NYS Caregiving and Respite Coalition

NYS Caregiving and Respite Coalition Promoting the development of volunteer respite initiatives to improve the lives of family caregivers

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About Us

The New York State Caregiving and Respite Coalition (NYSCRC) is a partnership of dedicated organizations and individuals committed to supporting the millions of informal caregivers throughout the state. The coalition and its members are passionate about helping connect caregivers with the information, training and support services critical to successfully caring for a loved one at home. NYSCRC members are committed to addressing the current and future needs of those engaged in family caregiving across the lifespan. Because statistics show that the number of traditional caregivers are decreasing in many parts of the state, a more innovative approach to supporting those who care for our most frail and vulnerable population is needed. With the help of the Lifespan Respite Grant, NYSCRC is working to develop a comprehensive, sustainable program with the goal of training hundreds of volunteer respite providers throughout the state. Greater availability to respite services will give caregivers more frequent breaks while helping them better manage the physical and emotional stresses that come with caring for an aging and/or disabled loved one. NYSCRC is committed to helping caregivers of all types across the age and disability spectrum. By supporting important initiatives like the volunteer respite program while sharing best practices from across New York, NYSCRC will take an active role in improving the lives of informal caregivers throughout their community, and the over four million family caregivers across the state.

01/06/2026

Joined WNYC Radio at the State Capitol this afternoon to talk about my role as Chair of the Assembly Committee on People with Disabilities 🎙️

For me, disability policy isn’t something I talk about — it’s something I live. I’m the father of a son with a disability, and as a lawmaker I bring that lived experience into the work: expanding housing choice, supporting real, integrated employment, protecting the right to communicate, and strengthening the workforce that makes independence possible.

We talked about why New York’s disability system needs to catch up with people’s lives — and how listening to families and self-advocates is shaping real legislation, including housing reforms and the impact of bills like the Communications Bill of Rights.

Good policy means fewer barriers, more options, and real independence.

12/31/2025

Family caregivers: May 2026 bring gentleness and calm to your caregiving journey. Remember to nurture your own wellbeing along the way.

Are you caring for someone with intellectual and developmental disabilities (IDD)? NYSCRC is pleased to offer a FREE fou...
12/30/2025

Are you caring for someone with intellectual and developmental disabilities (IDD)? NYSCRC is pleased to offer a FREE four-part webinar series for caregivers and professionals: Understanding Aging & IDD. Visit our events page https://www.nyscrc.org/events to learn more about each webinar and the experts who are leading these events! Please share with your family, friends, and networks. The first in the series will be held on January 14. Living With Dementia CNY UR Medicine Alzheimer's Association, Central New York Chapter Alzheimer's Association Long Island Chapter

12/29/2025

Please join us in advocating for skilled nursing facilities like ours, nursing homes, and the residents we serve. Visit our website to read the letter and add your name to be sent to Albany, urging our leaders to address the nursing home crisis and restore Medicaid cuts.

Learn more today at https://www.monroehosp.org/advocacy.

12/22/2025

To every family caregiver and those who support them, your love, commitment, and resilience enrich our world. NYSCRC wishes you and yours a joyful holiday season!

12/17/2025

Productive meeting with disability advocates from across the state ahead of the upcoming legislative session. Great discussion on priorities and legislation for 2026, grounded in real experiences.
Thanks to all for the opportunity to listen and be part of the conversation 🤝

12/15/2025

We are hiring! Please share!

12/15/2025
12/12/2025

💜 Who cares? We do — and so do our state legislators.

is proud to recognize lawmakers who understand firsthand what it means to be a family caregiver. With more than 4 million caregivers in New York, their lived experience helps shape policies that support families across our state.

Learn more: http://spr.ly/61897U2hT

12/10/2025

Caring for loved ones living with dementia can be an incredibly rewarding thing to do.

But there are a lot of challenges carers can encounter that aren’t always visible, such as stress, overwhelm and burn out, to name but a few.

Sometimes this experience can be likened to an iceberg, as illustrated here, showing that what is visible is often only a small part of someone’s reality.

If you’re a carer, what would your dementia 'iceberg' look like?

Remember to check in on those around you, they may seem fine on the outside but be struggling deep down đź’™

[Image description: A graphic of an iceberg illustrates the age-old iceberg analogy. In this instance, it highlights how a carer (for someone living with dementia) can appear fine on the surface but can be battling significant challenges that aren’t always visible to others. Words including sacrifice, selflessness, kindness, resilience and patience surround the top portion of the iceberg, whilst words including overwhelm, fatigue, anxiety, stress, burn out, frustration and grief surround the bottom portion of the iceberg.]

12/09/2025

Honored to be named a 2026 AARP Caregiver of the Capitol. Family caregiving isn’t just a personal responsibility — it’s a statewide priority. This recognition reinforces my commitment to advancing policies that support caregivers, strengthen long-term care, and ensure dignity for every New Yorker who depends on someone else’s care. Thank you, AARP New York for highlighting this essential work. ❤️

12/09/2025

Join Greg and guest Elizabeth Smith-Boivin, Executive Director of the Alzheimer’s Association of New York. They’ll discuss ways to create a warm, comforting ...

Address

1900 South Clinton Avenue
Rochester, NY
14618

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+15852876393

Website

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NEW DATE: NYS Caregiving and Respite Coalition Sustainability Summit 2021 Tuesday May 18, 2021 Hearst Media Center - Albany NY

The New York State Caregiving and Respite Coalition (NYSCRC) is a partnership of dedicated organizations and individuals committed to supporting the millions of informal caregivers throughout the state. The coalition and its members are passionate about helping connect caregivers with the information, training and support services critical to successfully caring for a loved one at home. NYSCRC members are committed to addressing the current and future needs of those engaged in family caregiving across the lifespan. Because statistics show that the number of traditional caregivers are decreasing in many parts of the state, a more innovative approach to supporting those who care for our most frail and vulnerable population is needed. With the help of the Lifespan Respite Grant, NYSCRC is working to develop a comprehensive, sustainable program with the goal of training hundreds of volunteer respite providers throughout the state. Greater availability to respite services will give caregivers more frequent breaks while helping them better manage the physical and emotional stresses that come with caring for an aging and/or disabled loved one. NYSCRC is committed to helping caregivers of all types across the age and disability spectrum. By supporting important initiatives like the volunteer respite program while sharing best practices from across New York, NYSCRC will take an active role in improving the lives of informal caregivers throughout their community, and the over four million family caregivers across the state.

To register, visit www.nyscrc.org/events

“THIS PROGRAM IS FUNDED IN PART BY MONROE COUNTY OFFICE FOR THE AGING, NEW YORK STATE OFFICE FOR THE AGING, US ADMINISTRATION ON AGING, LIFESPAN OF GREATER ROCHESTER, AND PARTICIPANT CONTRIBUTIONS.”