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Daniel’s Life Journey

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Daniel’s Life Journey

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02/24/2026

Went to lunch the other day and Daniel was determined to use chopsticks for his Pho. Proud momma over here 🥰🥰

02/08/2026

Daniel had his first cast change and took it like a champ!

01/29/2026

Daniel did so good with his injection and casting! He's been doing great walking in them already. Not sure if he'll do it daily but one thing he did was ask if he could take the cast off. Otherwise, he seems to be doing good. Now to see how he does in school.

01/28/2026

As you go to sleep tonight and wake up in the morning, please lift Daniel in your prayers. Because of his sickness in the past, it led to muscle weakness/tightness in his legs/ankles/feet. He has been in AFO ankle braces for quite sometime and now we have met with a doctor from Physical Medicine and Rehabilitation that suggested Botox followed by 4 weeks of serial casting and a new set of braces. We're in hopes this will help him. 🙏💙🙏💙🙏 thank you all in advance for your love and support.

12/22/2025

😢😢 Daniel lost his first pet today

10/25/2025

1st Grade 💙

10/16/2025

Update!

Daniel did have his Sedated MRI this past Friday and we got this message from his neurologist:

"Daniel's MRI was reassuring. We again saw those old areas of injury related to his infection when he was a baby. They are more on the right than left, which again is a bit confusing about why his right leg is tighter and weaker, but sometimes this happens. There was nothing new in his brain or spine that would explain the toe walking. Please contact my office with any questions."

I am going to contact them to make sure we can go ahead with the Serial Casting or see if there might be another route we want to take to try and help Daniel regarding his toe walking.

Other than this, not much else going on.

Daniel's P*P contacted us recently asking if we'd be open to talking to a reporter from NBC about Daniel's story/journey since contracting Whooping Cough/Pertussis. We were connected with the Public Relations Specialist from Children's and just this morning we did a video call with the reporter from NBC. I have to say I'm not sure if this something that will be a national story and just a local story, but I will try my best to update and share.

As always, thank you for following Daniel's journey. We appreciate each and every one of you!

10/02/2025

What can I say about Daniel except he is doing remarkably well! Just got over a small tummy bug. His first month of 1st grade went good. Had at least one day of some "hands on" activity towards friends and using inappropriate language, but mostly going good so far.

Recently we started focusing on the fact Daniel does a lot of toe walking when he's not wearing his AFO braces. His therapy office mentioned we could try "Serial Casting" but also wanted us to connect back with neurology first, so we have got back into his neurology clinic and we attempted an MRI last week, but it was too much for Daniel, so we're going back next week for a sedated MRI. This decision is because she told us from his last MRI in 2021, most of the damage was on the right side of his brain which would affect/control the left side of his body, but we can clearly tell the right side of his body, especially his leg/foot/ankle is tighter than the left. I am worried about what the MRI will bring out.

Otherwise, Daniel is doing great!

As always, thank you for following Daniel's life journey and we'll update more soon.

God Bless You all.

09/03/2025

This big guy started 1st Grade today! Got on his bus like a champ!! Prayers for a smooth & safe year! 💙

06/05/2025

Last day of school for this munchkin ❤ ❤

03/22/2025

Celebrated Daniel's 6th Birthday this week and I think he was a very happy boy! Decked out with Super Mario!!

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Saint Michael, MN
55374

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