03/06/2026
Meet Danielle:
♥️ Former caregiver for her husband, Jason, who had ALS
♥️ Caregiver for almost 4 years
"Life can be beautiful and ugly all at the same time. I had the privilege of caring for my husband for 3+ years after his ALS diagnosis. It was a slow-moving train as his body shut down, and this once independent human ultimately depended on me for everything. Brushing his teeth, scratching his nose, translating his words, helping him breathe. Even with his loss of speech and ability to hold my hand or hug me, we found ways to communicate and love each other. He never lost that glimmer in his eyes that melted me. He raised his eyebrows to make me laugh or let me know that I was out of sorts. His body was limp, heavy from immobility, and our home was a medical experiment, but his energy was love.
The hardest part of losing the love of my life has been adjusting to a world without him. Luckily, he shows up when I least expect it. While in the car, panicking about a social commitment for our son — literally losing it — the smell of my love's cologne filled the car out of nowhere. There are so many ways he continues to be present.
Be strong, my people. Be kind to yourselves. What you are doing in caring for others is big and important."
Join me in thanking Danielle for sharing her story with us. 💕