Mary Gooley Hemophilia Center

Mary Gooley Hemophilia Center The Mary Gooley Hemophilia Center is a non-profit diagnostic and treatment center serving patients i The Mary M.
(5)

Gooley Hemophilia Center is an independent, 501 (c)(3) non-profit corporation, licensed and regulated by New York Stat and governed by a community of board of directors. It serves people from the 14-county region around Rochester, NY. The Center provides education, treatment, research, advocacy and supportive programs to people affected by bleeding disorders and iron overload. It is active with th

e National Hemophilia Foundation, the New York State Bleeding Disorders Coalition, the Hemophilia Alliance, ATHN and the World Federation of Hemophilia. Center Staff and Medical Staff members are active in and hold or have held leadership positions in organizations across the bleeding disorders community regionally, nationally and internationally.

Do you love to golf...or know somebody who does?  It's not too late to register for the USEBSG 4th Annual Charity Shooto...
06/04/2024

Do you love to golf...or know somebody who does? It's not too late to register for the USEBSG 4th Annual Charity Shootout golf tournament, with proceeds going to the Mary Gooley Hemophilia Center. It's taking place at Shadow Lake Golf Club on Monday, July 22. Click below to learn more and register today!

https://us-employee-benefits-services-group.perfectgolfevent.com/

We can't believe it's that time again - Registration for our 2024 Bleeding Disorders Walk is now officially open!  We ho...
05/29/2024

We can't believe it's that time again - Registration for our 2024 Bleeding Disorders Walk is now officially open! We hope you, your friends and family can join us for another amazing Walk event, taking place on Sunday, September 8 at Genesee Valley Park. Once again, we'll have lots of family friendly activities and more epic raffle baskets. Go to www.ROCeverystepcounts.com to learn more and register today! Once again, if you register by June 30 and enter promo code "earlybird," you'll get $5.00 off each event registration. See you there!

The Center is closed today for Memorial Day.  If you would like to speak with our on-call hematologist, please call (585...
05/27/2024

The Center is closed today for Memorial Day. If you would like to speak with our on-call hematologist, please call (585) 399-1717. Thanks.

Please note that the Center will be closed on Monday, May 27 for Memorial Day.  If you would like to speak to our on-cal...
05/24/2024

Please note that the Center will be closed on Monday, May 27 for Memorial Day. If you would like to speak to our on-call hematologist, please call (585) 399-1717. Thanks.

It's not too late to sign up and join us for the Center's Annual Meeting at I-Square on Friday, June 14!  The focus at t...
05/21/2024

It's not too late to sign up and join us for the Center's Annual Meeting at I-Square on Friday, June 14! The focus at this year's meeting will be on women! The Center's co-medical director, Dr. Robin Reid, will be presenting about the challenges and opportunities for women with bleeding disorders. Her co-presenter will be a wonderful Center patient who will tell her compelling personal story. Great information, inspiring stories and a delicious lunch - don't miss it! Call or email to get on the guest list today!

We'd appreciate your feedback!  If you were a bleeding disorders patient seen at our Center in 2023, please take a few m...
05/07/2024

We'd appreciate your feedback! If you were a bleeding disorders patient seen at our Center in 2023, please take a few minutes to complete the National HTC Patient Satisfaction Survey. The deadline to submit your survey is June 30th. Click this link to take the survey today! Thanks!

https://www.htcsurvey.com/

Save the date for our Annual Meeting, set for June 14!  Hope you can join us!  Call 922-5700 to RSVP today!
05/06/2024

Save the date for our Annual Meeting, set for June 14! Hope you can join us! Call 922-5700 to RSVP today!

Many thanks to Congressman Joe Morelle for visiting the Mary M. Gooley Hemophilia Center today!  We truly appreciate his...
05/03/2024

Many thanks to Congressman Joe Morelle for visiting the Mary M. Gooley Hemophilia Center today! We truly appreciate his ongoing support to people living with bleeding disorders and other chronic health conditions.

Please consider supporting the Mary M. Gooley Hemophilia Center by giving to the United Way and selecting Donor Choice O...
04/22/2024

Please consider supporting the Mary M. Gooley Hemophilia Center by giving to the United Way and selecting Donor Choice Organization #156. You can give through a work campaign or donate directly at the United Way of Greater Rochester website (just click this box!). Thanks so much for for your support - caring is in YOUR blood!

https://unitedwayrocflx.org/get-involved/ways-to-give/

Registration is now open for a special conference just for people with Type 3/Severe von Willebrand Disease, courtesy of...
04/18/2024

Registration is now open for a special conference just for people with Type 3/Severe von Willebrand Disease, courtesy of the VWD Connect Foundation. Click below to learn more and register today!

2024 U.S. NATIONAL TYPE 3/SEVERE VWD CONFERENCE The 2024 U.S. National Conference will be held July 19 – 22, 2024. We’re so excited to be hosting our eighth annual conference! Please read on for details about travel, registration, and other frequently asked questions. We hope to see you in July!...

Today is World Hemophilia Day!  Help spread the word and raise awareness about hemophilia and other rare inheritable ble...
04/17/2024

Today is World Hemophilia Day! Help spread the word and raise awareness about hemophilia and other rare inheritable bleeding disorders!

https://wfh.org/world-hemophilia-day/

Please note that the Center will be closed today, April 8th.  If you would like to speak to our on-call hematologist, pl...
04/08/2024

Please note that the Center will be closed today, April 8th. If you would like to speak to our on-call hematologist, please call 585-399-1717. Thanks.

Please note that the Center will be closed on Monday, April 8.  If you need to speak to our on-call hematologist, please...
04/05/2024

Please note that the Center will be closed on Monday, April 8. If you need to speak to our on-call hematologist, please call 585-399-1717.

It's not too late to participate in the National HTC Patient Satisfaction Survey!  If you (or a family member) have a bl...
04/03/2024

It's not too late to participate in the National HTC Patient Satisfaction Survey! If you (or a family member) have a bleeding disorder and had a visit at the Mary M. Gooley Hemophilia Center in 2023, we want honest feedback about your experience!

Click this link to take the survey: https://www.htcsurvey.com/ (Only one survey per patient please - so if you've already taken it this year, please disregard this announcement) The deadline to complete the survey is May 31st, so please take a moment to share your feedback today! Thank you!!

The National Patient Satisfaction Survey (PSS) was a voluntary and anonymous survey taken in 2015 by patients with bleeding disorders such as hemophilia, von Willebrand Disease, or other factor deficiencies who were seen for care at their local Hemophilia Treatment Center (HTC). The HTC Survey was d

Registration for the USEBSG 4th Annual Charity Golf Tournament is now open!  In addition to great day of golf, there wil...
03/22/2024

Registration for the USEBSG 4th Annual Charity Golf Tournament is now open! In addition to great day of golf, there will be a 50/50 raffle and lots of raffle baskets! All proceeds will go to the Mary Gooley Hemophilia Center! Spread the word and sign up today!

Once again we were proud to have participated in federal and state advocacy in March.  Many thanks to the patients and f...
03/19/2024

Once again we were proud to have participated in federal and state advocacy in March. Many thanks to the patients and families that joined us for NBDF's Washington Days and the NY Bleeding Disorder Coalition's Albany Days. Caring is in YOUR blood!

Our friends at US Employee Benefits Services Group have kindly selected the Mary M. Gooley Hemophilia Center to be the b...
03/14/2024

Our friends at US Employee Benefits Services Group have kindly selected the Mary M. Gooley Hemophilia Center to be the beneficiary of their 4th Annual Charity Golf Tournament! Save the Date for this amazing event: July 22, 2024. More details coming soon...

SAVE THE DATE!  Our 2024 Bleeding Disorders Walk will be taking place on Sunday, September 8th at Genesee Valley Park.  ...
03/05/2024

SAVE THE DATE! Our 2024 Bleeding Disorders Walk will be taking place on Sunday, September 8th at Genesee Valley Park. Last year was our biggest and best Walk ever! Let's all join together to see if this year can be even BIGGER and BETTER!

Walk registration will open in a few weeks....stay tuned!

Once again, the Center is proud to partner with Double H Ranch to offer a free, fun and safe summer camp experience for ...
02/21/2024

Once again, the Center is proud to partner with Double H Ranch to offer a free, fun and safe summer camp experience for our pediatric patients! This summer, we are again collaborating with our friends at Golisano Children's Hospital to charter a bus to send our campers to Session 4 (July 15-20).

Click this link to learn more about Double H Ranch and to apply online (please note that application deadline is April 15):
https://www.doublehranch.org/programs/summer-camp/application/

The Mary M. Gooley Hemophilia Center is working with other HTCs around the country to support the Fourth National Patien...
02/06/2024

The Mary M. Gooley Hemophilia Center is working with other HTCs around the country to support the Fourth National Patient Satisfaction Survey. The goal of this survey is to find ways to improve care for patients and families with bleeding disorders. Please help us reach that goal by completing the survey and telling us how satisfied you are with our HTC care and services received from us during 2023.

It's easy to take the survey online! Simply visit: www.HTCsurvey.com. To get started, find the Mary M. Gooley Hemophilia Center in the drop-down list, then take the survey. It will only take about 10 minutes and your feedback will make a difference! Thanks!

The Center is closed today, December 26, to commemorate the Christmas Holiday.  If you need to speak to an on-call hemat...
12/26/2023

The Center is closed today, December 26, to commemorate the Christmas Holiday. If you need to speak to an on-call hematologist, please call (585) 399-1717. Thanks.

The Center is closed today for Christmas.  If you would like to speak to our on-call hematologist, please call our after...
12/25/2023

The Center is closed today for Christmas. If you would like to speak to our on-call hematologist, please call our after-hours line at (585) 399-1717.

Address

1415 Portland Avenue Ste 425
Rochester, NY
14621

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+15859225700

Alerts

Be the first to know and let us send you an email when Mary Gooley Hemophilia Center posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Category