The Chromosome 18 Registry & Research Society

07/20/2025

Our self advocates are AMAZING.

07/18/2025

Happy Ring 18 Awareness Day ⭐️💛

07/17/2025

Last song at starfish dance. It has been an amazing conference and we hope those of you will join us next year in San Antonio.

07/17/2025

07/17/2025

2025 family conference Starfish Dinner & Dance

07/13/2025

A warm welcome from the Mayor of Niagara Falls, Ontario Canada to the Chromosome 18 annual family conference.

07/10/2025

Coming to conference? We recommend joining our GroupMe to keep up to date with live updates at conference. Join the GroupMe by scanning the QR code or the link here: https://groupme.com/join_group/108455881/zx8GnDc6

07/09/2025

The Power of 18 challenge starts August 1st! 🩷 Now is your chance to do your part to support vital Chromosome 18 research and have fun at the same time! Are you ready to challenge yourself, see how much you can grow in 18 days, and support chromosome 18 all at the same time? Join us from anywhere in the world and let’s take on the 18-day challenge! Learn more here: https://secure.givelively.org/donate/chromosome-18-registry-and-research-society/2025-power-of-18-challenge

07/08/2025

We need mentors for conference for our first time families! If you have been coming to conference and want to help mentor a new family, please email us at office@chromosome18.org to get matched with a new family for conference ⭐

07/04/2025

Wishing all of our Chromosome 18 families a safe and happy holiday weekend! ⭐💙