Autoinflammatory Alliance

11/18/2025

Please donate to support the program, & send messages to honor Dr Kastner via the official onine donation link. ISSAID & TARN are co-sponsors, and the Autoinflammatory Alliance is also a collaborator.. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡

All donations benefit this program, and support the task force working group that will address unmet needs for patients, clinical trials and help to improve the path to more treatments for patients with autoinflammatory diseases. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡
Donate here: https://givebutter.com/c/autoinflammatory2026.

Save the date and fundraising page to support the April 2026 Celebrating Autoinflammation: On The Shoulders of Giants 3rd NIH-WRNMMC Autoinflammatory and Immunedysregulatory Symposium also honoring the impact of Dr Dan Kastner MD PHD.

11/18/2025

Register now for the 3rd Symposium on Autoinflammation and Immune Dysregulation at the National Institutes of Health (NIH), Bethesda, Maryland, USA April 16–17, 2026. We will also be honoring Dr Kastner too.🧡 Register here today. FREE! https://tarnnetwork.org/events/celebrating-autoinflammation-on-the-shoulders-of-a-giant-127

This will be the first post pandemic large autoinflammatory and Immunedysregulatory meeting held in the US. The 2nd symposium, which we co-sponsored was in 2019.

This 3rd symposium is a collaboration with the Translational Autoinflammatory Disease Network (TARN), the International Society of Systemic Auto-inflammatory Diseases (ISSAID) along with the NIH.

The Autoinflammatory Alliance is also involved this year too, and we are helping to fundraise for this important meeting. See donation information in the comments.
American College of Rheumatology

11/18/2025

There is a free webinar on November 19th to help rare disease families with open enrollment and insurance choices for the coming year. https://rarediseases.zoom.us/webinar/register/WN_spnUNzq9SrimzpI8hm5aig #/registration

Learn how changes to Medicare, Medicaid and the ACA could affect access to affordable health care in our free webinar, “Stay Covered: Open Enrollment Essentials for Rare Disease Families,” Nov. 19 at 2 p.m. ET. Register here: https://bit.ly/4nUYIEm

11/18/2025

📢 Participa en RheumaVision 2026: una actividad de EULAR y EMEUNET .

💯 Una oportunidad única para jóvenes reumatólogos/as e investigadores/as de países miembros de EULAR, quienes deben crear vídeos breves y dinámicos (de 3 a 5 minutos) sobre un tema clave en Reumatología.

¡Tienes hasta el 1 de diciembre para enviar tu vídeo!

Más información: ➡️ https://www.ser.es/participa-en-rheumavision-una-actividad-de-emeunet/

11/11/2025

For Veterans Day today, thsnk you for your service, and we also honor all who have servedRemembrance Day globally. We appreciate and honor you today, and always.

11/11/2025

Still’s disease, a rare systemic autoinflammatory condition, is typically characterized by the salmon-colored evanescent rash, but patients may also present with atypical and persistent cutaneous lesions that complicate diagnosis and management. This study aimed to investigate the prevalence of th...

09/20/2025

Guess what? We got noticed by Travis Kelce and offered this badge recently, a few weeks after we got the nice badge from his fiancée, Taylor Swift! Yes, we are always in our ,but we also have colors that match The Kansas City Chiefs football team too. ❤️💛🧡 We have many patients and families, including Ellen Fisher and her family that have held events for diseases in Kansas City, MO that are from the other states in the area, including Kansas,so I thought I should share this news Thank you, and congratulations on your engagement.

09/20/2025

Six Southern Babes has a preorder #22 that will be taking orders though Sunday, September 21, and page 1 of the preorder features this set of Autoinflammatory Awareness line designed by Makenzie, a mom who has been very creative with her efforts to raise awareness for autoinflammatory diseases, and other causes close to her heart. 🧡 She wanted to create this to raise awareness, and bring joy to others in the community looking for items like this.
https://sixsouthernbabes.com/

This preorder is not connected to our organization or a fundraiser for our org, but we wanted to share it so anyone interested can get these bamboo soft clothes with a cute theme. This whole preorder #22 benefits the Traumatic Brain Foundation, which was the great charity that the company chose months ago to get a portion of every sale, so purchases benefit a cause too!

09/11/2025

We will never forget. We will honor all those that were, and are still the helpers, and who kept trying, and went beyond themselves to serve others on this day, and the days that followed..And we honor all that we lost that day, and heros we lost years later due to complications from being exposed to the rubble and ash at the sites. Today also called Patriot Day. Now, more than ever, please keep the spirit of service,, compassion, and unifying for the greater good as a priority, and keep doing all the amazing and often unseen acts of service and heroism that make a difference, today and going forwards. The power of love and goodness will always prevail. ❤️

09/08/2025

A big thanks to all our board members, scientific advisors, patient group moderators, advocates, fundraisers and to all who help us to make things possible. We cannot thank you enough, and there is more to do, but we could not do it without you. Here is a photo from our 2019 patient program (more were there that had to leave earlier before we got around to the photo). Board members in yellow and orange. Some of our medical advisors are in the photo too! Others that could not attend in person were there via facebook live, and we have some videos online, and will post up all of our program videos to YouTube in the coming months. We went to online programming the year after, but we have had meetups around the country in recent years at events. More to come! Thank you.

09/08/2025

Donations are still welcome anytime! A special thanks to QQ for her advocacy, art, and much more that she does to raise awareness, and also help young adults with autoinflammatory diseases. Life a a young adult is hard, and even harder with an rare, still to be defined, complex autoinflammatory disease. But she is making it happen, and we appreciate her years of support and efforts to help a lot of people to learn about these diseases, in addition to her wonderful fundraising. Thanks so much QQ for being an amazing Autoinflammatory advocate, and for your support to others.