The Chromosome 18 Registry & Research Society

The Chromosome 18 Registry & Research Society Chromosome 18 U.S.A. Our mission is to help people with chromosome 18 abnormalities overcome the obstacles they face

We’re thrilled to see Chromosome 18 in the Helen Journal! 🎉Hear from Dr. Jannine D. Cody, Founder of the Chromosome 18 R...
01/23/2026

We’re thrilled to see Chromosome 18 in the Helen Journal! 🎉
Hear from Dr. Jannine D. Cody, Founder of the Chromosome 18 Registry and Founding Director of the Chromosome 18 Clinical Research Center at UT Health San Antonio, as she shares how families, research, and community have transformed what it means to live with a Chromosome 18 condition — shifting the focus from limitations to strengths.

📖Read it here: https://helenjournal.org/january-2026/beyond-expectations-celebrating-the-strengths-of-individuals-with-chromosome-18-conditions

Our Parents/Caregivers of Young Children Support Call is right around the corner, and we have a special guest! 🥳Michelle...
01/23/2026

Our Parents/Caregivers of Young Children Support Call is right around the corner, and we have a special guest! 🥳

Michelle Parish, SLPD, CCC-SLP is the Clinical Coordinator and an Assistant Professor for the Speech-Language Pathology program in the Department of Communication Sciences and Disorders at UT Health San Antonio. She has over 26 years of clinical experience in the field, having worked both in the adult and pediatric populations. However, the majority of her career has been spent in the pediatric population in various settings with complex communicators. Her areas of research interest include Augmentative and Alternative Communication, caregiver training, and scholarship of teaching and learning.

Michelle will be giving a brief presentation at the beginning of our Parents/Caregivers of Young Children Support Call. If you have a question for Michelle, please comment below or email programs@chromosome18.org!

To hear from Michelle and connect with other Chromosome 18 families, register for our Zoom call, taking place Wednesday, February 4th at 7:00pm CT: https://www.chromosome18.org/event/parents-caregivers-of-young-children-support-call-february-2026/

As a new year begins, it’s time for a reset. Join us on Zoom Thursday, February 12th at 6:00pm CT for New Year, New Tool...
01/22/2026

As a new year begins, it’s time for a reset. Join us on Zoom Thursday, February 12th at 6:00pm CT for New Year, New Tools: Advocacy Reset, a virtual conversation about community, advocacy, and independence with Leslie Bellieu and Charles Morris of Southwind Fields — a community rooted in purpose, belonging, and meaningful independence for adults with differing abilities.

🗓️ Feb 12
💻 Virtual | Free to attend
👉 Register here: https://www.chromosome18.org/event/new-year-new-tools-advocacy-reset-for-caregivers/

Weston's Co****le for Chromosome 18 Tournament in Spring, TX is just around the corner! 🤩 Sending a huge thank you to Ko...
01/21/2026

Weston's Co****le for Chromosome 18 Tournament in Spring, TX is just around the corner! 🤩 Sending a huge thank you to Kodiak Cares Foundation for being our Title Sponsor for this event - their support means the world! We hope to see all of our Texas families there!

Team registration is officially SOLD OUT but feel free to come raise awareness and cheer on the teams! Learn more here: https://www.chromosome18.org/event/westons-cornhole-tournament-for-chromosome-18-in-spring-tx-2/

“Everybody can be great, because everybody can serve.” —Dr. Martin Luther King, Jr. Today we honor the life and legacy o...
01/19/2026

“Everybody can be great, because everybody can serve.” —Dr. Martin Luther King, Jr. Today we honor the life and legacy of Dr. Martin Luther King Jr. His vision of unity and compassion continues to inspire our work and our community. 💜

01/19/2026

Thank you all for tuning in to hear from Laurel and Jaron Sheppard, long time members with Chromosome 18! Tonight, you'll hear more about their story and their journey with Chromosome 18.

Join us tonight to hear from Jaron and Laurel Sheppard, longtime members of Chromosome 18. Tune in at 6:00pm CT here on ...
01/18/2026

Join us tonight to hear from Jaron and Laurel Sheppard, longtime members of Chromosome 18. Tune in at 6:00pm CT here on our page to hear their story!

Today is 18q- awareness day! Wear your blue today for 18q- day!
01/18/2026

Today is 18q- awareness day! Wear your blue today for 18q- day!

Our 2026 Annual Family Conference in San Antonio, TX is only six months away! We cannot wait to see all of our families ...
01/12/2026

Our 2026 Annual Family Conference in San Antonio, TX is only six months away! We cannot wait to see all of our families there. Be sure to book with our group block at the Westin San Antonio North to be close to all the fun we have in store!

Click this link to book now: https://www.marriott.com/event-reservations/reservation-link.mi?id=1754946420475&key=GRP&app=resvlink&fbclid=IwY2xjawO2fvhleHRuA2FlbQIxMABicmlkETFxdlJMTDVIaG5HaEdMcXd1c3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHte09wuMoTneYYeybYlXqhzCDd4fs85cbDWGyK5bSf-LZVCHFWVJ6qRNrCZ5_aem_3UmybWdw_gvd5r7HPKg1Lw

Tune in next week to hear from the Sheppard Family! Jaron and Laurel Sheppard, longtime Chromosome 18 members, will join...
01/11/2026

Tune in next week to hear from the Sheppard Family! Jaron and Laurel Sheppard, longtime Chromosome 18 members, will join us live Sunday, January 18th at 6:00pm CT to share their story.

Address

7155 Oakridge Drive
San Antonio, TX
78229

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12106574968

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