RSDCA

15/06/2025

Happy Father’s Day to ALL our CRPS Warriors, Caregivers and Supporters! We hope you ALL had an enjoyable day!

10/06/2025

This CRPS survey study only takes about 15 minutes to complete!

Our Resource Eric Phillips of International RSD Foundation still needs CRPS survey participants! Fill out the survey at s.surveyplanet.com/l5pfdpnr

Purpose: To enhance understanding of how CRPS impacts individuals and to identify effective/ineffective treatments in managing CRPS.

10/06/2025

Research participants are needed for an online questionnaire about “Childhood Experiences of People with EDS, CRPS, and/or POTS.” This study will be Phase 1 of a multi-phase, multi-year study: https://bit.ly/43AlPgG

If you are 18 or older, have at least one of these syndromes, live in the United States, and want to participate, please participate. Feel free to share this study as well.

This project has been approved by the Oregon State University Institutional Review Board, Project # HE-2025-1530.

For any questions, please email Dr. Nina Slota at nina.slota@oregonstate.edu.

Research participants are needed for an online questionnaire about “Childhood Experiences of People with EDS, CRPS, and/or POTS.” This study will be Phase 1 of a multi-phase, multi-year study: https://oregonstate.qualtrics.com/jfe/form/SV_e3ZgrrS0lccOLbw

If you are 18 or older, have at least one of these syndromes, live in the United States, and want to participate, please participate. Feel free to share this study as well.

This project has been approved by the Oregon State University Institutional Review Board, Project # HE-2025-1530.

For any questions, please email Dr. Nina Slota at nina.slota@oregonstate.edu.

08/06/2025

We want to acknowledge and thank Vanessa Moran and her team, “Pablo on Fire” for raising over $500 for our RSDCA We’re on Fire SoCal Friendship Gathering and Stroll which benefited the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)!

08/06/2025

What a wonderful day the RSDCA Community had yesterday particating in Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)Virtual Walk! We raised over $3000 for the non-profit RSDSA!!! Our hearts were filled with so much joy seeing our returning community members and so many new faces at both the NorCal and SoCal in-person walks!!! A HUGE thank you to everyone that helped us make yesterday such a success! We could not do it without your unwavering support!

06/06/2025

Our RSDCA SoCal Walk and Gathering is TOMORROW at 11:00 AM at Veterans Park (4554 Avenida Granada) in Cypress! ‼️Walk up registration will be available at 10:30 AM. 🪑🥪🥗 Please bring your own lunch and lawn chair! We will have some raffles as well! $15 registration fee benefits the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)! Come meet other CRPS warriors, their caregivers and support systems! You won’t regret it! Questions email CRPSweRonFire@gmail.com

https://secure.qgiv.com/event/socalcrps2025/

To join the NorCal group in Sacramento at McKinley Park (601 Alhambra Blvd) at 10:00 AM register using the link below:

https://secure.qgiv.com/event/6thvirtualcrpswalk

Let’s show some support tomorrow for RSDSA and have a great time with one another!

Attend the CRPS/RSD Friendship Gathering & Stroll on Saturday, June 7th to benefit RSDSA in north Orange County, hosted by the Orange County CRPS Survivors and Caregivers Support Group!

05/06/2025

Consider making a donation to the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) and supporting the efforts of those walking in the RSDCA We’re on Fire —SoCal Friendship Gathering and Stroll on Saturday! We’ve raised $2,727 thus far! Let’s try to get to $3,500!!

✅ Scroll down to PLEASE DONATE NOW 💚

https://secure.qgiv.com/event/socalcrps2025/

01/06/2025

We are so fortunate to have (2) hosted in-person CRPS walks / social gatherings in California once again this year!

Come join us in-person and meet fellow warriors and their friends and family! We promise you, you will not regret the experience!

See below for HOW TO REGISTER FOR EACH WALK!

REGISTERATION OPTIONS EXTENDED!

Our Admin Jo Hewitt and her support group are hosting The Northern California CRPS Support Group Walk which will take place at McKinley Park (601 Alhambra Blvd in Sacramento, California). The walk begins at 10:00 AM. Participants register through RSDSA’s virtual walk link below and meet in Sacramento at McKinley Park:

https://secure.qgiv.com/event/6thvirtualcrpswalk

Our Admin Kristie McCurdy and member Rose Temblador are hosting The CRPS/RSD SoCal Friendship Gathering & Stroll which will take place at Veterans Park (4554 Avenida Granada in Cypress, California). Check-in/pre-registration begins at 10:30 AM and the walk begins at 11:00 AM. Lunch will be provided. Bring lawn chairs! LOWER REGISTRATION FEE AVAILABLE! Participants register through SoCal’s registration link:

https://secure.qgiv.com/event/socalcrps2025/

FYI: May 19th, was the last day to register for both walks and “guarantee” a t-shirt and medal by walk day! Remember this is a fundraiser and the funds support the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)!

Attend the CRPS/RSD Friendship Gathering & Stroll on Saturday, June 7th to benefit RSDSA in north Orange County, hosted by the Orange County CRPS Survivors and Caregivers Support Group!

21/05/2025

We are so fortunate to have (2) hosted in-person walks in California once again this year!

Come join us in-person and meet fellow warriors and their friends and family! We promise you, you will not regret the experience!

See below for HOW TO REGISTER FOR EACH WALK!

REGISTERATION OPTIONS EXTENDED!

Our Admin Jo Hewitt and her support group are hosting The Northern California CRPS Support Group Walk which will take place at McKinley Park (601 Alhambra Blvd in Sacramento, California). The walk begins at 10:00 AM. Participants register through RSDSA’s virtual walk link below and meet in Sacramento at McKinley Park:

https://secure.qgiv.com/event/6thvirtualcrpswalk

Our Admin Kristie McCurdy and member Rose Temblador are hosting The CRPS/RSD SoCal Friendship Gathering & Stroll which will take place at Veterans Park (4554 Avenida Granada in Cypress, California). Check-in/pre-registration begins at 10:30 AM and the walk begins at 11:00 AM. Lunch will be provided. Bring lawn chairs! LOWER REGISTRATION FEE AVAILABLE! Participants register through SoCal’s registration link:

https://secure.qgiv.com/event/socalcrps2025/

FYI: May 19th, was the last day to register for both walks and “guarantee” a t-shirt and medal by walk day BUT you can still register they just may arrive after June 7th! Remember this is a fundraiser and the funds support the non-profit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)!

Attend the CRPS/RSD Friendship Gathering & Stroll on Saturday, June 7th to benefit RSDSA in north Orange County, hosted by the Orange County CRPS Survivors and Caregivers Support Group!

21/05/2025

Raising CRPS Awareness & Funds Through Events Members of the RSDSA community are always organizing events across the world! These events create greater awareness of this little-known syndrome, and raise the funds necessary to help RSDSA support research and provide patient assistance. Those who part...

19/05/2025

🛑 REGISTER — LAST DAY — SQUAD👕!

Saturday, June 7th

RSDCA’s We’re On Fire! 🔥
CRPS / RSD Friendship Gathering & Stroll

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) walk and social gathering fundraiser is hosted by the Orange County CRPS Survivors & Caregivers Support Group!

Registration / shirt pick-up: 10:30 - 11:00 AM

Link to Registration:

https://secure.qgiv.com/event/socalcrps2025/

Stroll Begins: 11:00 AM

Lunch immediately following the walk

Group activities & socializing after lunch

Registration: $35 for adults | $22 for children 12 and under

Registration includes a sandwich, bag of chips and bottle of water.

Location: Veterans Park, 4554 Avenida Granada, Cypress, CA 90630

Bring: Lawn chairs, blankets, canopies (no larger than 10x10), if desired potlock items to share, comfortable walking shoes & any walking aides

**Lunch will be set-up on the grass

**Walkway is 0.5 miles, cemented and suited for canes, walkers, wheelchairs and scooters

‼️Register by May 19th in order to get an RSDSA Support Squad 👕 at the event‼️

Attend the CRPS/RSD Friendship Gathering & Stroll on Saturday, June 7th to benefit RSDSA in north Orange County, hosted by the Orange County CRPS Survivors and Caregivers Support Group!

05/01/2024

Pain Reprocessing Therapy (PRT) teaches pain patients to not fear their pain. Somatic tracking guides patients as they learn to move their bodies without the fear of pain. You learn to track your pain without responding to it through breathing exercises, body scans, meditation, muscle relaxation techniques, etc. Their pain is no longer perceived as harmful, a threat or as damage to the body. The goal is to eventually lower the patient’s pain. The concept of PRT is centered around Neuroplasticity.

Research Study:

https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2784694

https://youtu.be/2T2gfba88I4?si=YyZMP5ZxCROo2Dey

Alan Gordon (founder of the Pain Psychology Center and author of The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain) stops ...