Unite - ALS Community

05/10/2022

This page will be discontinued as of June 1. To continue seeing our posts, please like our main page here: https://www.facebook.com/UniteGenomics

Unite is developing an all-in-one platform to bridge the gap between the rare disease community and

03/30/2022

Join Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc on Thursday 3/31 at 5 pm ET to learn about the HEALEY ALS Platform Trial and expanded access to investigational products for people who can't otherwise participate in the trial. https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

Muscular Dystrophy Association The ALS Association ALS ONE Les Turner ALS Foundation EverythingALS I AM ALS Northeast ALS Consortium (NEALS)

03/21/2022

Please join us this Thursday 3/24 at 5 pm Eastern for our weekly HEALEY ALS Platform Trial webinar, featuring special guest Jaimin Shah, MD, from the Platform Trial site at the Mayo Clinic in Jacksonville, FL. Register here: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

03/14/2022

Please join us on Thursday, March 17th at 5:00 pm Eastern for a webinar about the HEALEY ALS Platform Trial and a special introduction to the study team at the University of Kentucky. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. In addition, we will be joined by Edward J. Kasarskis, MD, PhD, the Platform Trial Site Investigator at the University of Kentucky in Lexington, KY.

Register here: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

The ALS Association, Muscular Dystrophy Association ALS ONE EverythingALS Les Turner ALS Foundation I AM ALS Northeast ALS Consortium (NEALS)

03/08/2022

This week's HEALEY ALS Platform Trial webinar will be dedicated to a discussion of the mechanism of action and science behind the Platform Trial's newest investigational product, trehalose. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will be joined by Warren Wasiewski, MD, Chief Neurology Advisor at Seelos Therapeutics and Shafeeq Ladha, MD, Regimen E co-lead, for this special hour-long event Thursday March 10 at 5 pm Eastern: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

03/01/2022

The Sean M. Healey & AMG Center for ALS welcomes Andrea Swenson, MD, the lead investigator for the HEALEY ALS Platform Trial site at the University of Iowa, for our weekly discussion and Q&A. Join us Thursday March 3 at 5:00 Eastern! https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

02/08/2022

Please join Sabrina Paganoni, MD, PhD, Merit Cudkowicz, MD, MSc and special guest Ximena Arcila-Londono, MD from Henry Ford Health System this Thursday at 5:00 pm ET for this week's HEALEY ALS Platform Trial webinar! https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

01/10/2022

Join us this Thursday at 5:00 pm Eastern for the latest HEALEY ALS Platform Trial news, with special guest Sharon Hesterlee, PhD, Chief Research Officer of the Muscular Dystrophy Association, who will share how the MDA is working to fight ALS. https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

12/14/2021

Don't miss the last HEALEY update webinar of the year, this Thursday, December 16 @ 5pm!

In the last HEALEY ALS Platform Trial of 2021, Sabrina Paganoni, MD, PhD, Merit Cudkowicz, MD, MSc and Lori Chibnik, PhD, MPH will talk about the platform trial, biostatistics, how clinical trials are designed and how researchers study the data they gather. Join us Dec 16 at 5:00 pm Eastern!

Details & registration: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

12/06/2021

Please join Merit Cudkowicz, MD, MSc, Sabrina Paganoni, MD, PhD and special guest Nicholas Olney, MD from the Providence Health ALS group to discuss the latest HEALEY Platform Trial updates, this Thursday 12/9 at 5:00 pm Eastern. https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw

12/01/2021

Please join Merit Cudkowicz, MD, MSc, Sabrina Paganoni, MD, PhD, and Neil Thakur, PhD of the The ALS Association, this Thursday 12/2 at 5:00 pm ET for an update on the HEALEY ALS Platform Trial and questions from the audience.

Register here: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw