03/13/2026
A doctor's appointment shouldn't feel like defending a thesis...and the relief of finally putting down this weight often brings tears 🤧
It. Is one of the many unexpected things I could never have predicted before working with the EDS and invisible illness community.
It is both heartbreaking and a profound honor to hold space or hold the patient themself (depending on their preference and my shoulder) and just let them feel those guardrails soften.
Of you have invisible illness, or even a visible condition, what do YOU wish your doctor would say?
What have they said that worked?
If you are a clinician, share any insights as well!