The Chromosome 18 Registry & Research Society

03/13/2026

Calling all self-advocates!! Next month we will be having a pet night 😺🐾 Join us with your pet (furry, scaled, or feathered) for a night of connection and fun!

Register here: https://www.chromosome18.org/event/self-advocate-pet-night/

03/12/2026

The hotel booking portal for conference is STILL open! Book by June 22nd to enjoy the group rate 💜

Book by following this link https://www.marriott.com/event-reservations/reservation-link.mi?id=1754946420475&key=GRP&app=resvlink or by calling 1-844-866-4304 and mentioning the Chromosome 18 Annual Conference group block!

03/11/2026

✨A special word from the Poggio family at the 4th Annual Pennies for Perri in Newport Beach, CA this past weekend!

💜We are extremely thankful to the Poggio family for hosting this incredible event and for all those that attended to support Chromosome 18.

03/11/2026

Our monthly Facebook live is just a week away! Join Dr. Faux on March 18th at 6pm (CST) to learn more about his experience in pediatric neurology and ask questions🧠✨

03/11/2026

03/10/2026

Our virtual camp event is TONIGHT! Join us for a short camp game, gather at the virtual campfire for story time, and end with some bingo ⛺🔥

Registration required: https://www.chromosome18.org/event/virtual-starfish-camp/

03/09/2026

03/09/2026

💭A special message from our C18 CEO, Neale Parker, and the hosts of Pennies for Perri, the Poggio family, in Newport Beach, CA!

💜Thank you to everyone who attended Pennies for Perri and supported Chromosome 18 this past weekend! It was a wonderful evening of celebration that raised $131,000 for Chromosome 18. We are incredibly grateful to the Poggio family for organizing this event and to all who showed up to make a difference for our Chromosome 18 families.

03/09/2026

The Chromosome 18 2026 Annual Family Conference Scholarship is open! 🤩This award enables a first time attending Chromosome 18 member family, who might otherwise not have the necessary financial support, the opportunity to attend 2026 Conference in San Antonio, TX July 12th-15th. 🌟

➡To read more and apply, click here: https://forms.gle/qxFXg9bHS95UkVzU7.

03/06/2026

The next Clinical Research Center tour is just TWO WEEKS away! Join founder, Dr. Jannine Cody, in person to see where all of our research takes place🧬✨

Register here: https://www.chromosome18.org/event/in-person-clinical-research-center-tour/