William’s Will to Fight

04/24/2026

04/24/2026

Some pictures of this past week!

We started measuring range of motion from our first day back to PT from Texas. From last week to this week William had some great results!

We have definitely seen a huge difference in his back! Now, he has to be stretched out to get it there but this wasn’t possible before. It’s why we did what we did and I’m super happy so far!

Also I added a few pics of when we took him to see Mario Bros at the movies! 😎

I’ll post some reels with the videos as it won’t let me post videos. Enjoy!

04/08/2026

We are 7 days post surgery and finally seeing the benefits! The few days after the surgery were easy since he had meds to help him through it. But after that was a bit of a battle. We had a few rough days. Thankfully that’s behind us!

Today was his first day back to PT and WOW! He’s looser, calmer, and he’s much more alert. I think it due to his levels of pain being less.

We ended our trip with our favorite, Dr Bor and his team. He did really well there and was even tracking a conversation moving his head to listen to who was talking! We’ve seen that before but it’s not often. He never fails to impress me ❤️

We have 4 days with our fantastic ABM therapist and then it’s right into a 6 week intensive at VIP with our favorites there!

I’m in awe of the love and support we’ve been given by family and friends. Thank you to everyone for the prayers and encouragement, this was a hard thing we did and it’s going to be life changing for him ❤️

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙

04/04/2026

Update on William after his surgery!

I’m pretty sure he’s done much better than me 🥴.

The Dr said everything went great! He’s really been super calm and alert ever since. He got out of surgery Wednesday late afternoon and we weren’t back to our air bnb until almost 8.

We left the next day and we’ve been making our way to Arizona ever since. I honestly can’t wait to get to his Drs there.

But this really has all gone the best it possibly could have!

Adding some pictures post surgery so you can see him.

*shout out to my dad for driving us across the country once again ❤️

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙

03/31/2026

I haven’t posted in so long… I’m so thankful for everyone that’s reached out to keep in touch with us and to check on the kids. We have just been non stop busy! So busy that I forgot to make a birthday post 🫣 our baby turned SEVEN! I’m really not sure how that happened so quickly but we’ve been given another birthday with him and we are GRATEFUL!

I scheduled a surgery for William about 6 months ago and it’s come upon us so quickly! We’ve now driven 4 days to Galveston, Tx and tomorrow is pre op, Wednesday is surgery. William is getting his back released and a whole slew of other things done that he desperately needs. He’s been in a lot of pain for quite awhile now and our prayer is this surgery is the answer.

God has opened every door to make this happen. Jeremy and I stepped out in faith knowing it was possible this entire very expensive surgery could possibly be an out of pocket cost. We pushed forward knowing this is where we were being lead for him. So much prayer, fasting, and time has gone into this and we have such peace about it all❤️ He will be seeing a fantastic orthopedic surgeon that cares deeply about children just like him ❤️

We also have such a great team of therapists lined up to support his recovery and therapy for 2 straight months. We are giving this boy all the opportunity to heal and to be more comfortable in his body ❤️

Anyway, I just wanted to give an update ❤️ William is doing well and thriving and I’m looking forward to healing this week!

I will make sure to post an update after surgery 😊

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙

12/03/2025

It’s been so long since I’ve posted! We’ve been busy doing all the things.

The last few months we’ve continued with his therapys. We’ve done a lot of stretching and alignment work, MNRI, ABM, chiro/functional neuro and camping! William really likes camping!

We did a 7 day camping trip for Thanksgiving this year and it was wonderful! The down time was much needed with our constant on the go life.

William is definitely making progress. He’s been showing signs of holding his head up and allowing his therapists to practice that with him. He’s tracking with his eyes better and his awareness is something we can’t get enough of! ❤️ It’s so sweet to see him turn and look at me when I’m talking to him. If he hears us talking in the morning he cries to get out of bed to be with us. And the newest is how loud he gets if he’s left in a room alone for longer than he wants. The FOMO is real here 😄

Things are lined up for him through mid year 2026 including an out of pocket surgery for William at $32,500. We are trying to figure out how to pay for that and what that looks like for us. It’s something we’ve prayed about and know he needs, it’s just A LOT.

These last few months we have been so grateful to spend time as a family. That both of our kids are in a better place to enjoy our camping trips and togetherness. I’ve added some pictures 🥰

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙

09/07/2025

This is how I spend my Saturday. I blend food for William. He has a Gtube in his belly that I can blend healthy foods and that’s how he gets his nutrition. It’s a labor of love and something I am most proud of. It’s one of those things that I do because I KNOW he is the healthiest he can be in what little control I have over that.

Yesterday was Williams 4 year survivor day. In 2021 William died for almost an hour and miracoulously hes alive and here today! While we were definitely side tracked by our teenager and his shenanigans, today it hit me…

I’m not going to go through all that happened on that day as it’s traumatic to think about. But today as I was blending food for William, I couldn’t help but think about how far our baby has come.

He came home completely lifeless, mininally conscious, with a tracheostomy, Gtube and was vomiting constantly, on a ventilator, with so much equipment and 2 parents that were terrified.

He has just come so far…

💕 He can express his likes and dislikes
💕 He cries (which I love to hear and you’ll only understand that when you stop hearing your baby cry)
💕 He loves to watch the dog walk by
💕Turn his head quite quickly to things he wants to look at especially Daddy playing the guitar
💕He breathes off a ventilator and has for over 2 years now
💕He uses a speak valve on his trach 12 hours a day that took me 6 months trying to get approval until I finally just did it without Drs authorization 😬
💕We can cap his trach and he breathes like a typical person easily 4-5 hours a day

There’s more but just from a health standpoint point, he’s really come leaps and bounds.

When we brought William home and he was constantly vomiting, I was so nervous to give him food. Drs had me so scared I would hurt him if he stopped getting the formula they prescribed. I laugh at that now 😂 I was scared of avocado lol…

We promised William from the moment we knew he had to decide to fight or not that if he did, we would go to the ends of the Earth to support his healing. And we have. This food I make for him is just another way for me to show him I’m fighting right along side him. He eats 4 different meals a day, mostly organic. He’s gluten free, dairy free, and grain free.

Today I was just so proud. Proud of him for showing up every day. 4 straight years and he shows up… constantly driving out of state, PT, ABM, MNRI, acupuncture, massage, PEMF, stem cells, chiropractic, he shows up to it all.

Thank you to everyone that has donated to Williams recovery, purchased therapy devices for him and his healing, and donated to his life the last 4 years. We are here because of you.

Thank you to everyone that has helped me. In so many ways I have been helped, supported, checked on, driven across country, flown to and from other states, taken time off work to come with me when I couldn’t do it alone. We are here because of you.

Thank you to everyone that has prayed for William and our family. God has provided in so many way. We have had so many answered prayers and we are here because of those prayers and Gods strength.

So today is the first day of another new year for our boy! 🥂 We will continue to fight for the best potential life for him no matter what it takes ❤️

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙




ah

08/15/2025

His body is slowly changing. Every day he gets a little bit more comfortable. We are noticing his attention isnt dedicated to so much body pain. Its freed up space for him to notice things around him. He’s turning his head to watch the dog walk by or in response to a noise. Baby steps, one day at a time 💕💪🏻

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To donate to Williams recovery and treatments

https://gofund.me/d4ce7963

https://venmo.com/u/KerAndJer

Zelle: kerandjer@gmail.com

Any amount helps 💙

08/14/2025

Day 5 of 10 🤩