RSDCA

09/22/2025

One of our fellow California CRPS warriors, and past admins for RSDCA, Michele Rice, shared her spectacular and inspirational 25 year pain journey in a beautifully written blog and video for the US Pain Foundation in honor of her 25 year injury anniversary and Pain Awareness Month!

***Please take a FEW MINUTES to WATCH the VIDEO included in the LINK below!***

A powerful reflection on 25 years of living with chronic pain. A message of hope for anyone navigating life with invisible illness.

09/19/2025

September is PAIN AWARENESS MONTH!

On September 2, the movie, INVISIBLE released on Amazon Prime! One of the main characters, Heather, has CRPS and helps the other main character, CB, deal with the suffering of another invisible illness, addiction.

It costs $4.99 to rent the movie on Amazon Prime!

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) provided CRPS brochures that were used in one of the support group scenes in the movie!

It is rated 16+

https://www.instagram.com/reel/DONQAIqDtur/?igsh=NTc4MTIwNjQ2YQ==er

09/10/2025

Tomorrow at 10:00 AM PST, please take a moment of silence!

On (Sept. 10), join NAMI and CEO Dan Gillison for a national moment of silence at 1pm ET.

Together, we’ll honor lives lost to su***de, support those who are struggling, and remind each other that hope and connection are always possible.

💚 You are not alone.

09/01/2025

Interesting segment on CBS Morning News on 8/31/25, presented by Dr. Sanjay Gupta on CRPS, chronic pain, and brain surgery as a treatment.

Recent research into chronic pain, which afflicts millions of Americans, has led to a surprising source: the brain. "Sunday Morning" host Jane Pauley talks with Dr. Sanjay Gupta (a neurosurgeon and chief medical correspondent for CNN) about his new book, "It Doesn't Have to Hurt," and about the body...

07/28/2025

Our gathering last Wednesday night! Thank you to all who joined us and supported our wonderful cause! We appreciate each and everyone of you!!!!

07/23/2025

Come support Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) at Red Robin Gourmet Burgers from 11:00 AM to 10:00 PM today!!! Members of the Orange County CRPS Survivors & Caregivers Support Group will be there from 5 PM to 8 PM!

07/21/2025

Join us in “THREE DAYS” at the Red Robin Gourmet Burgers on Wednesday, 7/23 from 11 AM to 10 PM! 20% of all food sales will go to the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)! Let’s raise some awareness for CRPS and funds for a great cause! Please share with your friends and family! The Orange County CRPS Support Survivors and Caregivers Support Group will be there from 5:00 pm to 8:00 pm. This is a great time to come and mingle with others that have CRPS!

06/15/2025

Happy Father’s Day to ALL our CRPS Warriors, Caregivers and Supporters! We hope you ALL had an enjoyable day!

06/10/2025

This CRPS survey study only takes about 15 minutes to complete!

Our Resource Eric Phillips of International RSD Foundation still needs CRPS survey participants! Fill out the survey at s.surveyplanet.com/l5pfdpnr

Purpose: To enhance understanding of how CRPS impacts individuals and to identify effective/ineffective treatments in managing CRPS.

06/10/2025

Research participants are needed for an online questionnaire about “Childhood Experiences of People with EDS, CRPS, and/or POTS.” This study will be Phase 1 of a multi-phase, multi-year study: https://bit.ly/43AlPgG

If you are 18 or older, have at least one of these syndromes, live in the United States, and want to participate, please participate. Feel free to share this study as well.

This project has been approved by the Oregon State University Institutional Review Board, Project # HE-2025-1530.

For any questions, please email Dr. Nina Slota at nina.slota@oregonstate.edu.

Research participants are needed for an online questionnaire about “Childhood Experiences of People with EDS, CRPS, and/or POTS.” This study will be Phase 1 of a multi-phase, multi-year study: https://oregonstate.qualtrics.com/jfe/form/SV_e3ZgrrS0lccOLbw

If you are 18 or older, have at least one of these syndromes, live in the United States, and want to participate, please participate. Feel free to share this study as well.

This project has been approved by the Oregon State University Institutional Review Board, Project # HE-2025-1530.

For any questions, please email Dr. Nina Slota at nina.slota@oregonstate.edu.

06/08/2025

We want to acknowledge and thank Vanessa Moran and her team, “Pablo on Fire” for raising over $500 for our RSDCA We’re on Fire SoCal Friendship Gathering and Stroll which benefited the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)!