The Negative Space

The Negative Space Our mission is to change the way caregivers of all kinds are seen and supported.

It doesn't get more grass roots than this! 💌Sean is getting IVIG today, which takes hours, so we're using this time to w...
12/11/2025

It doesn't get more grass roots than this! 💌

Sean is getting IVIG today, which takes hours, so we're using this time to work on our end of year mailing. 😅 So if you receive a letter in the mail from us in the coming days, know it was stuffed by us with love in the clinic.

Also... So so so excited that in the coming months, spaces just like this (perhaps even this exact room!) will have signs for caregivers with words of recognition and QR codes to take them to The Storyline so that they can spend infusion days getting the support they need and deserve. 🎉

How do you like to pass the time on long clinic days? Share with us in the comments!

Episode 122: The Split Second Decisions Made in CaregivingCaregivers frequently find themselves needing to make split se...
12/09/2025

Episode 122: The Split Second Decisions Made in Caregiving

Caregivers frequently find themselves needing to make split second decisions that are, in some cases, matters of life and death. In this episode, we talk about decisions we have had to make, the role our personality types play in those moments, and how supporters can help.

Listen, share, and join us for a free virtual support group on this topic on Sunday, December 14 from 6-715pm CT.

Listen: www.insickness.care
Register: https://thenegativespace.charityproud.org/EventRegistration/Index/25888

The Most Relatable Text EverThis is a snippet of a text exchange I had with a friend recently (shared with permission). ...
12/08/2025

The Most Relatable Text Ever

This is a snippet of a text exchange I had with a friend recently (shared with permission). I know firsthand what it feels like to have to *once again* cancel plans, fearing that this may be the last straw, that the invites might stop coming, that the friends may think I'm just avoiding them.

Caregivers: Can you relate? Let's chat in the comments.

Supporters: PLEASE keep inviting the caregivers in your lives to things and give them grace when cancellations happen.

Show the caregivers in your life that you see and honor all they do with an "I'm Part of the Story" gift box. Using our ...
12/07/2025

Show the caregivers in your life that you see and honor all they do with an "I'm Part of the Story" gift box.

Using our years of experience as caregivers, we designed the gift boxes by creating and curating items that caregivers will use and appreciate, while being reminded that they are an integral part of the story. Hundreds of these boxes have been sent to caregivers all over the world and rarely are they received with dry eyes. Send one to a caregiver in your life today!

https://www.thenegativespace.life/gifts/

We are thrilled to announce that we were awarded  seed funding through the Minnesota Cancer Alliance to partner with M H...
12/06/2025

We are thrilled to announce that we were awarded seed funding through the Minnesota Cancer Alliance to partner with M Health Fairview Allina Health and Healthpartners Clinics to bring caregiver recognition and support into their systems! Stay tuned as we embark on this ground-breaking work.

A HUGE congratulations to our 2025-2026 Strategy Action Group (SAG) funding awardees! We're excited to see how your projects benefit the community.
Learn more at mncanceralliance.org/funding/

Starting Jan. 1, Minnesota’s Paid Leave gives workers time off to care for loved ones—without losing their paycheck or j...
12/05/2025

Starting Jan. 1, Minnesota’s Paid Leave gives workers time off to care for loved ones—without losing their paycheck or job.

Allison and Justin will be digging into what this new benefit provides with a guest from AARP on an upcoming episode of the . What questions do you have that you want to be sure we cover? Leave them in the comments below!

In the mean time, learn more at aarp.org/MNpaidleave and stay tuned for our episode on this topic later this month.

AARP

"'I don't think I can keep doing this," she said. "But I don't know what happens if I stop.'There are moments when an ex...
12/05/2025

"'I don't think I can keep doing this," she said. "But I don't know what happens if I stop.'

There are moments when an exam room becomes something else entirely -- when a physician stops treating the patient in the chart and instead becomes a witness to the unraveling of the person sitting beside them. This was one of those moments. And it is becoming far too common."

I've seen what happens when the weight of caring for a loved one becomes too great

12/04/2025

Meet Aisha:
♥️ Primary caregiver for both parents
♥️ Caregiver for 12+ years
♥️ Our twenty-third caregiver feature in our Share the Mic initiative

"My name is Aisha Adkins, and caregiving has shaped who I am today.

My journey officially began in 2013 when my mother, Rosetta, was diagnosed with frontotemporal dementia. But truthfully, I'd been caring for my father, Ron—a stroke survivor living with vascular dementia, type II diabetes, chronic kidney disease, and prostate cancer—long before that diagnosis came.

I was born premature and needed round-the-clock care. My parents gave me that without hesitation. Now, being able to return that care to them is one of the greatest privileges of my life. It's an honor I'll carry forever.

This experience transformed my purpose. In 2017, I founded Our Turn 2 Care to connect BIPOC and LGBTQIA+ millennial caregivers to resources and community—because I knew firsthand how isolating this journey can feel.

Caregiving isn't just personal for me—it's the work of my life. Through my advocacy, my graduate studies in Public Administration, and my service on boards like Alter Dementia and the Georgia Gerontology Society, I'm fighting to build a care infrastructure that honors every caregiver and every person who needs care. Most recently, I have begun to search for and bring together groups of organizations and individuals whose focus is to serve a niche community through my new venture, Caregivers of Color Collective. Through this project, I hope to centralize resources and services that serve communities of color through a culturally competent lens."

Join us in thanking .Adkins for sharing her story and for all she does for the caregiving community!

Meet Aisha Adkins:♥️ Primary caregiver for both parents♥️ Caregiver for 12+ years♥️ Our twenty-third caregiver feature i...
12/04/2025

Meet Aisha Adkins:

♥️ Primary caregiver for both parents
♥️ Caregiver for 12+ years
♥️ Our twenty-third caregiver feature in our Share the Mic initiative

"My name is Aisha Adkins, and caregiving has shaped who I am today.

My journey officially began in 2013 when my mother, Rosetta, was diagnosed with frontotemporal dementia. But truthfully, I'd been caring for my father, Ron—a stroke survivor living with vascular dementia, type II diabetes, chronic kidney disease, and prostate cancer—long before that diagnosis came.

I was born premature and needed round-the-clock care. My parents gave me that without hesitation. Now, being able to return that care to them is one of the greatest privileges of my life. It's an honor I'll carry forever.

This experience transformed my purpose. In 2017, I founded Our Turn 2 Care to connect BIPOC and LGBTQIA+ millennial caregivers to resources and community—because I knew firsthand how isolating this journey can feel.

Caregiving isn't just personal for me—it's the work of my life. Through my advocacy, my graduate studies in Public Administration, and my service on boards like Alter Dementia and the Georgia Gerontology Society, I'm fighting to build a care infrastructure that honors every caregiver and every person who needs care. Most recently, I have begun to search for and bring together groups of organizations and individuals whose focus is to serve a niche community through my new venture, Caregivers of Color Collective. Through this project, I hope to centralize resources and services that serve communities of color through a culturally competent lens."

Join us in thanking Aisha for sharing her story and for all she does for the caregiving community!

Jill taking over! 🎉Today we’re celebrating someone truly special—our fearless Executive Director, Allison!Allison pours ...
12/02/2025

Jill taking over! 🎉

Today we’re celebrating someone truly special—our fearless Executive Director, Allison!

Allison pours her heart into The Negative Space every single day, championing our mission and lifting up our community. She’s the kind of leader who shows up, listens deeply, and never stops working to make a difference.

If you’d like to honor Allison’s birthday, drop a happy birthday message in the comments below and consider making a donation to The Negative Space. There’s no better way to celebrate her than by supporting the work she’s so passionate about.

Happy birthday, Allison! Thank you for everything you do. 💙

https://www.thenegativespace.life/donate/

Join us for a free virtual support group for caregivers of all kinds on Sunday, November 30 from 6-715pm CT. At this ses...
11/29/2025

Join us for a free virtual support group for caregivers of all kinds on Sunday, November 30 from 6-715pm CT. At this session, we'll talk about the latest episode of the In Sickness podcast "The Caregiver's Caregiver," in which we interviewed Allison's mom (who will join us at group!) about what it's like to be in ring 3 of the caregiving circle.

Listening to the episode is not required. We hope to see you there!

Register here: https://thenegativespace.charityproud.org/EventRegistration/Index/25789

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Saint Paul, MN

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