Paisley’s Journey as a HLHS Warrior

01/12/2024

My heart breaks (because I was in the hospital), but rejoices that Paisley celebrated her second birthday!

Happiest Birthday to the strongest human I’ve ever met!

I love you P Sugar!

01/12/2024

Because everyone need a cute nakey heart warrior Paisley photo!

01/12/2024

Paisley had an echo this week while I was in the hospital. To all of our loving suprise her heart is “stable” at the moment. She’s growing (she’s a whopping 25 pounds!) and having so much fun with all her hospital family and her Grandmas who visit her everyday.

I feel immensely grateful for this news.

10/20/2023

Paisley is seriously the cutest human on the planet! 🎃

10/18/2023

My good friends made a GofundMe for my cute little family.

I’d really appreciate it if you could share with your friends, family, and your communities.

We love you and are so grateful to have such loving support during this really difficult time.

Love, Steph and Family

Hello! Our amazing friend, Stephanie Sorensen “Steph,” is the most amazing M… Heather Rapp needs your support for Sweet Baby Paisley needs a Heart Transplant

10/16/2023

Paisley’s surgeon requested a Heart CT Scan to measure how much room she has.

…They gave her versed and then propofol and off she went to sleep.

These things are never easy for me to watch.

I love her so much.

10/11/2023

Hey Friends, I have had several people reach out to see how they can help or what they can do to make our life a little easier.

Honestly, I’m barely functioning at times.

Paisley could be in the hospital up to a year, possibly longer depending on when she receives her gift of a heart transplant. ♥️

I’m spread thin between all of my roles and spend all of my time at the hospital with P. (When my big girls aren’t home.)

I put together an Amazon wish list at the advice of a friend on things we need or may like.

I have made this shareable if you feel like you’d like to share with your friends and family.

Please don’t feel obligated to purchase anything, but if you’d like to, thank you. ♥️

09/13/2023