Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS International Foundation Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

EveryLife Foundation for Rare Diseases established the Scholarship Fund – to enrich the lives of adults living with ra...
03/13/2026

EveryLife Foundation for Rare Diseases established the Scholarship Fund – to enrich the lives of adults living with rare diseases by providing support for their educational pursuits.
Applications for the Scholarship will be open March 17–April 28 @ 2 PM Eastern. Up to 58 $5,000 scholarships will be awarded for the Fall 2026 semester.
Find out more: https://everylifefoundation.org/rare-scholarship/

Ultimately, the doctors told my husband that there was nothing more they could do and that I was dying. My sister reache...
03/12/2026

Ultimately, the doctors told my husband that there was nothing more they could do and that I was dying.

My sister reached out to AAMDSIF, used the Find a Specialist tool, and found the Aplastic Anemia specialist I needed.

I was airlifted to the specialist, where, after a three-month stay, they saved my life. The great care team that treats my disease is in my life because of AAMDSIF.

You can save a life, too, through your support of AAMDSIF programs. Donate now: aamds.org/donate

“It was an emotional ride,” he said, as he recalled looking out the window at everything below. He remembered his parent...
03/11/2026

“It was an emotional ride,” he said, as he recalled looking out the window at everything below. He remembered his parents crying as he lifted off the pad, his mom on the helicopter and his dad on the ground.
His amazing story: https://www.aamds.org/patient-chronicles/webb-kosich

We invite patients and their friends and families throughout the state of California to be with us in-person or virtuall...
03/10/2026

We invite patients and their friends and families throughout the state of California to be with us in-person or virtually for our 17th Annual March for Marrow at the iconic Shoreline Park, in Long Beach, CA. We will run or walk along the beautiful shore and FUNDRAISE for the Aplastic Anemia and MDS International Foundation, Inc. (AAMDSIF).

AAMDSIF provides education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.

You can support the work of AAMDSIF by donating to March for Marrow CA, creating a team, supporting a team and by joining us in-person on April 26, 2026. Find out more and sign up here: https://aamdsif.salsalabs.org/m4mca2026/index.html

“She’s in critical condition, take her to the Emergency.” This is how Phoenix began her journey with Severe Aplastic An...
03/09/2026

“She’s in critical condition, take her to the Emergency.”
This is how Phoenix began her journey with Severe Aplastic Anemia. She and her mom, Laura, explain how she went through transplant and follow-up to returning to school! Read their story here: https://ow.ly/IEAJ50X8xfN

PNH is a complex disease. Treatment isn't always straightforward.What should patients with PNH know about? Flying? Preg...
03/08/2026

PNH is a complex disease. Treatment isn't always straightforward.
What should patients with PNH know about?
Flying? Pregnancy? Additional conditions?
Dr. Sanikommu explains the details, plus answers questions from the live audience in this recording: https://www.aamds.org/share/webinar/788

As we close Aplastic Anemia, MDS, and PNH Awareness Week, we are highlighting a patient who has had several bone marrow ...
03/07/2026

As we close Aplastic Anemia, MDS, and PNH Awareness Week, we are highlighting a patient who has had several bone marrow failure diseases.
Ellen's journey lasted years as each new condition arose after another was successfully treated.
Listen and watch Ellen tell her story of strength and hope in this recording: https://www.aamds.org/share/webinar/734

03/06/2026

Aplastic Anemia, MDS, and PNH are rare diseases that are challenging to treat.
Nutrition remains important during treatment even though patients might find it difficult to eat their usual diet.
This webinar explains how to adjust eating habits and options, both during treatment and for survivorship. Watch here: https://www.aamds.org/share/webinar/774

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401 N Washington Street, Ste 430
Rockville, MD
20850

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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