Bleeding Disorder Foundation of Washington

Bleeding Disorder Foundation of Washington The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

Thinking About Camp I-Vy? Let’s Talk! 🌲We know families have questions about summer camp—and we’re here to help! From sa...
04/09/2026

Thinking About Camp I-Vy? Let’s Talk! 🌲
We know families have questions about summer camp—and we’re here to help! From safety and medical care to making friends and feeling confident, this is your chance to get all your questions answered.
Join us for a Camp I-Vy Pizza + Info Session where you can:
✨ Ask questions
✨ Hear from past campers & families
✨ Connect with medical staff
✨ Help your child feel excited and ready for camp

📅 April 26, 2026
⏰ 1:00 PM to 3:00 PM
📍 Round Table Pizza – Renton

💻 Can’t attend in person? Join us on Zoom!
🍕 We’ll even send a pizza to your home

Let’s make camp feel safe, fun, and exciting 💙

📩 RSVP required — https://forms.gle/5SmhzggnXrqHBrSr8
OR www.bdfwa.org/upcoming-events

03/30/2026

There’s still time! 💙

Registration for Family Camp closes Sunday, April 5th.

Come enjoy a weekend filled with fun, connection, and meaningful conversations with other families who understand.

Designed for families with children ages 0–10 with a diagnosed bleeding disorder.

Register:
https://forms.gle/FCSV7HsoC4A6s97W9
or on our website at
www.bdfwa.org/upcoming-events

The Bleeding Disorder Foundation of Washington is excited to share that all of our current events through September are ...
03/11/2026

The Bleeding Disorder Foundation of Washington is excited to share that all of our current events through September are now posted on our website and open for RSVP!
We have some wonderful opportunities planned for our community to learn, connect, and spend time together. Be sure to reserve your spot for upcoming events including:
🌲 Family Camp - Bellevue, April 18th-19th
⚾ Spring Education Day - June 20th followed by a Seattle Mariner's Game
🎢 Wild Waves Community Day - Federal Way, August 29th
✈️ Fall Education Day - September 27th at the Museum of Flight

Visit our website to view event details and RSVP early so we can plan accordingly for tickets, meals, and activities.

We can’t wait to gather together, build connections, and support one another throughout the year.

www.bdfwa.org/upcoming-events

REGISTRATION IS NOW LIVE FOR CAMP I-VY 2026! We are so excited to welcome campers back for another unforgettable summer!...
02/19/2026

REGISTRATION IS NOW LIVE FOR CAMP I-VY 2026!

We are so excited to welcome campers back for another unforgettable summer!

📅 July 28–31, 2026
📍 Camp Huston | Gold Bar, WA
💙 Free for eligible campers

Sign Up Today!

📝 Camper Application (Ages 7–15):
https://pci.jotform.com/form/260355155068053

🌟 CIT Application (Ages 16–17):
https://form.jotform.com/260435584997170

Get ready for friendships, outdoor adventures, and a week surrounded by others who understand life with a bleeding disorder.

We can’t wait to see you at Camp I-VY! 🌲☀️💙

✨ You’re Invited to BDFW Family Camp 2026! ✨We’re excited to bring families together for a fun-filled, connection-packed...
02/03/2026

✨ You’re Invited to BDFW Family Camp 2026! ✨

We’re excited to bring families together for a fun-filled, connection-packed weekend at Family Camp 2026! 💙

RSVP at www.bdfwa.org/upcoming-events or https://forms.gle/fghfp3qC7j3djL1bA

📅 Saturday, April 18 | Family Fun & Connection
📍 Hilton Garden Inn – Downtown Bellevue
🕒 3:00–5:00 PM
Hotel check-in + pool time with other BDFW families 💦
🍽️ 6:00–8:00 PM
Dinner together in the Cascade Ballroom
💬 Parent Discussion + Kids’ Pajama Party

Parents connect with bleeding disorder medical providers while kids enjoy a movie, crafts, and fun with our amazing volunteers 🎨🎬

📅 Sunday, April 19 | Museum Morning Adventure
🕘 9:00–11:00 AM
📍 KidsQuest Children’s Museum (reserved just for our group!)
✨ Hands-on slime activity
✨ Full museum access
✨ Play, learn, and explore together

👨‍👩‍👧‍👦 Who is Family Camp for?
Families with a child ages 0–10 who has a diagnosed bleeding disorder (registration confirmed with your child’s medical team).

📩 After you RSVP:
✔️ We’ll follow up with next steps
✔️ Full agenda + confirmation sent the week of the event
✔️ Everything you need to prepare for the weekend

Questions? Email us at general@bdfwa.org

We can’t wait to spend this special weekend with your family—full of fun, learning, and meaningful connections 💙

Our first event of the year—Winter Education Day—was a success! Despite an unexpected power outage at our original locat...
02/03/2026

Our first event of the year—Winter Education Day—was a success! Despite an unexpected power outage at our original location, we were able to pivot and still come together as a community before the Thunderbird hockey game. As a bonus, a beautiful rainbow appeared during the event, making the moment even more special.

Thank you to everyone who joined us and for your flexibility—we truly appreciate it.

We can’t wait to see you next at Family Camp and Spring Education Day!

Be sure to visit our Upcoming Events page, www.bdfwa.org/upcoming-events to RSVP.

You’re Invited! Community Lunch + Learning + FUN! The Bleeding Disorder Foundation of Washington (BDFW) is excited to in...
01/28/2026

You’re Invited! Community Lunch + Learning + FUN!

The Bleeding Disorder Foundation of Washington (BDFW) is excited to invite you to join Octapharma and CarePartners for a lunchtime event you won’t want to miss!

Join us for a FREE lunch, a presentation from Physical Therapist Michael Zolotnitsky, and plenty of time to play and connect at Dave & Buster’s!
This is a great opportunity to:
✨ Learn from a healthcare professional
✨ Connect with others in the bleeding disorders community
✨ Enjoy fun activities for all ages

Event Details
Saturday, March 7, 2026
12:00 PM – 2:00 PM
Dave & Buster’s
1101 Outlet Collection Way
Auburn, WA 98001

How to attend:
RSVP at the link below. After you RSVP, you’re all set! Just arrive at Dave & Buster’s and let the hostess know you’re there for the Octapharma / CarePartners event, and they’ll point you in the right direction.

https://forms.gle/Wm1xD9oTDtc5WjNE9

Questions? Email us at general@bdfwa.org

We can’t wait to see you there for food, fun, and community!

We’re planning another incredible summer and want to make sure you have the chance to be part of the crew. Registration ...
01/26/2026

We’re planning another incredible summer and want to make sure you have the chance to be part of the crew. Registration will be opening soon!

To help us prepare and to receive the registration link as soon as it's live, please fill out the form below or on our website at www.bdfwa.org.

https://forms.gle/uh6Mb1kX7cNgJbw26

🏒 Education + Community + Hockey! 🏒Join the Bleeding Disorder Foundation of Washington for an afternoon of learning, con...
12/22/2025

🏒 Education + Community + Hockey! 🏒

Join the Bleeding Disorder Foundation of Washington for an afternoon of learning, connection, and community support—followed by a fun night cheering on the Seattle Thunderbirds as they take on the Penticton Vees!

📅 Sunday, February 1st
🕝 2:30 PM – Education & booth time
📍 Kent Library (212 2nd Ave N, Kent, WA)
⏰ 5:05 PM – Hockey game at the ShoWare Center

Enjoy:
✔️ An educational talk from a The Washington Center for Bleeding Disorders hematologist
✔️ Booth time with Industry
✔️ Community connection
✔️ Thunderbirds hockey tickets

⚠️ RSVPs are required to receive hockey tickets.
Please RSVP by January 22nd.

https://forms.gle/n2DUYY8ygjDYh1rV6

Tickets are available to individuals with a diagnosed bleeding disorder and their direct household members/caregivers.

Questions about inviting someone? Email us at general@bdfwa.org.

We can’t wait to see you there! ❄️

🩺 Understanding Your Health Insurance OptionsPresented by GenentechNavigating health insurance can feel overwhelming—but...
11/10/2025

🩺 Understanding Your Health Insurance Options
Presented by Genentech
Navigating health insurance can feel overwhelming—but it doesn’t have to be! Join us for a free Zoom session on November 19, 2025, and learn how to confidently choose the right plan for you and your family.
✅ Learn the basics of health insurance
✅ Understand co-pays, accumulators & funding programs
✅ Discover when and how you can change plans
✅ Stay up to date on recent law changes

📅 Date: November 19, 2025
💻 Format: Zoom Webinar
💲 Cost: Free
👉 Register today and take the guesswork out of your health insurance decisions

https://forms.gle/xozr5fpJfoxRG1R6A

The Bleeding Disorder Foundation of Washington is thrilled to welcome campers to another unforgettable summer of fun, fr...
06/13/2025

The Bleeding Disorder Foundation of Washington is thrilled to welcome campers to another unforgettable summer of fun, friendship, and empowerment at Camp I-Vy 2025!

This year’s theme: Bleeding Disorder Superheroes — Campers will learn to harness their independence and confidence in managing their condition, all while having a blast!

When: July 28 – August 1, 2025
Who Can Attend: Kids ages 7–15 with a diagnosed bleeding disorder or who are carriers.
Counselors in Training (CITs): Youth ages 16–17 with a bleeding disorder/carrier status are encouraged to apply!

🔗 Camper Registration: https://forms.gle/ANV7PB2WzZXYE8ZaA
🔗 Volunteer/CIT Registration: https://forms.gle/67628pt2hVbCwf567

Learn more at https://bdfwa.squarespace.com/camp and register soon!

💬 Have questions? Reach out to the BDFW anytime at general@bdfwa.org!

The BDFW is offering the opportunity for bleeding disorders patients to attend a Mariners baseball game on Sunday June 1...
05/12/2025

The BDFW is offering the opportunity for bleeding disorders patients to attend a Mariners baseball game on Sunday June 1st! Join us at 10:30am for booth time at the Northgate Library before heading to T-Mobile Park to cheer on the Mariners.

This event will be followed by a virtual education session on June 6th in partnership with WACBD's Dr. Kruse-Jarres, who will be speaking about new treatments available for Bleeding Disorders patients.

You won't want to miss out on this opportunity for community connection and education!

Learn more and register today: https://forms.gle/cAY6ZxvngLBtRNc16

Address

20126 Ballinger Way NE #165
Shoreline, WA
98155

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Our Story

The Bleeding Disorder Foundation of Washington serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

We serve the 70,000 bleeding disorder patients in Washington State. We do this by empowering young families at I-Vy Jr. programs, encouraging kids to be independent at Camp I-Vy, launching teens into life through I-Vy Leaders, bolstering community through Blood Brothers, and advocating for access to medication and affordable care. By serving our community with these goals in mind, the BDFW believes that each bleeding disorder patient in Washington has the chance to thrive and live their best lives.

Our History

The Bleeding Disorder Foundation of Washington began in the 1970’s when parents gathered together at Camp I-Vy for their children. Over the years the Foundation changed its name and took on unimaginable challenges, resulting from tainted blood products in the 1980’s. The result was tremendous devastation for the bleeding disorder community. Almost 70% of the community contracted HIV and, sadly, over half of them passed away.