07/14/2023
My favorite quote from the doctor was, “It can’t really be that bad if you are still working and doing everything you do.“ I told him I didn’t know I had a choice.
Years in pain, tired and the many changes in me for no reason or apparent reason ... Hiding everything from someone else, pretending to be doing better than you are; until it no longer works. No matter how strong you want to be.
Then the moment comes when they tell you what you have ... You have mixed feelings: you finally know what you have, but how do you deal with it?
Lack of encouragement, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.
Then, the daily responses, "Why did you get so fat?" “I have this great diet, if you would just go out and exercise you would feel better.” If I could, I would; when I can, I will.
That once beautiful hair of yours is now awful and it falls out.
What happened to you?
Silent and invisible diseases do exist...
When you have an invisible disease it is difficult to argue from your perspective with ignorant people.
Life takes a lot of turns!!!
Tired of being asked:
* Did you go to the doctor?
* Have you tried this?
* Have you tried that?
* I don’t know what else we can do for you.
Yes! I tried and am still trying everything!!!
Doctors say this disease is forever. That I will not heal. However, I will NEVER give up, but I want to make others realize:
* A nap will not cure me but it will help me.
* I am not lazy, I take medication and it sometimes makes me sleepy.
* I am not angry but sometimes cranky with pain.
* I struggle daily with pain, mobility problems, fatigue, and the criticism of my environment.
Most frustratingly, people look at me and say, "It can't be that bad; you look good."
Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good, it is an "invisible" disease.
This disease affects me physically, mentally, and emotionally. Because rare autoimmune diseases cannot be seen, but we feel them.
And they are there ... Silent attacks but extra painful.
I AM LOOKING AT THOSE WHO TAKE TIME TO READ THIS POST TO THE END.
Please, for me and in honor of someone who fights against any of these diseases:
-Membranous Nephropathy
-Sarcoidosis Disease
-Lupus
-MS
-Crohn’s Disease
- Ménière’s Disease
-Addisons Disease
-Hashimotos Disease
-Graves Disease
-FND
-Depression
-Anxiety
-PTSD
-Autoimmune disease
-Sjogrens syndrome
-Polycystic o***y syndrome.
-Rheumatoid arthritis
-Chronic pain
-Endometriosis
-Multiple sclerosis
-Myasthenia gravis
-Pulmonary hypertension
-Chronic fatigue syndrome
-Diabetes
-Fibromyalgia
-Raynaud and Scleroderma
-Neuralgia of the trigeminal
-Epilepsy
-Cancer
-Hypothyroidism
-Arachnoiditis
-NEAD
-Vasculitis
-Parkinsons
-Ehlers Danlos Syndrome
or some other disease you may not see.
I would like 5 of my friends to post (not share) this message to show that you are always there when that someone needs to talk. In support of a friend or a family member who is fighting a disease…just say “done”
