PicnicHealth

09/30/2024

We're proud to partner with CureDuchenne to make health management easier while driving research forward.

09/19/2024

Here’s a quick look at how the PicnicHealth platform helps you stay organized with your medical records. Check out the video below from CureDuchenne!

09/17/2024

Discover how PicnicHealth is empowering patients and advancing research in this new webchat! Erin Smith, Head of Patient Affairs and Advocacy at PicnicHealth joins Heather Medlin from CureDuchenne to discuss how our partnership is transforming the landscape of Duchenne research.

Join Heather Medlin from CureDuchenne and Aaron Smith from PicnicHealth in this insightful web chat:They explore our groundbreaking partnership. Together, we...

02/29/2024

It's Rare Disease Day! Say hello to Luke and Owen, possibly the rarest duo we've ever seen! 👶🏼👶🏼 While their journey is just beginning, they're already thriving and showing how strong and resilient they are. And at such a young age!

Special thank you to all of you who took the time to with us, and helped us bring awareness to rare diseases throughout this whole month. There's not enough words in the world to express our gratitude! Your stories have illuminated the often-overlooked challenges of living with rare conditions, and your resilience truly inspires us all. Together, we're spotlighting the strength and courage within the rare disease community. Be sure to keep sharing and keep advocating 💜

02/28/2024

Meet Oliver, a small but mighty CAH warrior! Through the support of dedicated medical professionals and unwavering love, Oliver is thriving as a healthy, joyful, and unstoppable force, proving that nothing can dull his zest for adventure! Thank you Danielle for sharing Oliver's story, and helping us spread awareness for CAH!

02/27/2024

From double vision to a diagnosis of myasthenia gravis, John's journey has been filled with challenges. John's story teaches us that although the road ahead may be uncertain, we just need to face it with determination and gratitude— and celebrate all the small victories along the way! Thank you for sharing your story with us John! 💜

02/26/2024

The average time that a patient spends with their primary care doctor is 17 minutes. When you're living with a rare condition, that's not nearly enough time, especially when you may need to be the one educating your doctor about your condition. This can lead to more stress and headaches. Head over to https://picnichealth.link/iki for some tips for preparing for your next doctor's appointment.

02/23/2024

Meet Maddox, a true rare disease warrior! 💪 Despite battling Salt Wasting Congenital Adrenal Hyperplasia since birth, he's full of life and unstoppable energy. From NICU struggles to ambulance rides, he's shown the true meaning of resilience. Thank you for sharing his story with us Taylor!

Did this inspire you to share your story with us too? Then head to https://picnichealth.link/tgh! 🔗

02/20/2024

Did you submit your entry yet? Don't forget, we're giving away a FREE PicnicHealth account and $100 to one lucky winner this month, in celebration of Rare Disease Awareness month! We'll also be giving away $100 gift cards to 3 other winners, all you have to do is ! To learn more and to submit your entry, head to https://picnichealth.link/tgh!

02/15/2024

February is Black History Month, and we wanted to emphasize the importance of care for all. More often than not, health disparities persist in the Black community, reminding us of the urgent need for equitable access to quality care for all. That's why we want to provide a few resources that the Black community can lean on. Head to https://picnichealth.link/rm2 to read more! 🔗

02/07/2024

We sat down with Rare Patient Voice’s Director of Marketing and Communications, Laura Mullen, to dive into the organization's mission, achievements, and the profound impact it has had on the lives of those affected by rare diseases. To explore the full interview, head to https://picnichealth.link/md2 and learn how RPV continues to make a difference in the realm of rare disease advocacy and research.

02/01/2024

Happy Rare Disease Awareness Month! This year, we’re kicking things off with a giveaway! To enter, we want YOU to and help bring awareness to the rare disease community. Show us what makes your journey unique by submitting a write-up, or video showing your unique experience living with a rare disease.

Each submission will serve as an entry for one of four exciting prizes. 3 winners will each receive a $100 Visa gift card, and one Grand Prize Winner will receive a PicnicHealth account, with FREE record collecting for 6 months + a $100 Visa gift card! Video entries will count as 3 submissions, where text submissions will count as one. But if you really want to increase your chances of winning, we’re offering 5 additional entries if you share your post on your social media and tag us!

Submissions will be open until February 27th, and winners will be announced on February 29th, Rare Disease Day. Head over to https://picnichealth.link/45b to submit your story!