02/14/2026
She fills the room with laughter. She keeps up with her brothers. She is the kind of child whose energy makes a house feel alive!
This Rare Disease Month we're honored to introduce Rose Marie, our second patient highlight in our We Care For Rare campaign. For her family, those joyful moments are everything — because they know how fragile they can be.
Rose Marie Gomez was diagnosed with cystic fibrosis, a rare, genetic, and life-limiting disease that affects the lungs and digestive system. The diagnosis came as a complete shock. Cystic fibrosis is unpredictable. One day she can seem perfectly healthy. The next can bring breathing treatments, exhaustion, and fear. Her daily life includes hours of preventative therapies designed to protect her lungs and extend her life.
“The healthy days are just lucky days,” her mom, Dulce, shares. “They’re not permanent. They’re just lucky days.”
For a long time, Dulce tried to carry the weight of appointments, treatments, insurance, specialists, and uncertainty on her own. When Rosemarie was hospitalized, the emotional toll became impossible to ignore.
That is when Coastal Kids Home Care stepped in. Through skilled nursing, detailed care coordination, and consistent communication with providers, Coastal Kids became a steady presence in the middle of uncertainty. Coastal Kids helped manage treatments, logistics, and ensure no detail was missed.
“They don't just care for my daughter — they care for me.”
Today, instead of fighting through the medical system alone, Dulce has a team beside her. “I don’t have to lift a finger. I just get to be her mom.” In a journey filled with unpredictability, that kind of support changes everything.
Visit our website to learn more about our We Care for Rare campaign and how you can support children living with rare diseases. Stay tuned all month long as we share more stories like Rose Marie’s!
