Shep's world

Shep's world This page will follow Shepherd's life living with Tracheal Agenesis.

Mom life 😍
04/04/2026

Mom life 😍

After an all clear from urology regarding Shep's vesicostomy and bath time, he was finally able to get in the tub and ab...
04/03/2026

After an all clear from urology regarding Shep's vesicostomy and bath time, he was finally able to get in the tub and absolutely loved it. 🩵

03/29/2026

Dance party before bed last night 😂

With Shep having to wear his helmet 23hrs/day we don't get a whole lot of photos without it. His hair is getting out of ...
03/22/2026

With Shep having to wear his helmet 23hrs/day we don't get a whole lot of photos without it. His hair is getting out of control. How soon is too soon for a haircut? 😊

03/14/2026

Today we took a couple hours to run back to our house with Shep for the very 1st time. Slowly we hope to transition back there full time.

03/14/2026

Shep has started sitting more and more and for longer periods. Other than his huge smile, he let's us know he's happy by rocking back and forth or smacking things (most of the time it's his helmet). He has recently learned how to roll over on his own (no footage of that yet), and is starting to tolerate tummy time more than before. Overall we feel he is progressing nicely. 🙏

We wanted to share this amazing illustration of Shep's anatomy one of his surgeons made for us. Dr. Jennings is not only...
03/08/2026

We wanted to share this amazing illustration of Shep's anatomy one of his surgeons made for us. Dr. Jennings is not only a great surgeon but an incredible artist. We did use Ai to help with shading but it illustrates his anatomy perfectly if we're ever in a situation where a facility isn't familiar with him.

03/07/2026

These treatments are necessary for Shep because, remember, he technically breaths through an esophagus. Esophagus tissue lacks little hair-like structures called cilia which play an important role in cleaning and protecting the respiratory system. We alternate between 2 and 3 treatments every 6 hours which do a number of things ranging from relaxing and opening the airway to thinning mucus to reducing inflammation in the lungs.

We almost missed day.
03/01/2026

We almost missed day.

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501 6th Ave S
Saint Petersburg, FL
33701

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