06/10/2022
Hey guys!! So, Thursday was chalked FULL of chaos and unexpected adventure. :D I spent just shy of a full 12 hours at Mayo, arriving at 7am for Day #4 of my second round of Photopheresis. After receiving my treatment at the ECP lab, I went around the corner and down the hall to the outpatient infusion unit where I had my 6th consecutive month of IVIG. (Both of these treatments are to help combat my antibody mediated rejection.) This took about double the time it usually takes, as I spiked a fever and had to have my infusion paused a couple of times in hopes the Tylenol would take effect. I was also dealing with pretty severe bone pain and had to have the infusion paused once again to administer pain meds. I wasn't home for more than 3 hours that evening before finally heading into the ER as my fever would not subside. (Fevers amongst immunosuppressed patients are uncommon and can indicate a blood infection, or something else serious going on.) In addition to the fever and continued bone pain, I was also struggling with a headache, fatigue, nausea, and was feeling a bit more short of breath than usual. After being evaluated in the ER, the lung transplant team made the decision to admit overnight. I will have more information regarding my plan of care moving forward after I talk to my team and attending pulmonologist following morning rounds. Until then, If you have any questions, please do not hesitate to ask! I will be sure to keep you all in the loop. And in the meantime, happy Friday!
