Frontotemporal Lobar Degeneration Association

10/15/2025

FTD community, help needed! Please share this video and tag
The NY FTD Registry bill has passed both houses unanimously and is headed to the governor’s desk.
Our voices are louder and stronger together 📣📣

10/01/2025

Emma Hemings Willis’s book is a great read. I’ve been doing advocacy work for over two decades. My brother and sister had FTD, and my mom had Alzheimer’s. Emma does an amazing job with this book.

I organized FTLDA in 2009 to raise awareness and funds for research. My family has been sharing our stories since 2021, when Michael took his own life. By 2005, Patsy had passed away from the disease, and in 2017, my mom succumbed to Alzheimer’s. Our family is well-acquainted with dementia. It’s not the end of the world. Education and research are crucial.

Dr. Paul Schulz, Dr. Bruce Miller, Dr. Bill Seeley, Dr. Mesulam, and Dr. Howard Kirshner all have guide and or helped me through this journey. They all are Brilliant minds in this field.


.org

09/29/2025

Email questions to drlaura@drlaura.com and special guest Esther Kane from the AFTD will answer them on air. Dow is tomorrow!

09/29/2025

09/28/2025

https://emmahemingwillis.com/small-steps-of-self-care-by-teepa-snow/?utm_source=Klaviyo&utm_medium=email&_kx=2McypyrNnMogjNFptjEitXzkAn5WXHgpgaKpLNu3J2k.VvGYPW

You may have heard the expression you cannot pour from an empty cup. Have you ever found yourself giving and giving and giving until your cup is so empty that it feels like it has a giant hole in the bottom? It is easy to feel that our self-care cups are leaving from the bottom, …

09/24/2025

Congratulations. Sorry you had to take this journey, you are an amazing person. So appreciate all you have done to bring awareness to FTD.

09/11/2025

https://emmahemingwillis.com/how-to-advocate/?utm_source=Klaviyo&utm_medium=email&_kx=-qTDgySNg0IJqnnGvwXuRFVcwfKJhAR3m9BV7eZNFwk.VvGYPW

Become an Advocate Together, let’s use our voices to raise awareness for FTD, support caregivers, and push for meaningful change. Inspire Action & Create Change The path toward better support for caregivers and treatment for FTD begins with advocacy and your voice is critical to these efforts. As ...

08/29/2025

With Emma Heming Willis – I just got recognized as one of their top fans! 🎉

08/29/2025

I think Emma Heming Willis has done an amazing job and will be a huge help to caregivers. We are focused on research and I’d love to visit with her one on one because I think we would make a great team. If you haven’t seen the show, it’s a real must see.

Heming Willis is the author of a new book on caregiving, "The Unexpected Journey."

06/18/2025

https://www.facebook.com/share/v/1Ud35yboFe/?mibextid=wwXIfr