Autoinflammatory Alliance

09/20/2025

Guess what? We got noticed by Travis Kelce and offered this badge recently, a few weeks after we got the nice badge from his fiancée, Taylor Swift! Yes, we are always in our ,but we also have colors that match The Kansas City Chiefs football team too. ❤️💛🧡 We have many patients and families, including Ellen Fisher and her family that have held events for diseases in Kansas City, MO that are from the other states in the area, including Kansas,so I thought I should share this news Thank you, and congratulations on your engagement.

09/20/2025

Six Southern Babes has a preorder #22 that will be taking orders though Sunday, September 21, and page 1 of the preorder features this set of Autoinflammatory Awareness line designed by Makenzie, a mom who has been very creative with her efforts to raise awareness for autoinflammatory diseases, and other causes close to her heart. 🧡 She wanted to create this to raise awareness, and bring joy to others in the community looking for items like this.
https://sixsouthernbabes.com/

This preorder is not connected to our organization or a fundraiser for our org, but we wanted to share it so anyone interested can get these bamboo soft clothes with a cute theme. This whole preorder #22 benefits the Traumatic Brain Foundation, which was the great charity that the company chose months ago to get a portion of every sale, so purchases benefit a cause too!

09/11/2025

We will never forget. We will honor all those that were, and are still the helpers, and who kept trying, and went beyond themselves to serve others on this day, and the days that followed..And we honor all that we lost that day, and heros we lost years later due to complications from being exposed to the rubble and ash at the sites. Today also called Patriot Day. Now, more than ever, please keep the spirit of service,, compassion, and unifying for the greater good as a priority, and keep doing all the amazing and often unseen acts of service and heroism that make a difference, today and going forwards. The power of love and goodness will always prevail. ❤️

09/08/2025

A big thanks to all our board members, scientific advisors, patient group moderators, advocates, fundraisers and to all who help us to make things possible. We cannot thank you enough, and there is more to do, but we could not do it without you. Here is a photo from our 2019 patient program (more were there that had to leave earlier before we got around to the photo). Board members in yellow and orange. Some of our medical advisors are in the photo too! Others that could not attend in person were there via facebook live, and we have some videos online, and will post up all of our program videos to YouTube in the coming months. We went to online programming the year after, but we have had meetups around the country in recent years at events. More to come! Thank you.

09/08/2025

Donations are still welcome anytime! A special thanks to QQ for her advocacy, art, and much more that she does to raise awareness, and also help young adults with autoinflammatory diseases. Life a a young adult is hard, and even harder with an rare, still to be defined, complex autoinflammatory disease. But she is making it happen, and we appreciate her years of support and efforts to help a lot of people to learn about these diseases, in addition to her wonderful fundraising. Thanks so much QQ for being an amazing Autoinflammatory advocate, and for your support to others.

09/08/2025

A special thanks to The Flying Lifeguards for their continuous efforts to raise awareness, and the spirits of patients with diseases for many years with their graphics and messages that really hit home to so many patients. They do a lot for International Autoinflammatory Awareness Month and Rare Disease Day, and anytime, including the holidays because autoinflammatory diseases are lifelong conditions that can affect people all year round. Thanks for all you do! You are truly Autoinflammatory Awareness Champions for all your efforts.

August is Autoinflammatory Disease Awareness Month🔥Depending on where you are in the diagnosis journey, this month can be a mix of emotions. My feelings have changed over the years, but the one thing that never left me was the memory of feeling alone during our journey. We never wanted patients and caretakers to feel as alone as we did, so we created The Flying Lifeguards as a way to support our community.
🧡🧡🧡

09/03/2025

Thank you World Patients Alliance for helping to raise awareness during the10th International Autoinflammatory Awareness Month Autoinflammatory Awareness Month in August! 🧡

August marks International Autoinflammatory Awareness Month

Autoinflammatory diseases are a group of rare, lifelong conditions caused by dysfunction in the innate immune system, leading to repeated episodes of inflammation. These diseases can be difficult to diagnose and manage, placing a heavy burden on patients and families.

This month, the World Patient Alliance honors the advocacy, education, and support efforts led by its member organizations working tirelessly to improve the lives of those affected by autoinflammatory conditions.

Spotlight: WPA Members Leading the Way

Autoinflammatory Alliance – Advocating globally for awareness, research, and support for patients with conditions like NOMID, TRAPS, FMF, and more.

AiArthritis – A patient-led nonprofit promoting awareness and early detection of autoimmune and autoinflammatory diseases with joint involvement.

09/01/2025

Thank you for your support for International Autoinflammatory Awareness Month!

La identificación de nuevas mutaciones, el desarrollo de fármacos que actúen en el control de la inmunidad alterada por factores epigenéticos y el mayor