RSDCA

02/27/2026

CRPS is considered a form of dysautonomia by Dysautonomia International. There is also a link between CRPS and POTS (postural orthostatic tachycardia syndrome). POTS is a more common form of dysautonomia.

Do you have a service dog and a form a dysautonomia? If so, you are invited to participate in an online survey conducted by researchers at Lebanon Valley College. The purpose of this study is to survey people with dysautonomia who have service dogs about their experience. Completion of the online survey should take approximately 10 minutes.

**You must be age 18 and up to consent to take the survey. If you are under age 18, please have your parent/guardian complete the survey with you.**

Link to survey: https://lvc.qualtrics.com/jfe/form/SV_dnF2UxJ0hk21Y7s

Do you have a service dog and a form a dysautonomia? If so, you are invited to participate in an online survey conducted by researchers at Lebanon Valley College. The purpose of this study is to survey people with dysautonomia who have service dogs about their experience. Completion of the online survey should take approximately 10 minutes.

**You must be age 18 and up to consent to take the survey. If you are under age 18, please have your parent/guardian complete the survey with you.**

Link to survey: https://lvc.qualtrics.com/jfe/form/SV_dnF2UxJ0hk21Y7s

02/16/2026

In 2016 the CDC imposed new guidelines that recommended physicians utilize strict practices when prescribing opioids such as limiting dosages, drug testing, and opioid contracts. Ater tracking outcomes for six years, the financial impact to physician practices was noted to be significant and there were and continues to be negative consequences to the pain community.

By Pat Anson The CDC’s 2016 opioid prescribing guideline not only had disastrous consequences for many pain patients, but raised the cost of treating them in primary care practices, according to a new analysis. Researchers at the University of Wisconsin-Madison studied the budget impact of four di

12/25/2025

Merry Christmas to all our CRPS warriors community members and their caregivers, family members and friends! Remember to be kind to yourself today and in the next several days especially with the rain. The rain often effects many of us in the CRPS community! Enjoy your time with family and friends but know that it is okay to excuse yourself if you need to protect yourself and rest!

12/15/2025

We wish all our CRPS community members and supporters that celebrate Hanukkah, a Happy Hanukkah!

12/10/2025

SUPPORT GROUP:

For those in the Orange County area looking for an in-person CRPS support group for 2026, here is a schedule of dates for our upcoming meetings! Our next meeting will be on Tuesday, January 13th at 11:30 AM. Please RSVP prior to attending by texting (657) 333-5569 your first and last name!

**This group is intended for those living with CRPS and their caregivers/family members/friends! If you are a healthcare provider, attorney, or pain product representative please refrain from attending our meetings so as to respect the privacy of our members. You may send information to our group facilitator at CRPSsurvivorsOC@gmail.com.

11/27/2025

Have a wonderful day celebrating with your family and friends! Remember to be kind to yourself today and in the days following! You are doing the best you can and you’re doing a fabulous job!!! We’re beyond grateful to have each of you in our community!!

11/03/2025

Tomorrow, November 3rd is Color the World Orange Day! Remember to wear ORANGE to spread awareness about CRPS! Post pictures!

10/31/2025

👻🎃Happy Halloween!👻🎃
Mom’s & Dad’s —We see you! Sending extra “spoons” for ALL the standing, walking, parties, & cute photo ops! Enjoy it even if you only go one house, use a wheelchair/scooter/walker/cane, or just pass out candy! 💪

09/22/2025

One of our fellow California CRPS warriors, and past admins for RSDCA, Michele Rice, shared her spectacular and inspirational 25 year pain journey in a beautifully written blog and video for the US Pain Foundation in honor of her 25 year injury anniversary and Pain Awareness Month!

***Please take a FEW MINUTES to WATCH the VIDEO included in the LINK below!***

A powerful reflection on 25 years of living with chronic pain. A message of hope for anyone navigating life with invisible illness.

09/19/2025

September is PAIN AWARENESS MONTH!

On September 2, the movie, INVISIBLE released on Amazon Prime! One of the main characters, Heather, has CRPS and helps the other main character, CB, deal with the suffering of another invisible illness, addiction.

It costs $4.99 to rent the movie on Amazon Prime!

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) provided CRPS brochures that were used in one of the support group scenes in the movie!

It is rated 16+

https://www.instagram.com/reel/DONQAIqDtur/?igsh=NTc4MTIwNjQ2YQ==er