Dystonia of San Diego

08/28/2025

Hello everyone! Tom Seaman who was scheduled to present at our 9/13/25 virtual support group meeting from 1-3:00 p.m. Pacific time has had to cancel. We hope to have Tom back to join us at a future date. However, we will still be meeting and having a SHARING/DISCUSSION format. These meetings provide an excellent opportunity to learn from each other and offer and receive support in a comfortable and safe setting. Participation in any discussion is always completely voluntary. Some individuals like to listen and that is perfectly fine. You can also choose to not show your image or your name. Remember that our meetings are open to persons with ALL forms of dystonia and are not specific to any one form of dystonia! I hope that you will be able to join us. RSVP’s are always appreciated but not mandatory. If you know that you’ll be able to be with us, please e-mail me at mmurphy582@gmail.com And also please e-mail me if you need the Zoom log-in instructions. Thank you.

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08/17/2025

Join us for our next virtual support group meeting on Sat., 9/13 from 1-3:00 p.m. Pacific time when TOM SEAMAN will be our guest presenter!

TITLE OF PRESENTATION: MANAGING THE STRESS AND EMOTIONS OF DYSTONIA

Tom Seaman has lived with dystonia since 2001 and devotes his life to worldwide education and awareness for this life changing disorder. He is the author of 2 books: Diagnosis Dystonia: Navigating the Journey, and Beyond Pain and Suffering: Adapting to Adversity and Life Challenges, as well as hundreds of articles on dystonia, pain, and emotional health topics. Tom is a Certified Professional Life Coach in the area of health and wellness, working directly with people to help them manage their physical, emotional, social, and vocational challenges. He is also a motivational speaker and chronic pain and dystonia awareness advocate. Tom is also a volunteer writer for Chronic Illness Bloggers Network, The Mighty, and Patient Worthy.

To learn more about Tom, get a copy of his books, or schedule a free life coaching consult, visit www.tomseamancoaching.com. Follow him on Twitter and Instagram

Persons with ALL forms of dystonia are invited to join us, as well as family members, friends and others. We strive to create a safe space where people feel comfortable in sharing their stories and experiences without judgment from others. We can learn so much from other individuals and we can also provide and receive support. Participation in any discussion is always completely voluntary. No one is ever forced to share. Some people like to just listen and that is perfectly fine. You can also choose if you wish to show your image or even your name if you would prefer not to. I feel that we are all in this together.

For more information and to RSVP if you’re planning on joining us, please contact Martha Murphy, Founder and Leader at mmurphy582@gmail.com You can also visit our group’s website at www.dystoniaofsandiego.com

07/12/2025

Join us at 1:00 p.m. Pacific time today for a sharing/discussion session. Contact Martha at mmurphy582@gmail.com if you need the Zoom log-in information.

07/10/2025

Those who choose to be brain donors are helping to make a difference for future generations by providing researchers with invaluable brain tissue for them to study. This priceless gift allows them the opportunity to study actual brain tissue which holds the key to learning more about this complex disorder and brings us closer to finding a dystonia cure. https://bit.ly/3GiNny8

Become a brain donor. Studies that have made important contributions to dystonia would not have been possible if volunteers had not decided in advance to donate their brains to research. Brain donation provides the opportunity to contribute to the field of dystonia research for future generations. T...

07/08/2025

Individuals with ALL forms of dystonia are invited to join us this Saturday, July 12th from 1-3:00 p.m. Pacific time for a VIRTUAL INFORMAL DISCUSSION & SHARING SESSION. We strive to create a safe space where we feel comfortable sharing and learning from each other while offering and receiving support. Participation in any discussion is completely voluntary. We respect each other's perspectives and experiences. For the Zoom log-in information contact Martha Murphy at mmurphy582@gmail.com Group website: www.dystoniaofsandiego.com

07/08/2025

This summer, help raise awareness of dystonia and support the DMRF when you purchase items from the DMRF store, including this reusable BPA free water bottle. The 32-ounce blue bottle includes a push-button, flip-top lid with a locking mechanism and a wrist strap for easier transport. Price: $10 htt...

07/04/2025

Happy 4th of July!!

07/01/2025

06/28/2025

Join us for our next virtual support group meeting on Sat., 7/12/25 from 1-3:00 p.m. Pacific time. Persons with ALL forms of dystonia are welcome! This will be an Open Discussion/Sharing format without a guest presenter. Participation in any discussion is always completely voluntary. We respect each person's views and perspectives and we can learn so much from one another and also provide and receive support in a comfortable and safe setting. Please e-mail Martha Murphy at mmurphy582@gmail.com for the Zoom log-in information as we cannot post that information on social media. Thank you. Group website: www.dystoniaofsandiego.com

06/24/2025

Rachel Frank, Laughter Yoga Instructor, will be featured today on The Zevely Zone which is broadcast in San Diego, CA on CBS8. Rachel presented at our March 8th support group meeting and was a huge hit. I'm so happy that CBS8 has chosen to feature her in the segment today. Here's a link:

Discover how Rachel Frank's Laughter Yoga enriches lives at the Anchored in Wellness Festival, offering stress relief and joy through unique events.

06/19/2025

Happy Juneteenth!