01/12/2022
From Chelsey Tuesday 1/11:
Well, Lincoln is officially back in the OR. It’s sad when we now know the surgical nurses by name and they know us. Ok, so right before we got called to take Lincoln back, Dr. Healy came by to chat with us. He even drew us pictures. He explained the importance of getting it done right away. Long story short, the fistula is getting worse since it wasn’t coiled all the way last time. It’s causing fluid to fill up faster, which is even putting pressure on his lungs. The fistula messes with the blood flow inside the liver and the overall health of the liver. He said that it needs to get done because Lincoln responded better to the Kasai than most. His labs in the beginning were so great. He hopes in getting all of it we can save this liver for quite some time. He truly wants to give Lincoln's body a break and is hoping this will be the last thing for him.
He said he will be present in the room and encourage them to get it all. By encourage I think he means force.
This morning we were informed that yesterdays ultrasound revealed a blood clot in his leg. This is from the last surgery. They are discussing what plan will be best when it comes to the blood clot, Dr. Healy doesn't seem to think it's a bad one. He believes it should just clear up. Especially since he will need to be on heparin after the surgery anyway. Hematology met with us and said he may need to start injections after surgery. That's still in the air.
Dr. Reise, the one who did the embolization last time, came in on his day off to do it again today. He wanted to see it through which makes us feel a lot better since he's obviously familiar with what's going on. Like last time we will go up to ICU afterwards and he will remain sedated and on the vent.
He really does have an amazing team looking out for him and we are trying to take peace knowing that. My arms definitely ache right now, and we can't wait until he's back with us. Please continue to pray that all goes well today. 💚
https://gofund.me/302ddf74
