Answers for Annakate - Annakates fight

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Answers for Annakate - Annakates fight Follow along with us for updates on Annakate Lores and her battle against a rare blood disorder

19/08/2025

Please pray for Annakate. Please heal her. We want to watch her grow. We want to continue to see her beautiful face light up the room with her beautiful smile and twinkling eyes. Lord, please heal our baby girl.

The last few days have been the most difficult days we have had. Annakate received IVIG earlier today and had an allergi...
15/08/2025

The last few days have been the most difficult days we have had. Annakate received IVIG earlier today and had an allergic reaction and went into anaphylactic shock. The response was quick and she was given epinephrine. She is now intubated again to help her with breathing. She is sedated and comfortable right now. They are doing an EEG over the next 24 hours, she had another ct scan a few hours ago, and she will have another MRI tomorrow to see if there are any new findings. We do know according to today’s CT she has no bleeding or addition swelling. Tomorrow’s MRI will give us more details. Please continue to pray for our girl.

She received Owen’s cells yesterday and we should know in about 2 weeks if the boost worked. Owen is the bravest 5 year old boy we have ever met. He has done phenomenally over this journey. He had to take shots of GCSF for several days. He was terrified of shots before. He’s not now…and he said I do a better job than the Drs. They pulled 8 million CD34 selected stem cells. This is amazing. Normally they pull around 3 million. They gave Annakate 5 million yesterday and will save the rest just incase she needs it later on. When his central line was removed yesterday…he never complained!

Please pray for our family and all of our children. One in the hospital, one starting his first day of kindergarten a week late, and the other starting his freshmen year at college.

We would like to make a huge thank you to NeeNee and Grampy. Y’all are amazing and we could not have made it this far without your help and support.

These pictures are happy snippets in a very scary time. I’ll be honest I’m not posting a current picture of our girl. It’s difficult for us to see and I just don’t want that to be what you see. I want you to see the smiles and the happy times. I definitely want the prayers. Please continue to pray for our precious girl and our family.

https://gofund.me/ea728dff

To say I’m scared is an understatement. We are terrified. Please pray for our girl. If you don’t pray please share this ...
13/08/2025

To say I’m scared is an understatement. We are terrified. Please pray for our girl. If you don’t pray please share this post for so we have more people praying. Annakate has swelling in her brain. They are trying to find the cause. So far we have no answers. They are going to continue with the boost from Owen. His lines were just removed and he did great. We need a miracle. We need God to heal our baby girl.

Please keep praying for our babies. Annakate has had so much going on. She is now intubated, they put the drain back in ...
12/08/2025

Please keep praying for our babies. Annakate has had so much going on. She is now intubated, they put the drain back in to remove extra fluid from around her heart, she has had another spinal tap, she’s on continuous dialysis again, and should have an MRI done today at some point.

Owen is currently hooked up to the apheresis machine. This machine separates blood into its components (plasma, platelets, white blood cells, and red blood cells). It uses a centrifuge to spin the blood at a high speed and separates it. The components needed for Annakate will be collected into a bag and the rest will go back in Owen’s body. After the collection the blood will be sent to The CTL lab and they will prepare it (the boost) for Annakate. Annakate will receive her boost tomorrow if all goes as planned.

https://gofund.me/24e2ff1d

Annakate is now in the PICU (pediatric ICU). Danny is with her now. I’m with Owen getting his labs done and getting chec...
11/08/2025

Annakate is now in the PICU (pediatric ICU). Danny is with her now. I’m with Owen getting his labs done and getting checked in for his procedure. Luckily NeeNee and Grampy are here helping. They are packing up our old room on the BMT floor. Please pray for all of us.

11/08/2025

Annakate is being moved to the PICU. Please pray for our girl. Pray for relief, pray for answers, pray for complete healing.

Owen gets his central lines placed today. Please pray for peace, comfort, and a smooth surgery.

Please pray for us and our family.

Annakate isn’t feeling well at all. The nausea and diarrhea are awful. She doesn’t want to do anything and she is very w...
10/08/2025

Annakate isn’t feeling well at all. The nausea and diarrhea are awful. She doesn’t want to do anything and she is very weak. They are running tests to see if she has another infection. Her adenovirus is now below 500 which is amazing. However she is worse…which makes no sense. Tomorrow we will have a meeting with her entire care team to make sure everyone is on the same page and get our plan/goals together. Her BUN and creatinine are steadily climbing. We are hoping to speak to the GI team and possibly have a scope done. We want her to be in the best condition she can be in for the boost. We want her comfortable.
Tomorrow Owen has his central lines placed and they will do the apheresis Tuesday. Annakate will get the boost Wednesday if all goes as planned and Owen’s central line removed on the 14th which is his 5th birthday.
Please pray for our children. Please pray for our family. Please pray for complete healing for Annakate. She’s been so strong and brave

The bond between a brother and a sister is strong. It’s even stronger when your brother is your best friend. Annakate an...
31/07/2025

The bond between a brother and a sister is strong. It’s even stronger when your brother is your best friend. Annakate and Owen have always been more like twins. They are less than a year apart in age. They did everything together until Annakate was admitted to the hospital for her Bone Marrow Transplant. Owen was the donor for her bone marrow transplant. As many of you know Annakate has had several set backs including the adenovirus which her body cannot beat. She has gone to Cincinnati twice for TCell therapy and it has not worked. Due to her body not healing and the damage it has taken from chemo, medications, and this virus Annakate needs a boost. It is our hope that a boost will help save our girl and give her the full life we know she deserves. This decision has not been made lightly and it is not going to be easy. The boost will come from Owen. It is called an Apheresis. Owen will be given G-CSF for 5 days before a line is placed. An apherisis blood collection is where specific blood components like platelets, plasma, and red blood cells are collected. They go into a column and are separated. Annakate will be given the boost and it will take 2-3 weeks to know if it works. We need this to work. We need our girl to heal and for us all to go back home together where we belong. We know God is the ultimate healer and he is with us and our entire family. Please continue to pray for our family and our precious children.

https://www.gofundme.com/f/support-annakates-journey-to-health/cl/s?utm_campaign=fp_sharesheet&utm_content=amp13_t1&utm_medium=customer&utm_source=copy_link&lang=en_US&attribution_id=sl%3Afca1645a-abf0-4cb7-9987-98b718e3038a&ts=1753983492

I apologize for the delay in updates. Not much has changed. Owen finally got to visit!! The visit was wonderful and wel...
28/07/2025

I apologize for the delay in updates. Not much has changed. Owen finally got to visit!! The visit was wonderful and well needed for all of us. Annakate is still fighting the adenovirus and her numbers are still low. If things do not improve soon we will have to do a boost of Owen’s cells. Please continue to pray for our girl.

We hope everyone had a wonderful and safe Independence Day! Annakate has had a lot going on lately. Adenovirus spiked a...
05/07/2025

We hope everyone had a wonderful and safe Independence Day! Annakate has had a lot going on lately. Adenovirus spiked after TCell to the 70,000’s and then decreased to the 30,000s. Hopefully it will continue to decrease and she can beat this horrible virus. The headaches and nausea have eased up a great deal which is amazing! They are planning on taking her perma catheter out, GI scope, lumbar tap, and biopsy on her sinus cavity on tuesday Her kidneys are not operating at 100% but they are still working. There is a possibility she has GVHD in the gut which could be causing the diarrhea. They are lowering her tacrolimis to help boost her immune system for a while to fight the adenovirus as well as the sinusitis. They did an MRI on her brain and she has meningitis now. Please pray that whatever they do to treat this works and her body can heal so we can all go home and be together. I don’t want to leave on a negative note because it’s just not right…we are truly blessed with amazing people in our lives. Annakate and Daddy went outside for the first time in months!! Annakate said “Daddy, smell the air!” Take time to enjoy the small things in life. Please continue to pray for our sweet Annakate and our family.

Update on Annakate 6/25/25Annakate’s drain (for the fluid around her heart) was removed last week and the fluid has not ...
26/06/2025

Update on Annakate 6/25/25

Annakate’s drain (for the fluid around her heart) was removed last week and the fluid has not re-accumulated. Her blood pressure is still high but they are working on finding the correct medications for her. Her adenovirus continues to worsen. It jumped from 11,000 to over 70,000 in only 3 days. Tomorrow morning Danny and Annakate will fly to Cincinnati for a second treatment of TCell therapy. Please pray for a safe and smooth trip as well as the TCell therapy to work and help rid Annakate’s body of this horrible virus. God is in control. Please continue praying for our girl and our family. We love you all so much.

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