no IV team, no medications, no crying…. It was much needed.

On Monday, Chad and I traded places again. Before that, though, I was able to take Bigs to Nonna’s house where we visited with her and Zio (Italian for “uncle”). I hadn’t seen my mom in about 2.5 weeks, and I hadn’t seen Zio since he moved up here from CA! That was another lovely visit, and it was another beautiful day outside. The girls played in the backyard and enjoyed being chased by Zio. After that, we headed up to the hospital to meet Daddy.

On Tuesday, the team felt it was time to move her out of ICU again, so she went back to the floor. She was still in a lot of pain and requiring scheduled doses of Dilaudid and Tylenol. She also received Ativan for anxiety, as she was terrified of anybody coming into the room and examining her.

Earlier in the day, before I got back to the hospital, Chad texted me to let me know that Ainsley had p**ped. This is HUGE news, after the constipation/e***a/blockage troubles she had previously. I am happy to relay that she has p**ped every day since, even multiple times a day.

Thursday night, one of the lumens (tubes) on her central line quit working. Fluid and flushes still go in, but blood doesn’t pull back. That’s okay as long as the other lumens keep working, but they wanted to see if the IV team could get it working again. The night shift bedside nurse put TPA (an anti-coagulant medication) into the line at about 3 am and let it sit for about an hour. Afterward, she tried to pull back, and still no blood came out. The IV team came in around 4 am and got the line working again.

Last night, I was saying goodnight to Ainsley and noticed her pillow was soaking wet. One of the lumens was leaking. She had multiple medications and fluids going, so I had to call the nurse to investigate which one might be causing the leak. She didn’t see anything obviously wrong, so she called the IV team to come take a look again.

The IV team came in at almost midnight I think, removed the sterile dressing, did some trouble shooting, and didn’t see anything wrong. I’m not even sure what their thinking was, but it seemed maybe one of the lines hadn’t been screwed in tightly enough. They put a new sterile dressing on and Ainsley was finally able to sleep.

Up until yesterday, Ainsley was still extremely uncomfortable and requesting pain medication. During morning rounds yesterday, the surgeon said they could remove the wound vac and drain to try to make her a little bit more comfortable. He had planned to leave it in until Friday (today), but he thought yesterday would be alright. He wasn’t able to come by until about 3 pm. The nurse gave her Versed before the bedside procedure. Even though she was pre-medicated, it was still pretty difficult for her. However, immediately afterward, she returned to her happy, goofy self. The OLD Ainsley. Pre-sickness Ainsley. She cracked us up and it was such a relief to see her this way again. Still, I wondered how long it would last, figuring it was mostly the Versed making her happy and loopy.

To my great pleasure, Ainsley stayed goofy and happy the rest of the day! She scooted up her bed, nearly standing as it was inclined so much. She played with toys, pretended to be a doctor, examined Kitty, and had a great day. I was absolutely amazed!

Today, she is playing with toys again. She and I pretended to be officers and captured about 25 pretend bad guys. We put them in jail and used a paper telescope to hunt them down. She asked for water, which she hasn’t done in days. The nurse practitioner approved it, and she’s currently happy with her little bottle and straw. She also asked for some of my banana, which she didn’t eat but enjoyed licking and playing with.

We still have a ways to go before discharge. The team started Ainsley’s feeds at a very low rate and volume yesterday. She needs to get up to goal and all of her medications need transitioned from IV to oral. She also needs to finish her antibiotics, and we still have about a week left of those. (I suppose they could discharge us and send us home with antibiotics, but it’s so intensive that I would probably have difficulty keeping up.)

We’re very glad to see Ainsley feeling better and playing. I truly missed her joyful spirit. It’s been a long time since we’ve seen her this good.

Thank you all for your kindness, generosity, thoughts, and prayers. We love you all!

***Ainsley Update***05/22/2025Hi all! We’ve gotten some Qs about how gift cards can be purchased/given to us. I had to l...
05/23/2025

***Ainsley Update***
05/22/2025

Hi all!

We’ve gotten some Qs about how gift cards can be purchased/given to us. I had to look at the paper the social worker gave me, and it looks like they provided two different ph for the hospital specific options.

There are cafeteria gift cards, which can be purchased by calling: 206-987-2094.

There are also room service gift cards, which can be purchased by calling: 206-987-6652.

I think callers just need to say it’s in behalf of Ainsley Turner, currently inpatient, and they’ll be able to send it to her room. (One of our friends already did that, and it was a wonderful surprise. Thank you for the meals…you know who you are! 🩷)

I mentioned in a prior post that gas and Starbucks gift cards are welcome, too. I don’t know exactly how gas cards can be given to us, but I believe you can send Starbucks gift cards via text/ph # or Facebook.

If anyone needs our phone numbers, please feel free to send me or Chad a direct message. Similarly, if someone wanted to send something in the mail, we could provide our address through a direct message.

We’ve also received Venmo and PayPal donations. Thank you to all who have helped support us already. It’s a wonderful gift to have you in our lives.

That being said, our girl appears to be somewhat progressing?? She’s had more X-Rays and blood tests. She still has lots of stomach pain, distention, and leakage. She is completely off feeds and getting all her nutrition through an IV.

Lab draws became increasingly difficult, so the team decided to put her under anesthesia yesterday so Interventional Radiology (IR) could place another central line. (The original one was removed a few days after surgery, but her decline has made a second one necessary.)

She’s requesting pain meds throughout the day, even waking up from sleep to ask. She’s on Tylenol and Dilaudid again as needed (though they’re both almost always needed). Unfortunately, the Dilaudid makes her very itchy, so today we added Benadryl to the mix.

This morning, one of the surgeons took a closer look at her incision where fluid has been leaking. (Yesterday, a FLOOD of fluid came out, and we’re still not sure yet where exactly it’s building up. In the peritoneum where she got dialysis? In the incision itself? Deeper in her abdomen?) The surgeon opened the incision a bit more—literally cutting with scissors in her room after anxiety medication was given—and hopes it will drain better now.

There’s a chance that he may need to open her up under anesthesia in the OR, but he’s trying to avoid that at all costs. Opening her up a second time will make it a lot more difficult to heal. However, he’ll absolutely do it if necessary. For now, he continues to take the “wait and see” approach.

Another new development is that an NG (nasal gastric) tube was placed. The team hoped this tube, attached to suction, would help empty out her stomach completely. They were concerned that her bowels hadn’t woken up from surgery yet and needed more time to rest. Since then, she’s been stooling more. While her stool is diarrhea and more in line with C Diff, the stomach pain she’s experiencing seems excessive. Therefore, they continue to monitor and test what they can.

She is currently sleeping, and I’m glad that her body can get some rest. I hope tomorrow brings better news, but time will tell.

***Ainsley update***05/20/2025Finally have a quiet moment to sit down, relax, and type. (Although, I wish I was typing o...
05/23/2025

***Ainsley update***
05/20/2025

Finally have a quiet moment to sit down, relax, and type. (Although, I wish I was typing on a computer instead of on my phone.) Please excuse any typos; it’s midnight. 🤪

Ainsley is sleeping peacefully now. It’s been a long, hard three days. Friday was wonderful with Daddy and sisters visiting. Saturday, she started vomiting and complaining of stomach pain. Sunday, the vomiting got so bad that we had to stop giving her feeds altogether. Even on IV fluids and nausea medication, she continued to throw up.

The team ordered a CT scan which came back normal (aside from “anatomy changes” post surgery). On the way back from the scan, her IV tubing got caught in her wheel chair (she insisted on wheeling herself) and disconnected from the IV itself. Once we got back to her room, two nurses cleaned the IV and tried to reconnect it but to no avail. The IV team was called in (while Mimi, Dad, and sisters were here) and tried placing a new IV. Thirty minutes, three stabs, numerous screams and cries of “Mommy!!!” later…they got one working.

Later last night, Ainsley spiked a fever of 102. The team ordered more labs to check for viruses. The first phlebotomist tried twice and couldn’t get blood to draw. Apparently there’s a “two strikes” rule at SCH and then another phlebotomist has to come try. The nurse and I asked for the IV team to come instead of a regular phlebotomist, but the first phlebotomist said it could take IV team several hours (like wee hours of the morning) to come. So we opted for a second phlebotomist.

A needle was placed, tears were shed (by both Mom and Ainsley), and labs were drawn. At 6 am this morning, I was informed that Ainsley tested positive for adenovirus. This can cause diarrhea, colitis (inflammation of the colon), and general GI upset. My poor baby girl.

The first four hours of this morning, I stayed by Ainsley’s bedside holding a green emesis (puke) bag. While she never threw up (amazingly), she told me every five minutes that she thought she was going to throw up.

Today, she didn’t watch TV, didn’t want her tablet, didn’t play with toys, and didn’t do ANYTHING. She slept, she rested, she cried, she screamed, she zoned out….

It was one of the worst days ever.

Because of the continued puking over the weekend and the worsening of her abdominal pain, the team ordered another X-Ray. It showed more stool buildup (most likely from the contrast out into her feeding tube for yesterday’s CT scan), causing them to order another e***a.

Wait…ANOTHER e***a? Yes, I forgot to mention….Ainsley had an X-Ray the other day and the results were relatively normal. Still, the team thought an e***a was appropriate yesterday to see if that would help flush her system out. The poor girl looked so confused and violated…all I could do was tell her, “I know, I know. Mommy’s here.”

And the results of the e***a? Absolutely nothing. She was so dehydrated from puking the day away that she most likely absorbed the fluid. She had two “smears” of p**p, but not enough to get the ordered sample. (The nurse tried scraping what little stool there was from the diaper, but it wasn’t enough for the lab to test.)

Fast forward to today, the team ordered new X-Rays to see if there was any obstruction or gas. X-Ray came to her room with a portable machine. However, the picture wound up not being clear enough (due to the limitations of the portable machine). Transportation had to come and bring her to the X-Ray department via her bed. She HATED the ride over and hated being moved from her bed to the table and back even more.

All day, she cried and complained of stomach pain. I can’t even count how many times she said, “Mommy, my tum hurts.” Finally, it was e***a time. I told the providers how terrible yesterday’s experience was, and they suggested giving her an anti-anxiety medication beforehand. Fortunately, that actually helped quite a bit, and the two nurses that performed the procedure laughed throughout. Ainsley was upset and goofy at the same time. She was clearly feeling the medication, and she was such a trooper. She p**ped a TON afterward and has complained less and less of her tummy hurting.

After all that, we found out tonight that not only does she have adenovirus, but her stool sample came back positive for C-Diff. This is ANOTHER bad stomach bug, causing vomiting, diarrhea, and GI upset. While adenovirus cannot be treated, C-Diff CAN.

Tonight’s amazing nurse steered antibiotics per the team’s orders, and Ainsley is now comfortable and sleeping soundly. She’s still connected to IV fluids, so she’s getting all the nutrients she needs.

I’m anxious to talk to the team tomorrow. Hopefully we can get her back to feeling good and maybe restart feeds.

These last few days have been absolutely painful. In all her life, I have never seen Ainsley do under. She was MISERABLE, and it broke my heart. I’m hopeful and praying that she’s now officially on the road to recovery. She was “booping” my nose with her finger tonight and meowing like a cat again, so I can only take that as a good sign.

Thank you all for your patience with these updates. After her first four days post-op so amazing and “easy”, this sudden turn of events had us completely blind-sided.

For now, we wait and see what tomorrow holds.

***Ainsley update***05/15/2025Ainsley is recovering and progressing sooooo well! She was in ICU immediately after surger...
05/22/2025

***Ainsley update***
05/15/2025

Ainsley is recovering and progressing sooooo well! She was in ICU immediately after surgery on Sunday. She got kicked out Tuesday afternoon because she was doing incredibly. She is now on “the floor” (basically non-ICU) and cracking up ALL of the nurses, doctors, and staff. She’s telling everyone that she loves them and is spreading smiles everywhere.

I think I mentioned in my last post that one of the doctors thought Ainsley was delirious because of the pain meds. While that was simply normal Ainsley behavior, she has since switched from Dilaudid to oxycodone. At this point, she is on a very low dose. Today, we will try to space the doses out even more. If she does well with that, we can discontinue use. (However, the order will still be in their system in case she needs it.)

Ainsley’s incision has been leaking off and on. PT and OT came by on Monday to see about getting her out of the bed and moving around. Once she was out of bed, she started leaking quite a bit. The surgeons and entire medical team have been keeping a close eye on it, and the amount has decreased over the last couple of days. PT and OT came again yesterday and Ainsley was able to stand and walk with assistance. She was THRILLED, and she was also happy to take a break and get back in bed after. She even wanted to walk Mama the couch so I could sit down. (Very kind of her. 😂)

I spoke with one of the pharmacists yesterday to start training on Ainsley’s new medications. I’ll continue training with another pharmacist this afternoon. I spent about an hour with one of the transplant coordinators this morning discussing absolutely ALL THINGS transplant. Either tonight or tomorrow, I’ll start the 24-hour trial run of administering her meds and caring for her on my own. This will be monitored by the nurses and is a requirement for going home. (We had to do this with dialysis training, too.)

Hopefully later today, Ainsley will get the central line taken out of her neck. This has been necessary for IV meds and fluids. Once one of the anti-suppressant medications is in her blood system enough, they can switch another medication from IV form to a fluid that can be pushed throughout her G-tube. Then won’t need the IV line anymore. Before they take it out, though, they’ll want to clear it with the surgeon.

I do want to mention again, because I know this is a question some have: Ainsley’s dialysis catheter was taken out during surgery. Normally this is left in for 3-6 weeks, but the surgeon needed the space. This, along with her amazing kidney function, means we no longer need to do dialysis. Dad hiked her up for the last time on Saturday night, and I disconnected her for the last time on Sunday morning. On Tuesday, there were three separate times that I stated mentally preparing to connect her at night. Usually around 5 p.m., I start thinking, “Okay, two more hours and then I’ll need to start getting her ready.” Or if she wakes up from a late afternoon nap, I’ll think, “Okay, I should take her vitals NOW so I can go ahead and get her machine set up.” No longer needing to do vitals (upon discharge), set up her machine, and connect her will give us SO. MUCH. TIME. Back during the day. The connection and disconnection process in morning and evening takes up quite a bit of time, making things chaotic and stressful. We’ll be able to spend more time together as a family—a normal family, at that.

We know there will still be hiccups and bumps in the road. Ainsley Will be more likely to get sick and will likely have hospital stays along the way. However, I truly feel that we’ve weathered the worst of it. We made it. SHE HAS A KIDNEY. And she’s doing wonderful.

Thank you all for your support! We’re continually amazed at how many people’s lives Ainsley has touched. She truly is a miracle and a marvel. She is literally THE MOST joyful baby, and she lights up our life.

If anyone wonders how our family could be helped during this time, social work gave us some ideals. Grocery gift cards, cafeteria gift cards, Starbucks gift cards, and gas gift cards would all be helpful. We’ll likely stay at the Ronald McDonald house up the road for 2-4 weeks after discharge. Even after that, Ainsley will need to return to SCH 2-3 times a week for labs and clinics. Gift cards would help with snacks, lunches, coffee (ALWAYS necessary!), and the gas we’ll go through getting to and from the hospital.

Thanks again for all the love, prayers, and well wishes. We’re blessed to have all of you in our lives. 🩷

***Ainsley update***05/12/2025Dear friends and family,While it was with great sadness that we announced Ainsley’s prenat...
05/22/2025

***Ainsley update***
05/12/2025

Dear friends and family,

While it was with great sadness that we announced Ainsley’s prenatal diagnosis (bilateral renal agenesis, or lack of both kidneys), almost five years ago, it is now WITH OUR GREAT PLEASURE that we announce to you:

Ainsley got a kidney!!!!

This week has been an absolute WHIRLWIND. It’s been up and down with many tears and heartache and stress. Not only did we bury my grandma on Monday, but we received two separate notifications last week of potential kidneys for Ainsley.

On Wednesday around 8:15 a.m., we got a phone call that Seattle Children’s Hospital (SCH) had a potential kidney for her. The transplant coordinator heard my excitement and earnestly told us that she wanted to manage expectations. She said the team wanted Ainsley to come up for a CT scan to see if the kidney would fit her. (Due to chronic blood clots during dialysis as an infant, the main veins used for transplant are unusable. The vessels that took over for blood flow are quite small, therefore requiring a small kidney.)

I had gotten Ainsley on the bus to preschool minutes prior to the phone call, so I quickly got myself ready, packed a few things for both of us, and drove to her school to collect her. From there, we headed up to the hospital.

Upon arrival, I was informed that there was a delay with the donor kidney (whatever that meant—I never found out) and surgery would be Friday instead of Thursday. I assumed maybe the donor family needed more time with the individual and anxiously awaited Ainsley’s CT scan.

The scan required she be sedated, lest she move too much and the images be unclear. The CT was scheduled for 2 p.m. and we did NOT get results that day. Still, I was told by a nephrologist that it sounded like surgery was moving forward for Friday morning.

Thursday morning came and I almost immediately heard from the nephrologist that a SECOND kidney had come up! The surgeon liked the second one better because it was smaller and would fit Ainsley better. She was primary for this kidney and a potential for the first kidney. Shortly after that, the surgeon came in and confirmed this. He said he reviewed the CT scan around 1 a.m. and felt 85-90% positive he could connect it to her, despite her abnormal/complex anatomy.

Thursday at 5:20 p.m. I connected Ainsley to dialysis for possibly the last time. The team wanted her connected early (we normally connect her between 7 and 8 p.m.) as she was scheduled to be the first “case” (surgery or procedure) of the day on Friday. At about 7 p.m., I got a call on my cell phone from an area code 206. While h could see this was not the hospital calling, I recognized the area code and answered. It was one member on the transplant team and she had someone else on the line to connect.

I heard her nephrologist’s voice and knew something was wrong. The white board in her room said we were waiting on the crossmatch to come back, telling whether or not the kidney would work for Ainsley.

Ainsley’s nephrologist promptly told me there was an infection risk with the kidney and they were passing it. I asked about the first kidney and was told it wouldn’t work either. Since there was no other reason to stay, I asked to be discharged so I could continue Ainsley’s dialysis from the comfort of our home. I had spoken to our big girls on FaceTime the night before and Hailey bawled. If no kidney was coming, I needed to go see my girls. (At this point, Chad was still home, too.)

By the time I got home Thursday night with Ainsley, it was 10:20 p.m. I was wiped, sad, numb, and hopeless. I was happy to see my Big Girls, and I let them sleep in bed with us. (While I was finishing up Ainsley’s bedtime prayers, I heard Chad say, “Girls, get in bed!” They were in our bed with him, and I said, “They ARE in bed.” He said, “Okay, good.” And that settled that.)

Friday morning, I logged into work from home. I had some things that I wanted to catch up on, but I hoped to take some time off and rest, too. The Bigs were still sleeping in our bed. I woke Riley and asked if she wanted to stay home. She asked, “What?” And I repeated myself. Sitting up and looking at me through sleepy eyes and messy hair, she inquired, “Why are you asking?” I said, “Because I missed you, and I want to hang out with you.” She said, “Okay. I also don’t feel good.” And that was THAT.

Less than 10 minutes later, I got a call from SCH. It was the transplant coordinator I spoke to the night before whom connected me to Ainsley’s nephrologist. Warily, I said, “Hi…” She said, “I didn’t have good news for you yesterday, but I have good news for you today. We received an offer for another kidney, and Ainsley is primary.” Again, warily, I said, “Okay…” She asked if we could be there by 1 p.m., and I said yes. I went and told Chad who promptly said, “You’ve got to be kidding me….”

My mom came to watch the Big Girls at 11:00 a.m., allowing me more time with the girls in between showering and packing—again. Chad and I didn’t leave from home at the time we meant to, so we didn’t get to the hospital until 2:30 p.m.

The surgeon met us shortly after we got Ainsley admitted and settled into her room. Almost immediately upon sitting down, he received a message that the donor family was waffling and requested one more day. So now instead of surgery on Saturday, it would be Sunday. IF the family decided to move forward.

Saturday, we spoke with the surgeon again. He clarified that the family was indeed waffling but had decided to move forward with donation. The donor surgery would be at 8 a.m. on Sunday and Ainsley’s would likely be around 1 p.m. WOW.

Chad connected Ainsley to dialysis for the last time again and we hurried up to wait. Ainsley had a wonderful day Saturday, strolling the halls in her wheelchair and visiting with therapy dogs downstairs. We ran into a kidney parent friend who’s daughter happened to be admitted right down the hall. (This little girl got her mama’s kidney about two years ago and is doing wonderfully.) The two girls got along very well and wore each other out. Thank God for little things!

Sunday, potential surgery day, Ainsley went back into the OR around 2 p.m. The anesthesiologist told me that, because the kidney hadn’t arrived yet AND because it was Mother’s Day, he was letting me come into the room to be with Ainsley while she fell asleep. I gowned up, carried her in, and watched her fall asleep in the huge room. Then more waiting began.

Chad and I had not eaten much all day, so we went to get “lunch” nearby. We took a Lyft up the road a ways and waited for the restaurant of our picking to open. But they didn’t. As Chad Googled more options, I realized my phone was missing and likely in the Lyft vehicle. He messaged the driver and then called and left a message. In the meantime, we walked to the U Village and went to a pizza place.

While waiting to order food, the Lyft driver called Chad back. I heard him say, “I mean, we’re going to be here for a while. Our daughter is in surgery at Seattle Children’s right now.” Another long story short, the customer next to us asked about our story and, upon telling him, he instructed the bartender to put our bill on his tab. 😭🩷😭

Chad got the first phone call update at about 3:15 stating the surgeon was getting started. Yet another long story short, the manager topped off our drinks and took care of the rest of our drinks, too. About an hour after getting a call from the Lyft driver he called again to say he was nearby with my phone! After leaving the restaurant, Chad got a call from SCH again. The look on his face told me something was wrong. I almost crumpled, whispering, “What now?” Still on the phone, he said, “She’s peeing all over the place. She’s making a mess. He’s finishing surgery now.”

😭😭😭😭😭😭😭

In the middle of the U Village, I buried my face into Chad’s shoulder and cried. “She got a kidney?! She’s peeing?!” Tear stained and riddled with adrenaline, we power walked back to the hospital.

We waited in the ICU caregiver lounge for about 20 minutes before the anesthesiologist came in, crinkled his finger for us to come follow him, and led us back to her room. And there she was. Awake and peeing with her very own kidney.

I’m cutting off the story here, but I will say that she’s doing well. We’ve had a hiccup with urine output, and the team is closely monitoring her fluids. This is mostly normal, but there is a potential that she’s leaking urine inside her body. Shes not in any pain—in fact, she was amazing everyone at rounds today with her energy level. One doctor even said we needed to come down on the Dilaudid because she was “delirious”. (In the room by herself, she was chatting. And playing. And meowing. And singing “Happy Birthday”. Anybody that knows her knows that this is typical Ainsley behavior. We quickly clarified that this is her baseline (laughter ensued) but we agreed the medications could be lowered.

For now, she’s peacefully snoozing. Her moods have been going up and down. Shes been sensitive and emotional, but also incredibly happy.

I’ll try to post another update as quickly as I can. For now, this is all I have in me.

Continued prayers and positive vibes, please! We love you all.

***Special thanks to Chad Turner for being my technical writer and proofreading this FB post.**

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