United Cerebral Palsy of Minnesota

12/21/2025

The Cerebral Palsy Research Network - CPRN has released the first comprehensive Adult CP Toolkit. This toolkit brings together insights and expertise from researchers, clinicians, and lived experience partners - including members of the Gillette community - to provide practical guidance and resources for adults with cerebral palsy, their caregivers, and the healthcare professionals who support them.

Learn more about the Adult CP Toolkit - and access a link to download it for free - at: https://gillette.mn/4b20WPv

Get a behind-the-scenes look at how the toolkit was created at: https://gillette.mn/490E9Ry

Join CP Research Network co-founder Michele Shusterman and Mary Gannotti PhD, Jensiné Clark, MD and Cristina Sarmiento, MD, four leaders from the CP Research...

10/24/2025

On Monday, October 27, Liz Boyer, PhD, clinical scientist and co-director of Gillette Children's Cerebral Palsy Institute research program, will share findings of her "Consequences of Falls in Individuals with Cerebral Palsy" study.

As part of the Cerebral Palsy Research Network - CPRN MyCP Webinar series, Dr. Boyer will discuss the study process, highlight how members of the CP community with lived experience helped throughout, and share her hopes for how what they learned will be translated to improvements in care, safety, and wellness.

The webinar will include a Q&A and is open to the public.

📆 Monday, October 27, 2025
🕐 7:00 pm, CST
Register:

Join the Cerebral Palsy Research Network to learn more about the results of the latest research into falls for people with cerebral palsy.

10/04/2025

There's still time to share your experience and make your voice heard!

Do you use a feeding tube or care for someone who does? Or have you used a feeding tube in the past? The Gillette Children's research team would like to learn from your experience!

Gillette is excited to partner with Boston Children’s Hospital on a study to help doctors learn the best way for tube-fed children to be fed after surgery.

By sharing your experiences through a quick survey, you can help our kids feel better, faster! Visit https://redcap.link/ljo2u1d3 to participate. Thank you!

12/14/2024

Tune in Monday, December 16, at 7p CST for an important webinar, Abelism in Healthcare. Sponsored by the Cerebral Palsy Research Network - CPRN, the webinar will feature Molly Fuentes, MD, MS, and will focus on ableism in healthcare and how medical professionals, institutions, examination protocols, and physical spaces can begin to shift to respect and address the needs of people with disabilities. Learn more and register at https://cprn.org/webinar-ableism-in-healthcare/.

Dr. Molly Fuentes, a pediatric physiatrist, speaks about ableism in healthcare and how clinicians can care for people with disabilities.

08/14/2024

Join an online community at MyCP.org that provides personalized educational recommendations, exclusive content, research participation, discussions, and free fitness programs.

Access the research Surveys after joining MyCP.org. Surveys take less than 20 minutes per survey.

Learn more at MyCP.org.

06/08/2024

Ever wonder what it's like to participate in health research? United Cerebral Palsy and CanChild are hosting two, one-hour learning session for families, caregivers, and individuals with lived experience who would like to learn more about research opportunities. Both are next week, so register today at: https://gillette.mn/45hGDZv

03/01/2024

As a Cerebral Palsy Research Network - CPRN member, Gillette Children‘s is part of a learning health network committed to centering patient voices and experiences in CP care. MyCP - offered through CPRN - offers resources and opportunities to participate in meaningful research. Learn more and register at: https://cprn.org/mycp/

10/28/2023

Did you know that patients play a key role in research at Gillette Children's? Individuals with cerebral palsy can participate in a study designed to help Gillette & the scientific community better understand how muscles fatigue during walking and exercise. Scan the QR code or visit https://gillette.mn/muscle-fatigue to see if you are eligible. Thank you! This study has been approved by the University of Minnesota.

09/30/2023

Youth with cerebral palsy – you are key! Help Gillette Children's & the scientific community understand how muscles fatigue during walking and exercise by participating in a research study. To learn more & see if you are eligible: scan the QR code or visit https://redcap.link/ynvnd82u. This study has been approved by the University of Minnesota.

08/11/2023

Our Next Presentation in The Professional Learning Series:

Dr. Lisa Pinson will present on “The Role of Perception-Action in Learning: Implications for Assessment and Intervention of Children with Movement Disorders” on September 21, 2023, 6 to 7:30 p.m. ET / 3 to 4:30 p.m. PT.

Register today! https://www.eventbrite.com/e/professional-learning-series-the-role-of-perception-action-in-learning-tickets-661184660117

The Professional Learning Series is sponsored by United Cerebral Palsy and organized by the UCP Research Committee, Gillette Children’s (UCP of Minnesota) and UCP of Central Arizona. The webinars are aimed at professionals who work with children and adults with cerebral palsy and other neurodevelopmental disorders but also open to the public.

06/20/2023

06/06/2023

Join us on Tuesday, June 20th for the next Professional Learning Series titled:
"Pediatric to Adult Healthcare Transition: Developing a Partnership to Help Patients and the Healthcare Team Thrive"
Featuring Tori Bahr MD, FAAP

The Professional Learning Series is sponsored by United Cerebral Palsy and organized by the UCP Research Committee, Gillette Children’s (UCP of Minnesota) and UCP of Central Arizona. The webinars are aimed at professionals who work with children and adults with cerebral palsy and other neurodevelopmental disorders but also open to the public.
Register here. https://www.eventbrite.com/e/professional-learning-series-pediatric-to-adult-healthcare-transition-tickets-568261735147