Dystonia of San Diego

01/13/2026

https://www.facebook.com/100064857785688/posts/1324907396347841/?mibextid=CDWPTG

We are saddened by the passing of Dilbert cartoonist Scott Adams. Scott was diagnosed with spasmodic dysphonia and helped to raise awareness about voice disorders by speaking candidly about his own experience. This was especially true in his 2013 book, "How to Fail at Almost Everything and Still Win Big" when he used his experience to illustrate themes of overcoming adversity and developing systems for success, often highlighting the isolation and frustration of the condition. Scott spoke at the 2015 National Spasmodic Dysphonia Association Symposium, memorably opening his talk by saying that he truly meant it when he said he was happy to be speaking at the conference. Our thoughts are with his family, friends, and all who were touched by his work.

Watch the 2015 presentation here: https://youtu.be/Bt-rvS9FQfY

01/08/2026

Happy New Year! Please join us at our first virtual support group meeting of 2026 on Saturday, January 24th from 1-3:00 p.m. Pacific time.

Topic: The Dystonia Network: Circuits, Programming and New Insights

Guest Speaker: Han S. Lee, MD, Movement Disorder Specialist, The Permanente Medical Group, Chief-Department of Neurology, GSAA Regional Movement Disorder Specialist, Comprehensive Movement Disorder Program, GSAA - San Leandro/Fremont

Contact Martha Murphy at mmurphy582@gmail.com for the Zoom log-in information and to RSVP. We hope you can join us for this very informative meeting. Group website: www.dystoniaofsandiego.com

12/14/2025

https://www.facebook.com/story.php?story_fbid=1303162771849744&id=100064681001693&post_id=100064681001693_1303162771849744&mibextid=CDWPTG

Happy Hanukkah! 🕎 This 8-day “festival of lights” begins today, Sunday, December 14, at sundown. The first candle is lit on the Chanukiah (menorah) on the first night of Hanukkah. Also spelled “Chanukah”, the Jewish holiday celebrates the triumph of light over darkness and spirituality over materiality. In 2025, Hanukkah will continue through Monday, December 22. Learn more! 🕎 Almanac.com/content/when-is-hanukkah

12/05/2025

Join us tomorrow, Saturday, 12/6/25 from 1-3:00 p.m. Pacific time when we will have our last VIRTUAL SUPPORT GROUP MEETING of 2025. It will be an open discussion/sharing format. Participation in any discussion is always completely voluntary. For the Zoom log-in information, please contact Martha Murphy at mmurphy582@gmail.com Our group's website is www.dystoniaofsandiego.com

12/02/2025

GIVING TUESDAY! The $5DollarCure4Dystonia campaign is a national movement to bring visibility to dystonia and the urgent need for medical research, $5 at a time. Campaign pioneers Mike Delise and Jason Dunn launched $5DollarCure4Dystonia in 2017 and have raised over $116,000!

Help DMRF on Giving Tuesday – Dec. 2, 2025!
Give $5, $25, or more!
Email 5 friends and ask them to give $5.
Create a fundraiser and tag 5 friends,
Share and like DMRF posts and post
Please Give $5 or more.

The $5DollarCure4Dystonia campaign is a national movement to bring visibility to dystonia and the urgent need for dystonia research, $5 at a time.

12/01/2025

Our group's last virtual meeting of 2025 is next Saturday, 12/6 from 1-3:00 p.m. (Pacific time). It will be a sharing/discussion format (no guest speaker). We hope that you can join us as we learn from one another and offer and receive support in a comfortable and safe setting. Please contact Martha at mmurphy582@gmail.com for the Zoom log-in information. Our group's website is www.dystoniaofsandiego.com

11/27/2025

Happy Thanksgiving!

11/11/2025

All are invited to join us for our last virtual support group meeting of 2025 on Saturday, December 6th from 1-3:00 p.m. Pacific time. This will be an Informal Sharing/Discussion format (no guest presenter). This gives us the opportunity to learn from each other and support one another in a comfortable and safe setting. Please contact Martha at mmurphy582@gmail.com for the Zoom log-in information. Group website: www.dystoniaofsandiego.com