Transverse Myelitis/ Robert Elliott

08/24/2025

Dear Transverse Myelitis,
I am thinking of you today because my nerves are not getting the correct signal to my brain. I am cold and fall has not started. You know my weak points, I can deal with physical pain and limb weakness but 64 degrees this evening outside and I’m freezing. I sit in front of a heater like a 70 year old person.
You have taken a lot of me and my capabilities. November 22nd, 2025 will be 6 years since we met. I get one step forward and then 2 steps back.
Someday I will get up from this wheelchair and walk towards my Lord and Savior to my heavenly home. It will be then you realize you lost. I will give everything of myself each day, this life is temporary. I will fight to make improvements, never giving up. I will help others fight their battles, I will make a difference in others days and God has my heart and my back. Today and Forevermore.

Robert Elliott

08/16/2025

A huge Rave for Mobility Works out of Tea South Dakota. My wheelchair lift failed yesterday mid afternoon leaving the Sioux Falls Humane Society. I manually pumped the Lift closed I am headed to the shop in tea South Dakota. Mechanic was enroute to being home for the weekend and came back to the shop servicing my lift and get it re-functioning.
I have nothing to say but great things with this company since I’ve been disabled in 2019. If you or a family member need mobility products, I highly recommend checking with mobility Works first. They are not only selling reputable products but service also. The staff is what makes this place different they give their very best. My life depends on them and they came through each and every time above and beyond my expectations.

Tea South Dakota
200 E 1st Street
Tea, SD 57064
Phone: (605) 305-9855



12/06/2024

New brain therapy allows paralyzed patients to walk again: 'I feel my legs'

In a Switzerland study, two people with spinal cord injuries received deep brain stimulation therapy and were able to walk without assistance and even climb stairs.

11/23/2024

10/07/2024

Good morning everyone. It’s been an intense few months this past summer. I am sorry for the inactivity.
June 10,2024- I was hit in my Powerchair on the sidewalk by a car,heart was knocked out of Rhythm. The top ventricles were beating faster than lower ventricles causing Atrial Flutter. A few doctors visits and I received Eloquis and Metoprolol for 30 days. I received Cardioversion on September 27th shocking my heart back into rhythm.
August 5th, 2024-Same day surgery to remove bone spur of right large toe.
August 16th, 2024- I had plastic surgery for Thighplasty to remove excess skin from legs after weight loss. I had an overnight stay while recovering.
September 13th- I visited the ER regarding swelling of right leg.?The Diagnosis was Cellulitis and put on Antibiotics.
November 6th- Plastic Surgery for Gynecomastia and Arm Lift.

The above issues were in addition to dealing with Transverse Myelitis 24/7. The surgeries have set back some progression in walking. I still however fight each day giving 100%

I am in the process also of converting a FedEx Van for wheelchair lift and driving from a wheelchair. I truly believe this will be the stepping stone to share awareness of this horrible disease. My Transverse Myelitis website will eventually be built giving others insight into my journey.

05/27/2024

Happy Memorial Day! 🇺🇸I want to pay respect to men and women that have fought for our freedoms in America today. We have so much to be thankful each and every day. Many veterans have paid the ultimate price of their lives, we must always remember the sacrifices. 👨🏻‍🦼

05/17/2024

Otto Rohwedder of Davenport, Iowa, created the invention by which all others are judged — sliced bread — in 1928. His innovation quickly changed consumer culture.

05/14/2024

Good morning everyone. I have been on Methenamine for 2 1/2 weeks from the urologist. I have not experienced a urinary tract infection for this time frame. It’s a relief to not have emergency room visits every two weeks when antibiotics stop. Please check with your urologist if this is something that might work for you.
Two weekends ago, I had a great time with friends at a car show. It was the first time and many years having this much fun. I remember great times with my dad during my youth at the Carlisle car show in Pennsylvania.
My stand and pivot in the bathroom and have been very successful with no falls within the past week. My strength is increasing however at physical therapy using the forearm crutches is very unstable. I want to get having more independence.
I truly am thankful for the progress that I have made. I still have a long road ahead of me. I do have to contact my dermatologist to have cyst removed from my right shin. the last samples were benign and were a result of my edema and being overweight. Life is a journey, every day I am thankful. I hope everyone has a blessed day, thank you for following me.

05/06/2024

05/02/2024

Good morning everyone I want to mention a few updates. I had an Urology appointment yesterday and spoke with a nurse practitioner.
We spoke regarding my 6 or 7 UTI’s in 2024 and she reviewed the results. She was concerned the medical facility, specifically the stand alone ER was over treating my condition. The collection of urine once out of the 6 times included a new indwelling catheter than speciman collected. The other 5 or 6 were breaking between Cather and catheter bag hose or specimen from the cath bag.Antibiotics were prescribed after seeing Leukocytes being high,PH abnormal in addition
to other factors and description of conditions( urethra burning, diarrhea and abdominal tightness.
The nurse practitioner recommended the RX Methanimine. The RX would pretreat and prevent UTI’s versus. I will be on a 90 days supply of this medication taken twice a day.