04/23/2026
In Wisconsin the Medicaid Waiver programs of Family Care and IRIS can fund payments to family and other caregivers for people with disabilities who don’t live in institutions. This includes paying parents or other family members to provide care for their loved one in their home. The cuts to the community based waivers (Family Care and IRIS) that are being planned by the current Federal Government would affect who, where, and how a disabled person receives the help they need. If the parent who is getting paid to provide care in their family home, who will provide the necessary caregiver tasks? Can the family survive without the income from caregiver? If not and the prior family caregivers get jobs outside of the home, who will provide the care the family member needs? Will there be increased incidents of neglect or abuse because there is no caregiver? Will the caregiver continue to provide support to their loved one without payment, how will bills be paid? Is there enough monthly income to pay rent, mortgage, insurance, food and other financial commitments or will the family be evicted, or have sufficient food to feed the family or will they go hungry? When family caregivers have to quit the jobs in order to provide caregiving, will those former employers be able to carry on with a reduced workforce? And for the person with disabilities who cannot stay at home safely without the necessary caregivers, where will they live?
Disability advocates are calling out top federal health officials for suggesting that Medicaid's home and community-based services program pays for assistance that should be provided by families for free.