At BioMarin Hemophilia, people with hemophilia always come first. We aspire to amplify the voice of the hemophilia community and channel that energy into all we do. That’s why we created Speak Out. We want to help the community thrive in ways never thought possible. From being on the cutting edge of medical science to supporting local advocacy groups, we will always make sure you are heard.
SPEAK OUT BY BIOMARIN HEMOPHILIA Facebook Community Guidelines
Welcome to the SPEAK OUT BY BIOMARIN HEMOPHILIA page! This is an open community for people with hemophilia, their caregivers and advocates, as well as the friends and family who support them. Together, we will amplify your voices and transform hemophilia community engagement. We encourage you to like, follow, and participate in the SPEAK OUT BY BIOMARIN HEMOPHILIA community.
Please note, BioMarin does not create nor control the user generated content posted to this page. Any links, references, or interactions with non-BioMarin posts, websites, organizations, or entities are not an endorsement by BioMarin.
We have a few, simple ground rules that you need to be aware of first. Please read these Community Guidelines carefully before posting. All comments, stories, pictures, and videos posted to the SPEAK OUT BY BIOMARIN HEMOPHILIA page will be monitored. We want a thriving and open platform, however, your content may be removed if it does not comply with the following Community Guidelines.
Community Guidelines:
1. Together, we can make a difference. This page isn’t a community without your voice. We’re listening, we want to help, and we know we can make a difference when we work together.
2. Be respectful. We reserve the right to remove any comments for any reason, including those we consider disrespectful, offensive, threatening, obscene, inflammatory; that contain profanity; or that we deem otherwise inappropriate. BioMarin assumes no responsibility or liability arising from the user content of the page including but not limited to, any error, defamation, libel, slander, omission, falsehood, obscenity, po*******hy, profanity, danger, or inaccuracy contained in any information within this page. Please visit http://www.biomarin.com/terms/ and https://www.biomarin.com/privacy/ for full terms and conditions.
3. No name dropping. In this community, we cannot allow the discussion of specific products, clinical trials, or treatments (approved or investigational) so please do not mention any medicine by name—ours or anyone else’s. Please do not reference any pharmaceutical brand, including products or services. Further, do not mention names of doctors or hospitals. Do not post comments (either positive or negative) that mention the names of medical professionals or facilities.
4. Consult your doctor. This is not the best place to report or discuss side effects. Any side effects experienced while taking a BioMarin product can be reported to BioMarin Drug Safety at 1-800-983-4587. You can also report side effects of BioMarin or any prescription product directly to the FDA at 1-800-FDA-1088 or by visiting www.fda.gov/medwatch.
5. Do not solicit or give medical advice. All users should consult with a medical professional about their own medical conditions. We know our users often look to each other for helpful information, but please refrain from requesting or giving medical advice.
6. Acknowledge users’ privacy. Please don’t share personal information about yourself or others that could be used to identify individuals who may not wish to be included in this forum.
7. No sales, please. Please don’t use our page as a place to promote your product or pitch your services. Please also avoid posting links to external sites. We reserve the right to remove any posts that are deemed promotional.
8. Follow the law. Do not post comments that violate copyright and/or other intellectual property law, are fraudulent or deceptive, are libelous or defamatory, promote illegal activity, or are otherwise unlawful.
Housekeeping:
-We’ll do our best to respond to posts or comments in a timely fashion, but you remain solely responsible for the content you post.
-Remember, you’re sharing content with us. You understand and agree that the content you post will be treated as nonconfidential and nonproprietary and that you are giving us and our affiliates a royalty-free, irrevocable, perpetual, nonexclusive, and fully sublicensable license to use, reproduce, modify, adapt, publish, translate, create derivative works from, distribute, perform, and display such user content in whole or in part, on a worldwide basis, and to incorporate that content in other works, in any form, media, technology, or products now known or later developed, including for promotional or marketing purposes; and you further represent, warrant, and covenant that you have and will continue to have the legal right to grant these rights.
-Your use of the SPEAK OUT BY BIOMARIN HEMOPHILIA page is also subject to Facebook’s policies, available at www.facebook.com/policies and with BioMarin’s community ground rules. If you have any questions, please contact us directly at http://www.biomarin.com/contact
-We reserve the right to change or add to these Community Guidelines at any time. If we do make changes, we’ll be sure to post an update on our Timeline letting you know.
Important legal disclaimers:
-The information provided on this page is for informational purposes only and is not intended to replace the advice or clinical judgment of a qualified medical professional. BioMarin reserves the right to alter or remove content from this page or disable the commenting feature of this page at any time.
-The views expressed in comments submitted on this page are solely those of the commenters and do not necessarily represent the views of BioMarin, its employees, or its affiliates.
-Consult your doctor. From time to time, this page may contain information related to various health, medical, and fitness conditions and their treatment. Such information is not meant to be a substitute for the advice provided by your doctor. You should not use the information for diagnosing a health or fitness problem or disease. You should always consult your doctor. Likewise, please refrain from posting information to the page that provides medical or other professional advice; we do not provide medical or other professional advice through this site. If you provide information in a comment submitted on this page about an adverse event experienced while taking a BioMarin product, we may contact you to seek further information.
-Visit http://www.biomarin.com/terms/ for full terms and conditions.
