National Family Association for DeafBlind

National Family Association for DeafBlind Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from National Family Association for DeafBlind, Sands Point, NY.
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Empowering Success for Families of the DeafBlind Community


(The opinions expressed are the viewpoint of the author only and do not represent NFADB’s stance on any issue, whether social or political in nature)

05/22/2026

IDEA Part D is a lifeline for the DeafBlind community: funding the state DeafBlind projects that provide critical educational and developmental services to youth with combined hearing and vision loss.

The stakes for our families couldn’t be higher as we aim to ensure Part D stays federally funded and maintained.

The DeafBlind DATA Act would require the U.S. Census Bureau to establish an accurate, centralized count of the deafblind population for the first time. (We can better protect what we can count! 💛)

Watch as Kristi and Darlene break down why protecting IDEA Part D and passing the DeafBlind DATA Act are essential steps toward ensuring our community gets the services and support we deserve.

05/14/2026

“Self advocacy could be expressed outside of being linguistic. It could be expressed through the body in a variety of different ways.”
– Susan Bruce, Ph.D., professor emerita, Boston College, special education consultant

From the latest module in the “Teaching Children Who Are Deafblind” series, “Preparing for Life After High School” https://www.nationaldb.org/products/modules/pd/preparing-for-life-after-high-school/

05/12/2026

A few weeks ago, history was made! 👊

The first-ever DeafBlind Caucus meeting was held in DC! Alongside the meeting, some fierce advocates spent the week championing the DeafBlind Data Act.

Here’s a look back at that moment as and shared why the caucus matters and why data is everything for our community.

Since our visit, we’re excited to share even more representatives have signed on to the DeafBlind Data Act.

More highlights to come! 🖤

04/17/2026

As the DeafBlind Caucus held its inaugural meeting, its co-chairs came together with a shared vision. This moment marks a new era of visibility, advocacy, and leadership for our community. 🤟🏼💛 Thank you
Rep. April McClain Delaney and Rep. Morgan McGarvey for giving us all a seat at the table!

04/17/2026

Track the DeafBlind DATA Act: https://bit.ly/4tTCG8u

HR 2947 is a bipartisan bill that changes something that might surprise you: right now, the U.S. Census Bureau collects data on people who are deaf and people who are blind. However, it doesn’t collect data to count the DeafBlind community.

That means we don’t have a reliable national count of how many DeafBlind Americans there are.

No accurate count = no accurate funding, no targeted services, no real policy. This bill changes that by requiring the Census to publish that data every year. It’s a simple bill with real, meaningful impact!

We’re so grateful Rep. April McClain Delaney led the charge and sponsored this bill. Our team spent time on Capitol Hill advocating for this bill this week - and we’re excited to see Representative Wesley Bell as a new cosponsor, with (hopefully) more to come! 🤟

04/15/2026

Inaugural DeafBlind Caucus Meeting: a quick video recap! 🤟

It’s been a busy day between the Caucus meeting and visiting representatives, and we’re so excited to share some meaningful soundbytes from the first-ever DeafBlind Caucus meeting here on Capitol Hill. More to come!

For now, enjoy a quick meeting recap as you get a glimpse into the meaningful work happening on the Hill today and how our representatives are showing support for the DeafBlind community.

🤟 is officially the newest member of the DeafBlind Caucus!Not only is he the newest member, but he also shared meaningf...
04/15/2026

🤟 is officially the newest member of the DeafBlind Caucus!

Not only is he the newest member, but he also shared meaningful words during the Caucus meeting from his own experience in school systems where students desired more access to communication.

Thank you, Representative Bell, for supporting the DeafBlind community!

The Inaugural DeafBlind Caucus Meeting marked a meaningful and long-overdue step forward. 👏 (Video recap coming soon!)We...
04/15/2026

The Inaugural DeafBlind Caucus Meeting marked a meaningful and long-overdue step forward. 👏 (Video recap coming soon!)

We at NFADB are deeply grateful to Caucus Sponsor , Co-sponsor , and their dedicated staff for their leadership and partnership in helping elevate the voices and needs of the DeafBlind community. This work matters not just in policy, but in the day-to-day lives of our families.

We’re just getting started! More to come as we share highlights from the next couple days at Mission On The Hill.

This is an important moment (and an exciting week) for the DeafBlind community across the United States.

We are overwhelmed with the outpouring of unity from across the country! Families, friends, and DeafBlind individuals ha...
04/12/2026

We are overwhelmed with the outpouring of unity from across the country! Families, friends, and DeafBlind individuals have donated to provide refreshments for the inaugural DeafBlind Caucus meeting next week. This collage will be displayed as a symbol of gratitude to the members for their leadership in ensuring the Deafblind community is supported on the Hill!

If you would like to be included, donate $10 via Venmo to or donate online at nfadb.org/donate. Then email a photo of yourself or your DeafBlind loved one to MissionPhoto2026@gmail.com.

Go to NFADB.org to learn more!
____

Alt text: A collage is displayed with numerous photographs of DeafBlind individuals and their families from across the country.

🚨 THIS IS THE MOMENT! WE INVITE YOU TO TAKE ACTION WITH US ON FRIDAY, APRIL 10. 🚨The Inaugural Bi-Partisan DeafBlind Cau...
04/10/2026

🚨 THIS IS THE MOMENT! WE INVITE YOU TO TAKE ACTION WITH US ON FRIDAY, APRIL 10. 🚨

The Inaugural Bi-Partisan DeafBlind Caucus Meeting will take place next week - and your Federal Representative (or a staff member) needs to be in that room!

📣 Call or email your U.S. Representative and tell them to attend.
This is about access. Education. Equity. Real lives.

👉 If you are a DeafBlind individual:
You are their constituent. They need to hear directly from, and learn directly about, the community they represent.

👉 If your child attends a school for the Deaf and/or Blind:
Your Representative serves this population. They have a responsibility to understand the needs of the community they represent. CONTACT THEM and ask them to show up.

👉 If you believe in accessibility:
Don’t scroll past this. Take 2 minutes. Send the email. Make the call.

On Friday, April 10, let's unite together to:

📬 Fill the inboxes.
📞 Light up the phone lines.
📢 Make all Representative offices aware and accountable to attend!

This is how change happens - when we show up together and ask to be heard!

THE TIME IS NOW.

Save the invitation pictured and attach it to your email,
or
Visit nfadb.org to download the invitation linked on the homepage.

If you do not know who your Federal Representative is, visit www.house.gov to look it up by your address!

04/03/2026

Invite your federal Representative to be a part of history!

Make sure they do not miss the first bi-partisan Congressional DeafBlind Caucus meeting! Invite your Representative or their staff to attend and learn more about this incredible community! If this video is any indication of what will be shared at the meeting, it's going to be something very special.

🗓 When: April 15 at 10:00 a.m. EST

📍Where: Cannon Building, Room 340

Tag, share this video, call or email your Federal Representative's office. Link in our bio for more details.

A huge thank you to the talented DeafBlind adults and Interveners at Touch Base: Center for the Deafblind in Texas for handcrafting these "thank you" gifts to the Founding Members of the DeafBlind Caucus. 🤟🏼💛

------

Alt text:

Video shows DeafBlind adults at Touch Base Center in Texas working with their community Interveners to handcraft wooden signs.

Yellow words overlay the images and say:

"Each one spelling 'I love you' in sign language.

Not just as a gift... but as a message.

A message about communication, connection, and access.

Each sign will hang in the office of a founding DeafBlind Caucus member in Congress...

A daily reminder of the community they now represent.

This is more than a meeting. This is the Deafblind community being seen and heard."

Address

Sands Point, NY

Telephone

+18002550411

Website

https://win.newmode.net/nationalfamilyassociationfordeafblind/fromisolationtoaccesssavewhatworksf

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