04/11/2024
One week down..
It sure has been a busy week. We are home from the hospital, and sleep deprived. Currently, we have daily appointments at Mayo Clinic. Aside from the early mornings, we have come to enjoy these appointments. Little by little, Derek’s kidney function improves, and we take every win that comes our way! We were told today that he is still in stage 5 kidney failure. He still has to adhere to a kidney diet for now.
This week was full of education! Our first education session started 12:30am, just hours after his surgery! Needless to say, we only got a couple of hours of broken sleep that night(and every night since!) We learned about his immunosuppressant medications and how the next 30 days are when his immune system is suppressed the most. When we make it to 6 months out, some things will ease up a little bit but this first year he has to be extra, extra careful.
Today Derek had his neck catheter removed! His neck catheter was in since December. It’s how Derek received his hemodialysis while his arm fistula was growing. We are beyond grateful that Derek did not require dialysis after his surgery. The doctors said his neck catheter was stubborn coming out, but Derek did great!
Again, we want to thank everyone that has donated to Derek’s gofundme. With out the love and support of our family and friends he would still be waiting for his kidney.
We thank God every day for this miracle. We pray for his donor and their family daily. We pray that Derek’s kidney remains healthy. This year has definitely been hard, but our faith has been our constant.
Overall, the doctors are impressed with his progress, and we are too!
With love,
Erin and Derek