Maggie's Little Liver Story

Maggie's Little Liver Story đź‘¶Biliary Atresia Baby
❤️Liver Transplant 4-2-26
📍 Nashville, TN

Today marks an entire month in the hospital. For a week I haven't wanted Colleen to see Maggie like this, but she misses...
05/02/2026

Today marks an entire month in the hospital. For a week I haven't wanted Colleen to see Maggie like this, but she misses her sister and she misses me. Today she saw her and told her she loves her so much. We talked about all the silly things we used to do with her and how we miss her little baby hands.

It feels like Maggie has been taken from me, but we are still in the same room together. We've spent more than two months of her nine months of life in the hospital. She deserves to be in school with her baby friends. She should be playing in her exersaucer and learning to crawl. She should be laughing with her sister and fussing over new teeth. Instead she is silent.

Maggie is strong. She will get through this and she won't remember this time, but it has forever changed me.

Maggie has had some complications, and her new liver has taken a hit with adenovirus, but she is still so strong. Since ...
05/01/2026

Maggie has had some complications, and her new liver has taken a hit with adenovirus, but she is still so strong.

Since receiving her new liver and finally being able to absorb vitamins, her hair has been growing. It even changed color. Her fingernails are growing too. She will get through this. She has another chance at life and none of this would be possible without the “Young Adult” Dr. Magliocca spoke about after Maggie’s transplant was complete.

April 30th is Donor Remembrance Day. I’ve been thinking a lot about what to say in our letter to our donor’s loved ones. After six months, we are able to reach out to Maggie’s donor's family. I know they may never respond. Some families don’t, and some recipients never hear back. I’ve met a mom who writes every year and has never received a reply. It would be very difficult not knowing about the person whose life saved my Maggie's.

I want to know everything about Maggie’s donor. At this point, we only know that Young Adult had a very healthy liver, with its own unique anatomy. Maggie received the smaller lobe.

Young Adult's family can choose to accept our letter and respond if they'd like. If they do, it will be through the hospital at first. From there, communication can continue if both sides agree.

Whether we hear back or not, we will always honor and celebrate this life. Maggie will grow up knowing the incredible gift she was given. When we celebrate her, we will also honor Young Adult. April 2 is a new holiday for our family to celebrate. April is also Donate Life month! While I've spent this entire month in the hospital feeling every emotion possible, I feel peace knowing we now have many Aprils ahead of us. Together. Thanks to Young Adult.

I can't believe this is happening! Our next  fundraiser for Maggie is with !    have been working so hard to organize th...
04/30/2026

I can't believe this is happening! Our next fundraiser for Maggie is with !

have been working so hard to organize this, and I can't wait to get the Elisa necklace.
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Day 29. I went home last night for only the second time since Maggie's transplant. I saw a little bin of her socks and a...
04/30/2026

Day 29. I went home last night for only the second time since Maggie's transplant. I saw a little bin of her socks and a folded laundry basket downstairs. It was hard to see things that belong to Maggie at home when she's still in the hospital. I've been thinking of all the things I want to do with her when we get to go home.

Tomorrow is our nationwide Children's Organ Transplant Association (COTA) fundraiser  benefiting our Maggie. COTA helps ...
04/28/2026

Tomorrow is our nationwide Children's Organ Transplant Association (COTA) fundraiser benefiting our Maggie. COTA helps to cover all of Maggie's transplant-related expenses. Maggie's COTA fund will help her throughout her lifetime. Please consider ordering online tomorrow. ❤️❤️❤️

04/27/2026

I miss her so much. This baby has been through it. Maggie is on lasics and fentanyl tonight. Praying some of this swelling goes down tonight.

Maggie's team calls her Margaret when she misbehaves like this. What a night. We are hopeful that the worst might be ove...
04/25/2026

Maggie's team calls her Margaret when she misbehaves like this. What a night. We are hopeful that the worst might be over, but she is still so sick. My spine hurts from being tense. She looks terrible, but her body is resting.

This is a nationwide fundraiser for our Maggie on Tuesday. Please share.
04/25/2026

This is a nationwide fundraiser for our Maggie on Tuesday. Please share.

This baby has had a hard day and has a long night ahead of her. 🙏
04/25/2026

This baby has had a hard day and has a long night ahead of her. 🙏

I love my neck pillow so much. It is my most prized hospital possession. I’ve been wanting to write about it for a while...
04/24/2026

I love my neck pillow so much. It is my most prized hospital possession. I’ve been wanting to write about it for a while.

Neck pillow was gifted to me by Cheryl Eaby when I was going through cancer. It has little science designs all over it because we were both teaching STEM at the time.

I used it all throughout cancer, and now I use it in every Maggie situation at the hospital like waiting forever, pharmacy pickup, sitting in the ER, and long appointments where you end up in the same uncomfortable spot. There’s always that little space of wall next to the chair. I look at that space of wall and wonder how many tired, weary heads have leaned up against that same space of wall (not many if it's Dr. Pai because she's quick.) Am I tired enough to lean my head there too? Now I don’t have to wonder that anymore. I just lean back and neck pillow.

If you know someone going through something or someone spending a lot of time in hospitals this is the number one gift I would recommend. It’s the thing no one thinks they need until they have it. So grateful for neck pillow and so grateful for Cheryl for knowing exactly what I needed all those years ago. 🩷

Today was a hard day for me as a parent. I promise to share everything that  happened today with you all very soon. I ne...
04/23/2026

Today was a hard day for me as a parent. I promise to share everything that happened today with you all very soon. I need some time. It's very important to me to continue to share as much as I can because the BA community is so small and moms like and have helped me understand what to expect for Maggie's journey. Every baby is different and not every baby stays in PICU this long. Maggie is still dealing with RSV, blood pressure, and fevers.

Wins today--Maggie is very playful. We practiced getting ready for tummy time by positioning her on me today. She loves her physical therapist. She's on 10 ml of breastmilk through NG tube an hour.

Tomorrow I want to focus on gratitude. I've shared how grateful I am for Maggie's incredible team. I'm going to share some of the things that have brought me joy over the last 22 days.

Day 20 in the PICU and 3 full weeks in the hospital. Maggie has been very interested in her cords and the tags and label...
04/22/2026

Day 20 in the PICU and 3 full weeks in the hospital. Maggie has been very interested in her cords and the tags and labels on them. 🤣

We received some distressing news that she has a fractured skull and radius. Broken bones are possible in BA, but I feel so sad that we didnt know about this until today.

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Smyrna, TN
37167

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