Dystonia of San Diego

05/15/2026

Join us tomorrow (Sat., 5/16/26) from 1-3:00 p.m. Pacific time (please adjust for your time zone) when ROSE THOMAS, licensed acupuncturist, herbalist and nutritionist will provide a presentation on PAIN MANAGEMENT. Rose has been with us before and is always a wealth of information. For the Zoom log-in information, please contact Martha Murphy at mmurphy582@gmail.com For more information on Rose, visit https://rosetheacupuncturist.com/about-rose/ Group Website: www.dystoniaofsandiego.com

05/13/2026

Join the Dystonia Support & Advocacy Group of San Diego County for our Virtual Support Group Meeting this Sat., 5/16/26 from 1-3:00 p.m. Pacific time (please adjust for your time zone) when ROSE THOMAS, licensed acupuncturist, herbalist and nutritionist will provide a presentation on PAIN MANAGEMENT. Rose has been with us before and is always a wealth of information. For the Zoom log-in information, please contact Martha Murphy at mmurphy582@gmail.com For more information on Rose, visit https://rosetheacupuncturist.com/about-rose/ Group Website: www.dystoniaofsandiego.com

05/10/2026

05/03/2026

RACHEL FRANK, Laughter Yoga Instructor, is offering a FREE VIRTUAL LAUGHTER YOGA SESSION the first Monday of each month at 6:00 p.m. Pacific time. The session will be tomorrow evening on May 4th. It will be about 20-25 minutes. Rachel did a webinar on the Power of Laughter for the DMRF https://www.youtube.com/watch?v=8elspu4A5tk and also did a presentation for the Dystonia Support & Advocacy Group of San Diego County. She recently trained with Dr. Kataria in India who is the founder of Laughter Yoga. Rachel generously offered to do these Free Virtual Laughter Yoga sessions for our support group but said that anyone who is interested is welcome to join us. For the Zoom log-in information, please contact Martha Murphy at mmurphy582@gmail.com To learn more about Rachel, visit https://www.biglaughenergy.com/ Thank you.

Welcome toBIG LAUGH ENERGYLaughter yoga, comedy, and joyful experiences for every occasion. Chat with me Hi friends! I’m Rachel Frank, a Southern California based Laughter Yoga teacher, breathwork + meditation guide, Improv comedian and sketch comedy writer. I believe I was put on this planet to r...

05/01/2026

Join us on Monday, 5/4 at 6:00 p.m. Pacific time for a Free Virtual Laughter Yoga session courtesy of Rachel Frank. For the Zoom log-in information, please contact Martha Murphy at mmurphy582@gmail.com

04/28/2026

Share with CMS How New Rules Impact Dystonia Patients

The Centers for Medicare and Medicaid Services (CMS) work with regional providers to serve as the primary operational contact between the Medicare fee for service program and physicians. These regional providers are called Medicare Administrative Contractors (MACs). MACs are multi-state, regional contractors responsible for administering both Medicare Part A and Medicare Part B claims. Five of the MACs proposed changes to how they will reimburse the use of botulinum toxin for treating a number of health issues, including dystonia. We are asking dystonia patients to fill out a brief survey by May 7 to help us demonstrate how the new rules are problematic for people living with dystonia.

Take this survey powered by surveymonkey.com. Create your own surveys for free.

04/22/2026

https://www.facebook.com/100059215554772/posts/1328336169150222/?mibextid=CDWPTG

While it's unclear what led to the specific viral moment, experts have thoughts on the health secretary's known health condition. https://www.huffpost.com/entry/rfk-jr-breathing-spasmodic-dysphonia_l_69e90416e4b0bb584bc860ae?ref=bffbhuffpost&ncid_tag=fcbklnkushpmg00000063&utm_medium=Social&utm_source=Facebook&utm_campaign=us_main

04/16/2026

Participate in the DMRF's Auction for Action! Learn more:

Help Dystonia Medical Research Foundation spread the word about DMRF Auction for Action!

04/16/2026

Today is WORLD VOICE DAY!!

World Voice Day is an annual awareness event dedicated to recognizing the importance of the human voice and raising awareness about various voice-related

04/03/2026

Rachel Frank, Laughter yoga teacher, breath work, meditation guide and comedian will be hosting a monthly 20 minute Laughter Yoga session online for those interested. The first session will be on MONDAY, APRIL 6th at 6:00 p.m. Pacific time. I hope that you can join us! Please contact Martha Murphy for the Zoom log-in information at mmurphy582@gmail.com Rachel's YouTube Channel is https://www.youtube.com/ Rachel did a presentation for our group last year and she also did a webinar on the Power of Laughter for the DMRF. Here's a link to the webinar: https://www.youtube.com/watch?v=8elspu4A5tk

We could all benefit from more laughter in our lives. “The Power of Laughter” webinar will teach you how laughter can improve your health. Certified Yoga and...

03/29/2026

Rose Thomas, licensed acupuncturist, herbalist and nutritional counselor will be our guest presenter at our virtual support group meeting on Saturday, 5/16/26 from 1:00-3:00 p.m. Pacific time (please adjust the time for your region). The topic that she will be discussing is PAIN MANAGEMENT. Rose has been in practice as an acupuncturist since May of 2002. She has been lecturing on health and nutrition since 1997. Rose has a passion for health and teaching what she knows to her patients and students. Rose truly is a wealth of information, and our group has been very fortunate to have had her with us a number of times previously. To learn more about Rose, visit https://rosetheacupuncturist.com/

We welcome individuals with ALL forms of dystonia as well as your family members, friends and others to join us. We strive to create a safe and comfortable space where we can learn, share and offer and receive support. Participation in any discussion is always voluntary. Likewise, attendees can choose whether to show your image. We respect each person’s privacy and their viewpoints.

For the Zoom log-in information and to RSVP, please contact Martha Murphy at mmurphy582@gmail.com or call 619-582-1961. Group website: www.dystoniaofsandiego.com