08/07/2025
At The Muscle and Joint Clinic, we hear these stories every day. Patients who've spent years - sometimes decades - fighting for proper care, validation, and effective treatment. The frustration, exhaustion, and heartbreak are real.
We want you to know that you're not being dramatic. You're not asking for too much. You deserve compassionate, knowledgeable care that addresses the complexity of EDS.
While the healthcare system still has a long way to go, we've never been more hopeful. EDS awareness is growing among providers. Telehealth has expanded access to specialists. Research is advancing.
This is exactly why we do what we do. Over the years, we've gained extensive experience helping our patients navigate their care teams and facilitating communication between specialists, insurance providers, and other stakeholders. We've also built a large network of EDS-knowledgeable doctors and specialists that we can connect our patients with - because finding the right providers shouldn't feel impossible.
You don't have to navigate this alone anymore. In our upcoming posts, we'll share practical strategies for building an EDS care team that actually works for you.
Which of these experiences resonates most with your journey? Share in the comments - your story matters and helps others feel less alone. 💬