29/05/2025
Utterly devastated typing this. This is Griffin, the sweetest and most charismatic 8 year old boy whom I have gotten to know over the past several years after meeting him and his beautiful family while staying at the House as he and his little brother, Declan, were receiving treatment for CDH. His moms have always been THE kindest and most supportive people and even though we haven’t seen each other in a few years, we still keep in touch and check in on each other. This week, the unimaginable happened, as Griffin was experiencing one of his episodes that he routinely gets with his condition, he experienced a cardiac arrest at home, where his mothers performed CPR. This led to a series of multiple medical events over the past two days which ultimately led to an irreversible brain herniation. He was declared brain dead this morning at 11:32, and in honoring his wishes, tomorrow, on what should be his 9th birthday, Griffin will receive an Honor Walk and complete the most sacred act of all, donating the gift of life so that others of all ages can continue to experience even a tenth of the pure joy, love and light that Griffin IS. The halls of Children’s will be lined with rainbows— because if you knew him, you knew he couldn’t pick ONE favorite color because it would make all of the other colors feel bad. 🥹💔🌈 Please pray for the Thompson-Crew family, for Angie and Veronica as they prepare their sweet boy for his final race to the heavens, and especially little Declan, as he learns to navigate life without his best buddy by his side. Please visit https://gofund.me/204bd037 to donate to help cover final medical expenses and funeral expenses. Let’s give Griffin the BIGGEST celebration of life as he completes his final, most selfless act of giving life. Thank you for all of the laughs, kiddo. The only comfort I have in my heart today is knowing that is totally by his side right now. And I KNOW he is preparing to blow out his candles, tomorrow.
Life changes in an INSTANT.
Hug your babies.
Tell people you love them, often.
Laugh, because its the best medicine.
And LOVE HARD.
Be radically kind.
Smile in the storm.
THAT was Griff. ❤️