Sanford CoRDS

Sanford CoRDS CoRDs is the largest, free international rare disease registry. It works to connect participants, advocacy groups and researchers in the field.

The Coordination of Rare Diseases at Sanford (CoRDS) registry is a national disease registry that includes all rare diseases. The CoRDS registry is headquartered at Sanford Research in Sioux Falls, South Dakota, and is supervised by Dr. David Pearce.

We had an incredible time at the 16th Annual Great Plains Rare Disease Summit! ✨Thank you to everyone who joined us both...
05/12/2026

We had an incredible time at the 16th Annual Great Plains Rare Disease Summit! ✨

Thank you to everyone who joined us both in person and online to learn, connect, and advance rare disease research together.

We’re already looking forward to next year! 💙

Join us at the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026We’re excited to feature Kyle Roux, Ph.D, Vic...
05/05/2026

Join us at the 16th Annual Great Plains Rare Disease Summit!
📅 May 7–8, 2026
We’re excited to feature Kyle Roux, Ph.D, Vice President of Biomedical Research and Scientist at
The Sanford Research Institute, presenting "The integrity of the nuclear envelope and its relationship to rare disease "
Register today: https://bit.ly/4szCxHa

Speaker Spotlight 🎤Join us at the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026We’re excited to feature I...
05/01/2026

Speaker Spotlight 🎤
Join us at the 16th Annual Great Plains Rare Disease Summit!
📅 May 7–8, 2026
We’re excited to feature Irfan Saadi, Ph.D, Professor of Cell Biology and Physiology - University of Kansas Medical Center, presenting "Modulating Palate Closure Dynamics to Prevent Cleft Palate "
Register today: https://bit.ly/4szCxHa

Speaker Spotlight 🎤Join us at the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026We’re excited to feature E...
04/29/2026

Speaker Spotlight 🎤
Join us at the 16th Annual Great Plains Rare Disease Summit!
📅 May 7–8, 2026
We’re excited to feature Erica Barnes MA, SLP, Executive Director at Minnesota Rare Disease Advisory Council, presenting "Availability vs Accessibility: Aligning the Ecosystem through Effective Policy"
Register today: https://bit.ly/4szCxHa

Speaker Spotlight 🎤Join us at the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026We’re excited to feature T...
04/27/2026

Speaker Spotlight 🎤
Join us at the 16th Annual Great Plains Rare Disease Summit!
📅 May 7–8, 2026
We’re excited to feature Terri Klein, President & CEO of the National MPS Society, presenting "Science, Advocacy, and Community: Leading a Rare Disease Organization at the Intersection of All Three"
Register today: https://bit.ly/4szCxHa

Don’t miss the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026Take a look at the full agenda and plan your ...
04/22/2026

Don’t miss the 16th Annual Great Plains Rare Disease Summit!

📅 May 7–8, 2026

Take a look at the full agenda and plan your experience—two days of impactful discussions, expert insights, and meaningful connections in rare disease research.

Secure your spot today: https://bit.ly/4szCxHa

Speaker Spotlight 🎤Join us at the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026We’re excited to feature L...
04/21/2026

Speaker Spotlight 🎤

Join us at the 16th Annual Great Plains Rare Disease Summit!
📅 May 7–8, 2026

We’re excited to feature Levi Gershkowitz, Founder & CEO of Living in the Light LLC, presenting Story as Medicine.

Register today: https://bit.ly/4szCxHa

Don’t miss the 16th Annual Great Plains Rare Disease Summit!📅 May 7–8, 2026🔬 Poster presentations available!Submit abstr...
04/20/2026

Don’t miss the 16th Annual Great Plains Rare Disease Summit!

📅 May 7–8, 2026
🔬 Poster presentations available!
Submit abstracts by April 1 for a chance at a Friday data blitz.

Register today: https://bit.ly/4szCxHa

On March 5th Rebecca and Colette attended the 2026 Rare Disease Day program hosted by the Center for Orphan Drug Researc...
03/10/2026

On March 5th Rebecca and Colette attended the 2026 Rare Disease Day program hosted by the Center for Orphan Drug Research and the Stem Cell Institute at the University of Minnesota. The theme for the program was “Therapies for the Few, Impact for Many: Rethinking How We Develop Rare Disease Treatments.”

We met many great people who are working hard to move along the development of therapies for rare diseases!

Kimberly had a great day spent at NIH rare disease day in DC. With talks on everything from AI’s place in rare disease r...
02/28/2026

Kimberly had a great day spent at NIH rare disease day in DC. With talks on everything from AI’s place in rare disease research to presentations from the patient perspective, it was a great reminder of how important the work we do is!

Address

2301 E 60th Street N
Sioux Falls, SD
57104

Opening Hours

Monday 8am - 4:30pm
Tuesday 8am - 4:30pm
Wednesday 8am - 4:30pm
Thursday 8am - 4:30pm
Friday 8am - 4:30pm

Telephone

+18776589192

Website

https://research.sanfordhealth.org/rare-disease-registry/frequently-ask

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