Spina Bifida Association of New York State

Spina Bifida Association of New York State Our mission is to build a better and brighter future for all those impacted by Spina Bifida.

✨ Disability Pride Month is about celebrating strength, resilience, and the freedom to live fully — and what better way ...
07/22/2025

✨ Disability Pride Month is about celebrating strength, resilience, and the freedom to live fully — and what better way to honor that spirit than with a chance to win an adventure? 🎢

Our Six Flags Disability Pride Raffle is still open, but time is running out! For just $5, you can enter to win two one-day tickets to Six Flags Great Escape in Lake George for the 2025 season — a place where everyone deserves to experience joy, thrills, and unforgettable moments without limits.

This raffle is more than a prize. It’s a way to amplify Disability Pride by supporting a community that fights for access, inclusion, and celebration every day. When you buy a ticket, you’re helping us continue that work.

🎟️ $5 per ticket
📲 Pay via Venmo or PayPal: https://www.paypal.com/donate/hosted_button_id=MD9QPM7SVEJ68
💳 Cash or card accepted in person (we’ll be in Syracuse from July 25 through July 27)
⏳ Ticket sales close Sunday, July 27
🏆 Winner announced Monday, July 28

⚾ Save the Date: Spina Bifida Day at Yankee Stadium! 🗽Join SBANYS for a day of baseball, community, and Spina Bifida pri...
07/22/2025

⚾ Save the Date: Spina Bifida Day at Yankee Stadium! 🗽

Join SBANYS for a day of baseball, community, and Spina Bifida pride as the Yankees take on Toronto on Saturday, September 6th at 1:05 PM!

🎟 $60 per ticket – Terrace Level (Sections 322–324)
🧢 Add a co-branded Yankees & SBANYS hat for just $15 – Total: $75

Bring your friends, bring your family, and show your Spina Bifida pride in the Bronx!
📍Tickets are on sale now! https://www.paypal.com/ncp/payment/TSUMQVGDWR2CQ

The clock is ticking. Just 5 days until the Empowering Minds and Enriching Futures conference in Syracuse — and only 30 ...
07/21/2025

The clock is ticking. Just 5 days until the Empowering Minds and Enriching Futures conference in Syracuse — and only 30 seats remain.

If you’re living with Spina Bifida, caring for a child or loved one, or supporting others as a professional, this day is created with you in mind. It’s a chance to connect, to learn, and to feel truly understood by a community that cares.

Together, we’ll share helpful tools, trusted advice, and gentle encouragement — everything you need to nurture your mental wellness alongside the unique challenges of Spina Bifida.

There’s still time to save your seat — but spots are going fast. We want everyone who needs this to be there.

📍 DoubleTree by Hilton Hotel Syracuse
🗓️ Saturday, July 26

🎟️ Don’t miss out—register today to guarantee your place: https://sbanys.org/event/sbanys-conference/

🎢 Ready for an adventure? The Six Flags Disability Pride Raffle is in full swing — and we’re out in Syracuse this weeken...
07/20/2025

🎢 Ready for an adventure? The Six Flags Disability Pride Raffle is in full swing — and we’re out in Syracuse this weekend selling tickets in person!

For just $5, you could win two one-day admission tickets to Six Flags Great Escape for the 2025 season. Imagine spending a whole day riding thrilling roller coasters, enjoying family-friendly attractions, and making memories that last a lifetime.

But this raffle is about more than just fun — it’s a way to celebrate 35 years of the ADA and show support for the disability community. Every ticket sold helps fund programs that empower and uplift people with Spina Bifida.

Can’t make it to Syracuse this weekend? No worries! You can easily purchase your tickets online through Venmo or PayPal — link: https://www.paypal.com/donate/?hosted_button_id=MD9QPM7SVEJ68

Hurry, the raffle closes on July 27, and the winner will be announced on July 28. Don’t miss your chance to win this incredible prize and support a great cause!

Missed appointments. Delayed care. Lost follow-ups. For many people with disabilities, these aren’t isolated incidents —...
07/20/2025

Missed appointments. Delayed care. Lost follow-ups. For many people with disabilities, these aren’t isolated incidents — they’re the reality of navigating a healthcare system that assumes transportation won’t be an issue. But when paratransit is late, the van doesn’t show up, or there’s no accessible route, even routine care becomes complicated — or impossible.

Transportation directly affects healthcare access. No one should lose out on treatment, therapy, or basic care because a ride fell through.

At the Transportation Summit, we’ll talk about how to close that gap — and make sure systems designed to support health aren’t blocked by transportation failures.

Be part of the conversation. Be part of the solution.

🗓️ Transportation Summit | Sunday, July 27
📍 DoubleTree by Hilton Hotel | Syracuse, NY
💻 Attend in person or online — it’s hybrid
📝 Register now + fill out the short pre-event survey: https://sbanys.org/event/transportation-summit/

Thank you to our partners ARISE Adaptive Design, Rochester Accessible Adventures, MAS and Upstate Medical Center!

Headed to Lake George on August 17? Here's what to expect.Our free adaptive sailing day with SBANYS and Y-Knot isn’t jus...
07/19/2025

Headed to Lake George on August 17? Here's what to expect.

Our free adaptive sailing day with SBANYS and Y-Knot isn’t just a few hours on the water — it’s a full afternoon built to make sailing safe, welcoming, and accessible.

📍 YMCA Camp Chingachgook – 1872 Pilot K**b Rd, Kattskill Bay, NY
🕚 11:00 AM to 4:00 PM
🍽️ Lunch included

🛶 Event Schedule:
11:30 AM – Arrival & check-in, lunch provided by Camp, and chalk talk (safety briefing + what to expect)
12:00 PM – Volunteers assist sailors into boats
3:00 PM – Return to dock and wrap up sailing
3:30 PM – De-rigging and clean-up

🧳 What to Bring:
– Warm layers (windbreaker or fleece)
– Raincoat
– Towel
– Sunscreen
– Sunglasses
– Hat with a brim
– Reusable water bottle (Camp will provide water stations)
– Your own lifejacket (optional — Camp will have PFDs available, but your own must pass inspection)

📌 Space is limited — please register in advance if you haven’t already: https://sbanys.org/event/adaptive-group-sailing/

Let’s make sure you're ready for a great day on the water!

July is Park and Recreation Month, a time to recognize the importance of public spaces that are welcoming, inclusive, an...
07/19/2025

July is Park and Recreation Month, a time to recognize the importance of public spaces that are welcoming, inclusive, and built for everyone. It’s a reminder that recreation should reflect the needs of the whole community — and that includes people with disabilities.

On July 26, On the Trails brings that vision to life. We’re inviting the disability community to come together at Syracuse’s Inner Harbor for a relaxed, inclusive morning on the Erie Canal trail. Whether you walk, roll, or bike, you’re welcome to move your way.

Start the day with a breakfast picnic by the water. Meet local vendors who offer real resources for health, wellness, and disability support. Celebrate the 35th Anniversary of the ADA with a community that shows up for each other.

This event was designed with intention — not just to be accessible, but to feel like it belongs to all of us.

🎽 Free event t-shirts for the first 90 attendees
🧺 Casual breakfast picnic
🛤️ Flat, accessible trail for walking, rolling, or biking
🛠️ Local vendors + community resources
📍 Syracuse Inner Harbor | 🗓️ Friday, July 26

🎟️ Free to attend — register now: https://sbanys.org/event/on-the-trails/

A big thank you to our partners who help make this event possible:
Central New York Adaptive Sports, Syracuse Parks and Rec, The Erie Canalway, ARISE Adaptive Design, Rochester Accessible Recreation, and The Joe Family Foundation for Disability Advocacy Inc.

👦👧 When we talk about mental wellness, it’s not just for adults.At Empowering Minds and Enriching Futures: Mental Wellne...
07/18/2025

👦👧 When we talk about mental wellness, it’s not just for adults.

At Empowering Minds and Enriching Futures: Mental Wellness and Disability, we’re creating space for the entire family to show up, recharge, and connect—including our youngest attendees. That’s where Kids Camp comes in: a dedicated area for children 12 and under filled with creativity, play, and wellness-focused activities designed just for them.

With games, music therapy, art projects, and therapy dog visits, Kids Camp makes sure your child is supported, engaged, and cared for while you attend sessions and connect with other parents and caregivers.

Parents remain responsible for toileting and supervision as needed, but we’ve got the rest covered with meaningful and fun programming rooted in wellness.

📍 DoubleTree by Hilton Hotel Syracuse
🗓️ July 26
🕰1PM-5 PM

There are only 30 spots left—secure yours today and bring the whole family along

Register Today!: https://sbanys.org/event/sbanys-conference/

🎡 The summer fun is heating up — and so is our Six Flags Disability Pride Raffle!We’re giving you the chance to win two ...
07/17/2025

🎡 The summer fun is heating up — and so is our Six Flags Disability Pride Raffle!

We’re giving you the chance to win two tickets to Six Flags Great Escape in Lake George for any regular day during the 2025 season. From thrill rides to relaxing attractions, there’s something for everyone — and it could all be yours for just $5.

But this raffle isn’t only about rollercoasters — it’s about recognizing 35 years of the ADA and celebrating Disability Pride. Every $5 raffle ticket helps us create more accessible events, raise awareness, and build stronger communities.

Here’s how you can be part of it:
🎟️ $5 per ticket
📲 Pay through Venmo or PayPal: https://www.paypal.com/donate/?hosted_button_id=MD9QPM7SVEJ68
💳 Cash or card accepted in person (we’ll be in Syracuse from July 25 through July 27)
📅 Deadline: Sunday, July 27
🎉 Winner announced Monday, July 28

Support a great cause. Spread the word. And maybe, just maybe, enjoy a wild ride this summer! 🎢

Transportation decisions are too often made without the people most affected in the room. People with disabilities know ...
07/17/2025

Transportation decisions are too often made without the people most affected in the room. People with disabilities know exactly what’s broken — and what needs to change. But their voices are routinely left out of policy, planning, and design conversations that shape how we move.

That’s why the Transportation Summit is different. It centers disabled New Yorkers, their families, caregivers, and advocates — and brings them into direct dialogue with policymakers, providers, and system leaders. Because representation isn’t a nice-to-have — it’s how real change begins.

If you’ve felt unheard or overlooked when it comes to transportation, the Transportation Summit is for you.

🗓️ Transportation Summit | Sunday, July 27
📍 DoubleTree by Hilton Hotel | Syracuse, NY
💻 Attend in person or online — fully hybrid
📝 Register today + take the short pre-event survey: https://sbanys.org/event/transportation-summit/

Thank you to our partners ARISE Adaptive Design, Rochester Accessible Adventures, MAS, and Upstate Medical Center!

🚨 Now Recruiting: Walk-N-Roll Ambassadors 🚨Want to do more than just show up to Walk-N-Roll? Here’s your chance to lead....
07/16/2025

🚨 Now Recruiting: Walk-N-Roll Ambassadors 🚨
Want to do more than just show up to Walk-N-Roll? Here’s your chance to lead.

We’re looking for people who care about the Spina Bifida community and want to help us grow this movement — online and in real life. As an Ambassador, you’ll help spread the word, get more people involved, and take the lead on fundraising.

This is your chance to:
✔️ Share your story
✔️ Grow the community
✔️ Help make this year’s Walk-N-Rolls stronger than ever

🗓️ Program runs August–September
💻 Most of the work is virtual
🧒 Minors welcome (with parent/guardian OK)
📅 Deadline to apply: August 1, 2025

Apply now:
🔹 Syracuse – https://charity.pledgeit.org/c/BXODhxuIz8/pages/ambassadors
🔹 Mid-Hudson – https://charity.pledgeit.org/c/XJXqafsgfN/pages/ambassadors

Questions? Reach out:
📞 518-399-9151 | 📧 julia.duff@sbanys.org

💛 Presented by Byram Healthcare

With just ten days to go, this is the moment to ask yourself: how will Empowering Minds and Enriching Futures: Mental We...
07/16/2025

With just ten days to go, this is the moment to ask yourself: how will Empowering Minds and Enriching Futures: Mental Wellness and Disability make a difference in your life?

This isn’t a passive event—it’s an active experience designed to empower every attendee. Picture yourself gathering practical tools from trusted professionals, soaking up real-life perspectives, and leaving with renewed confidence. Caregivers, individuals with Spina Bifida, and allies alike will discover tangible strategies for stress management, medication safety, emotional wellbeing, and more!

This is your chance to invest in empowerment—before the day slips away.

📍 DoubleTree by Hilton Hotel Syracuse
🗓️ July 26
🕰1PM-5 PM
🎯 Only 30 seats remain—don’t wait!
Register Today!: https://sbanys.org/event/sbanys-conference/

Address

123 Saratoga Road
Scotia, NY
12302

Telephone

+15183999151

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