NJ Center for Tourette Syndrome

NJ Center for Tourette Syndrome

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We at Tourette Syndrome Camp USA (www,tourettecamp.com) are hoping to have another Virtual Program in February 2021 for kids aged 6 through 17. Please fill out the following form if you think your child would be interested. Once we have feedback you will receive an email with the official signup (in January)! https://docs.google.com/forms/d/e/1FAIpQLSelCcz51DGXG3Z-Q07bcJkw0ahT4rdAbw7NnvjSJQvDxhkpAQ/viewform?fbclid=IwAR1HohCQFBzw5zl01K0_PwfkGH0HukFziV2w0c_ivVWmrBgwjSY_wssSHp8
CAREGIVERS OF CHILDREN WITH TOURETTE SYNDROME OR CEREBRAL PALSY NEEDED Are you the parent of a child who was diagnosed with Tourette Syndrome, or Cerebral Palsy? Please consider participating in a 20-minute online survey to help us understand the needs of caregivers from the Occupational Therapy program at the University at Buffalo. To learn more go to
Took my Twitcha shirt to Harvard!
I’ve been out of the loop for a little while… Is camp Bernie postponed this year due to the coronavirus?
We are still moving forward with Tourette Syndrome Camp USA from Sunday June 21 till Saturday June 27 at YMCA Camp Duncan in Northern Illinois. We are a one week camp serving children 7 to 16 with Tourette Syndrome and Obsessive Compulsive Disorder. More details and registration at www.tourettecamp.com https://drive.google.com/…/1KuooCzfjHGSYPvWPhcpJ5HjuE…/view…
For any New Jersey /New York teens this is an amazing experience. My teens have attended for 6 years. Please PM me with any questions.
Come and be part of 'The Art in The Syndrome' ! https://www.facebook.com/DiJosephMusicandFilm/videos/552721722196912/
Pretty cool stuff when you have a blackman and a white man both living with #Tourettes both making noises outburst in a store where a bunch of people around. His name is Cameron approaches starts WHOOP WHOOP all my face lol.🤣😂 He works Coca Cola of Knoxville Tennessee, a delivery driver has Tourette Syndrome #tourettesyndrome #cocacola #knoxvilletn #weigels #tourettes #tourettesinknoxville #mrneighborhood
My lovely friend Symphony from the Boogie down Bronx neighborhood from New York. She has Tourettes Syndrome for a long time. She currently pregnant with her first child. It's a girl. She's a teacher, teaches students. She can dance really well. She makes youtube videos, she very intelligent, funny. She educates what it's like being a black woman living with Tourette Syndrome. Shes such a beautiful person. She knows what being discriminated is like. She got stories to tell you, educate you about She needs a lawyer for what she dealing job discrimination her job. 💙💚💃🏿🚼👶🏿🎉🎊 #TourettesBeauty #tourettesismyconstantcompanion #pregant #tourettes #mother #nycha #tourettesandpregnant #ny #bronxny #livingwithtourettes #bxnyc #newyork #dancing #dancechoregraphy #publichousing #fromtheneighborhood #NieshhSimpson Professional Choreography freestyle dancing. #instagram #monicamakesithappen
Educated King of Tourette Syndrome in Salute to myself for all the stuff I overcame in this neighborhood I live so long ago. I wrote my first book got discriminated by Knoxville Tennessee police. People thought I was on drugs. Some of you good ole boys, white folks here in the city don't like the fact I'm a successful published Author living with Tourettes from a drug riddled neighborhood, connected, active community leader ALWAYS do my own thing with no team no help. I get things done I got stories. Some of connections area sharing this as well as so many others around the world as we speak to educate. 1LUV #👑TS 💚💙📿🎊🎉😂🤣 #tourettesvseverybody #nevereverbeentojail #nocriminalhistory #tourettesinthehood #KingMyles #NeverSoldDrugsInKnoxvilleTennessee #iNEVERSoldDrugs #NEVERSOLDDOPE #IAmAREALCommunityLeader #Inthe #publichousing #camerasinthehood #myhood #CHills #tourettesintheprojects #knoxville #IBuildUpNotTearDown #tourettesawareness #blackpoverty #knoxvilletn #MrNeighborhood #mylesrwalker #knoxvillepolice
This is my new radio interview for 2019 please listen about REAL LIFE!! 1LUV #👑TS 💚💙 #mylesrwalker
Check out my interview on live on Authors N Abstract drug dealers friends from Knoxville Tennessee gave me job at a local record store to help keep money for diapers in my pocket raising a biracial Niece and Nephew as babies in a drug riddled neighborhood. Facts Happy National Tourette Syndrome Awareness Month May 15 June 15 2019

As many as 1 in 100 individuals live with Tourette Syndrome or other tic disorder. NJCTS provides answers for families through referrals, education, and training so that education and medical professionals will be better qualified to help those with TS.

The New Jersey Center for Tourette Syndrome (NJCTS) is a not-for-profit organization committed to the advocacy of children and families with Tourette Syndrome and its associated disorders.

Mission: Dedicated to delivering high-quality services to children and families with Tourette Syndrome and its associated disorders, NJCTS recognizes the importance of educating the public, medical professionals, and teachers about this disorder through programs and affiliations with public schools, health centers, and universities. To ensure that individuals with Tourette Syndrome are contributing members of their communities and society at large, the Center is committed to leading the promotion and development of diagnostic and treatment therapies and actively supporting research for a cure.

Operating as usual

njcts.org

NOW RECRUITING: Virtual Group for Children and Adolescents with Tics! - Teens4TS

The Tourette Syndrome Clinic at Rutgers Graduate School of Applied and Professional Psychology is offering a 10-week, group-based program that aims to help children build resilience and develop the skills necessary to better navigate life with tics and associated conditions. Read more below!

https://njcts.org/teens4ts/now-recruiting-virtual-group-for-children-and-adolescents-with-tics/

njcts.org 0 NOW RECRUITING: Virtual Group for Children and Adolescents with Tics! Posted on December 7, 2020 by NJCTS staff Many children with tics and Tourette Syndrome may experience anxiety, be teased or bullied, develop negative self-perceptions and avoid social situations as a result of their tics. The R...

njcts.org

Neurodevelopmental Conditions and Anxiety: Common Causes and Effective Solutions - NJCTS

Our latest Wednesday Webinar is now available online!

High rates of anxiety have been reported across a range of neurodevelopmental conditions including ADHD, Autism, Tourette Syndrome, and Learning Disability. In this webinar, Christopher Lynch, Ph.D explores the reasons why these conditions are so often accompanied by anxiety.

Dr. Lynch gave an excellent webinar. He covered many disabilities and the increased anxiety during this time of Covid-19. Everyone was excited for the many examples to help ease anxiety and took away a new perspective on handling screen time etc.

https://njcts.org/neurodevelopmental-conditions-and-anxiety-common-causes-and-effective-solutions/

Presented by Christopher Lynch, Ph.D## High rates of anxiety have been reported across a range of neurodevelopmental conditions including ADHD, Autism,

myemail.constantcontact.com

Order Your Gift Cards by December 11

Turn your holiday shopping list into fundraising for NJCTS!!

How it works:
-Raise money by purchasing gift cards at face value
-Immediately earn up to 20% for NJCTS
-Use them at full value or give as gifts

Earnings come from brands, not from your pocket, so gift cards are worth every penny!

Learn more and sign up today! https://conta.cc/2VlwFmK

myemail.constantcontact.com Your holiday shopping could be benefiting NJCTS Need Last Minute Gift Cards? Did you know that buying gift cards for yourself and others is a great way to raise money for NJCTS? Get all of your gift c

[12/04/20]   Our friends in NYC will be conducting an online TS support group on Tuesday, December 8, from 6:30pm to 7:45pm

Alan Brown, Mindfulness Coach, will curate the session. The group is open to all those with Tourette and those who support loved ones with TS.

Register here: https://zoom.us/meeting/register/tJMpcOytrTkoE9Y7LcKcE1s6rk7vtXzoo-l5

Ocean County Department of Human Services

The Ocean County Children's InterAgency Coordinating Council (CIACC) is hosting a FREE 'Introduction to Tourette Syndrome' virtual presentation on Friday, December 4 from 9:00AM-10:30AM!

NJ Center for Tourette Syndrome's Program Manager Barbara Chabner, Psy.D. will be the event presenter!

Register at https://oceancounty.webex.com/oceancounty/onstage/g.php?MTID=e7ddeb3e50e153679bc2de54b4964468a

moms.com

Jamie Grace, Mom & Grammy-Award Winner, Shares Her Journey With Tourette Syndrome, OCD & ADHD

In her recent interview with Moms.com, Jamie Grace shares how her Tourette's Syndrome made her sensitive to the emotions of others, how having consistency helps her in parenting her toddler, the importance of having a positive, nurturing support system around you, misconceptions about Tourette's Syndrome and the healing power of art and being creative.

https://www.moms.com/jamie-grace-tourette-syndrome/

moms.com Jamie Grace, a mom and two-time Grammy-nominated singer, songwriter, and actress shares her journey with being diagnosed with Tourette Syndrome.

There's still time to make an impact this Giving Tuesday! Your donation will help fund programs and services to support families, public outreach and awareness campaigns, and education for schools and healthcare professionals. Any amount makes a difference for those living with Tourette Syndrome.

If you are able, consider donating today! You can do so at this link: https://bit.ly/2Thm76Z

It's #GivingTuesday2020 , an annual day of giving and generosity. How can you give back to NJCTS today?
1. Set up a Facebook fundraiser at https://www.facebook.com/fund/TouretteSyndrome/
2. Make a one-time or recurring donation at https://bit.ly/2Thm76Z
3. Share your story! Tag us and we will share it on our page.
4. Show your support for NJCTS on your social media today.
5. Research our programs and other ways you can get involved at njcts.org
6. But most importantly do something generous today for another person, it can create a ripple!

Tomorrow is the day! Learn of five ways YOU can participate in #GivingTuesday2020 and get started today.
If you would like to make a one-time or recurring donation click here: https://bit.ly/2Thm76Z

palmbeachpost.com

'Different is OK': Delray Beach teen with Tourette syndrome uses social media to raise awareness

"Just be you,” he said. “Don’t try to fit in, be you. Be different. Different is OK. That’s kind of the message I want to get out of the account."

https://www.palmbeachpost.com/story/news/local/2020/11/23/delray-beach-teen-tourette-syndrome-uses-social-media-raise-awareness/6370425002/

palmbeachpost.com Shane Koch has become a social media star, recording videos with his dog, Callum.

NJCTS is proud to announce that Dominic Dominguez has accepted an internship within our Youth Development department. Dominic graduated high school this year and will be attending Princeton University next Fall. He has been an NJCTS Youth Advocate since 2018. As part of his new responsibilities, Dominic will be reaching out to potential advocates to share the many ways they can advocate, practice their leadership skills, and build the TS community.

Dominic was diagnosed with TS two years ago, but has been living with a tic disorder and depression since he was in eighth grade. When Dominic is not advocating and educating about TS, he works as an EMT.

Welcome Dominic!

njcts.org

Faith Rice, Pioneer of TS Awareness and Advocacy, Set to Retire - NJCTS

Faith W. Rice, founder and executive director of NJ Center for Tourette Syndrome and Associated Disorders. has announced her retirement at the end of 2020. She has been at the reigns of the organization, and responsible for all of its accomplishments, since it was established in 2004, but her story began long before that. Read more and learn how to contribute to the Faith W. Rice Legacy Fund.
http://www.njcts.org/faith-rice-pioneer-of-ts-awareness-and-advocacy-set-to-retire

njcts.org Faith W. Rice, founder and executive director of NJCTS, has announced her retirement at the end of 2020.

The Power of Social Media: Part of the NJCTS Empowerment Advocacy Series

youtube.com

Made In New Zealand - Music Video Fundraiser

New Zealand singer/songwriter Analise Twemlow wrote and recorded 'Made in New Zealand' with legendary producer Tiki Taane. You may remember Analise from this year's NJCTS Tim Howard Leadership Academy.

All royalties from the song are being donated to the Tourette's Association New Zealand.Enjoy!

https://youtu.be/7bsH77WanDA

New Zealand singer/songwriter Analise Twemlow wrote and recorded Made in New Zealand with legendary producer Tiki Taane, featuring a cameo appearance by Dr A...

With Giving Tuesday approaching December 1, kick start the annual day of giving with a Facebook Fundraiser TODAY in honor of NJCTS. Facebook Fundraisers are a quick and easy way to give back to your favorite nonprofit! https://www.facebook.com/fund/TouretteSyndrome/
Stay tuned for the next two weeks to find out other ways you can participate in Giving Tuesday. #GivingTuesday2020

If you would prefer to make a one-time or recurring donation, you may do so at this link: https://bit.ly/2Thm76Z

metro.co.uk

Why people with Tourette's are sharing their tics on TikTok

Scrolling through your phone when you can’t sleep at night, you find yourself on TikTok, watching an endless stream of videos of strangers participating in dance trends and filtered face effects. But among all the renegade-ing and clips of cats making cocktails, you might stumble upon an entire community of people using the app to raise awareness of Tourette’s syndrome.

Read more: https://metro.co.uk/2020/11/18/why-people-with-tourettes-are-sharing-their-tics-on-tiktok-13609846/?ito=cbshare

metro.co.uk ‘If just one person knows they’re not alone then I’m happy. No one should feel alone for a disorder they cannot help.'

The very first 2-day ThankScriping Day is coming November 19 – 20. It’s your opportunity to earn up to 20% with 120+ bonuses on eGift cards and reloaded gift cards. Mark your calendar and help support NJCTS with your holiday shopping list—from the comfort of your home.

Register with NJCTS here: https://shop.shopwithscrip.com/Login/Enroll?invitationCode=67ee125e-065e-4bae-90d8-83c7f733b7a7

Download App: https://www.raiseright.com/

REMINDER: In just 3 hours (3pm EST), join us for this weeks Youth Chat, featuring Kyle Kalbach, from The Society for the Prevention of Teen Suicide (SPTS)! Kyle will be discussing SPTS' programs as well as their annual PSA contest that YOU can join. For teens ages 13-17. Register here before it's too late: https://us02web.zoom.us/meeting/register/tZUoc-GtqT0pGN2s8Rwe3R5Xj9gierT8WWmN

Tourettes Action

🎟️ The show must go on! Tickets for free Tourettes show 🎟️

'What makes me tic?' Is a show that was due to complete a tour the UK this year before COVID hit. Now, for one night only, its organisers are offering access to a free online reading of the show by the original touring cast.
It will take place on Friday the 20th of November at 7:30pm
The show is approximately an hour and afterwards there is an opportunity to talk with the shows creators and cast.
If interested, please email [email protected] for your link to the performance.

May the joyous celebration
Of this divine festival
Fill your heart with
Never ending joy and happiness!
Happy Diwali

Get your holiday gift cards delivered to your door AND support NJCTS!

With the mobile app, RaiseRight™, you have the option to get physical gift cards from 250+ brands sent right to your door, or sent right to friends and family as holiday gifts. There are no activation fees and you can earn up to 20% for NJCTS. Download the app and start raising today. (email [email protected] if you have any problems. 😁)

https://shop.shopwithscrip.com/About/WhatsNew/2020/October/30170/ship-to-home?appLink=Promotion?entryId%3D34ipTTJlJoz2nmQX95D4E0

Join us next Tuesday, 11/17 at 3pm for the next NJCTS youth chat! This meeting will feature our guest, Kyle Kalbach, from the Society for the Prevention of Teen Suicide (SPTS). He will be discussing SPTS’ programs as well as their annual public service announcement contest that YOU can be a part of.
Register here: https://us02web.zoom.us/meeting/register/tZUoc-GtqT0pGN2s8Rwe3R5Xj9gierT8WWmN

njcts.org

Ask the Doc: A Neurologist’s Perspective - NJCTS

"This has been amazing information in a battle to get good answers among my own medical providers....THANK YOU!"

Dr. Rubenstein did an excellent job at answering neurological, medication, treatments and genetics questions in the Ask the Doc session during yesterday's Wednesday Webinar. There were many questions presented before the webinar and during the webinar. Check it out to see if he answered the question you always had but didn’t ask.

https://njcts.org/ask-the-doc-a-neurologists-perspective

Presented by Dr. Michael Rubenstein ## Do you have a question about your Tourette Syndrome or your childs Tourette Syndrome? Dr. Rubenstein is answering

amazon.com

Watch Hichki online - Prime Video

Now Available on Amazon Prime:
"HICHKI" is a story about Naina Mathur (Rani Mukerji), an aspiring teacher who suffers from Tourette Syndrome. After numerous rejections, she lands her dream job as a full-time teacher and gets assigned a class of students who can’t seem to keep out of trouble. Naina must do whatever she can to ensure that her students realize their true potential, and defy all the odds against them. Based on the book "Front of the Class" by Brad Cohen.
https://www.amazon.com/Hichki-Rani-Mukerji/dp/B08KWR1NF6/

amazon.com "HICHKI" is a story about Naina Mathur (Rani Mukerji), an aspiring teacher who suffers from Tourette Syndrome. After numerous rejections, she lands her dream job as a full-time teacher and gets assigned a class of students who can’t seem to keep out of trouble. Naina must do whatever she can to en...

childmind.org

Holidays During the Pandemic | Child Mind Institute

We can’t tell you what the right (or safe) choices are for your family, but here are some tips to make the best of holidays during the pandemic, whatever your situation. via Childmind

https://childmind.org/article/holiday-during-the-pandemic/?utm_source=newsletter&utm_medium=email&utm_content=Holidays%20During%20the%20Pandemic&utm_campaign=Public-Ed-Newsletter

childmind.org Tips for dealing with holidays during the pandemic — reducing stress, helping kids cope with disappointment, and making new traditions.

#Repost @millburnhskeyclub with @get_repost
・・・
Thank you to Mr. Breslow and Emma Redman for a fantastic talk on Tourette Syndrome today! The event to raise awareness continues THIS FRIDAY, November 13!

ALL DAY on Friday, order take out from a restaurant in town (the Millburn Deli, Goldberg’s, Kung Fu Tea, Ms. Lin or La Strada), show them this flyer, and a portion of the bill will go to the New Jersey Center for Tourette Syndrome (NJCTS)! Thank you to the Class of 2023 and the Unified Club for reaching out to organize this with Key Club!

[11/10/20]   Join our friends at the TAA - New York City tonight for an online support group from 6:30pm to 7:45pm. Alan Brown, Mindfulness Coach, will curate the session. The group is open to all those with Tourette and those who support loved ones with TS.

https://zoom.us/meeting/register/tJUqcOigrzotHNz6dRYvzBkg5D5EVi8lMHGO

Dr. Hilary Murphy presented on behalf of NJCTS today at the 2020 New Jersey Education Association Conference to approximately 200 educators. The topic was Managing Attention-Deficit/Hyperactivity Disorder (ADHD) in the Classroom. Attendees were able to learn about attentional deficits and executive dysfunction and how these symptoms interfere with academic, social and emotional outcomes.

Thank you Dr. Murphy. Awesome job!

NeurAbilities Healthcare - A Member of CNNH NeuroHealth

"Things happen to a mother when her child is diagnosed with something. It's like she becomes the pilot of an airplane that is headed for the Bermuda Triangle - a strange and unknown dimension that thrusts her into this whole chaotic world devoid of normalcy - whatever that is. I don't care what anyone tells you, when you find out your child has a condition or disorder, it's devastating. It changes things inside of you."

Writer Ginger McGee's son Jake was diagnosed with Tourette Syndrome when he was six, and severe OCD when he was eight. She spent years trying to fix him before realizing that he wasn’t broken and was exactly the child she needed in her life. After finding that there were no books written about TS and OCD from the perspective of the mother of a child with both, Ginger decided to write He’s Not Broken: A Mother’s Journey to Acceptance.

You can buy her book on Amazon, and check out the blog she wrote for NJCTS here: https://njcts.org/tsparents/worried-about-navigating-this-strange-and-unprecedented-school-year-with-your-student/

njcts.org

Non-Medical Treatment of Tics: An Overview of CBIT and the Rutgers Tourette Syndrome Clinic - NJCTS

Last week's webinar about the non-medical treatment of tics was presented by Dr. Graham Hartke, supervisor of the Rutgers TS Clinic Supervisor. (You can view the full webinar below.) One of the questions asked by the audience was about prenatal factors that may contribute to TS. Thankfully, Dr Gary Heiman of the NJCTS Rutgers Tic Genetics project was available to provide direction. NJCTS to extremely grateful for our Rutgers connections we have established over the years and the breadth of knowledge they can provide to our families.

https://njcts.org/non-medical-treatment-of-tics-an-overview-of-cbit-and-the-rutgers-tourette-syndrome-clinic/

This webinar will provide an overview of Comprehensive Behavioral Intervention for Tics (CBIT), a structured evidenced-based non-medical intervention for tics based on cognitive behavioral therapy.

Last week, NJCTS presented an in-service to a group of faculty and staff at River Dell Middle School via Zoom. Youth Advocate Paige even dropped in to give the educators a student with Tourette Syndrome's perspective.

All of our Education Outreach presentations (teacher, student medical, community) are available virtually. Visit www.njcts.org to learn more or e-mail Claudia Lijo at [email protected].

scoop.co.nz

16-Year-Old Christchurch Singer-songwriter, Analise, Releases Feel-good Anthem For Our Times

Very excited for Analise!

Christchurch singer-songwriter Analise Twemlow has released her first single to raise funds for Tourettes Association of NZ.

https://www.scoop.co.nz/stories/CU2010/S00156/16-year-old-christchurch-singer-songwriter-analise-releases-feel-good-anthem-for-our-times.htm

scoop.co.nz Christchurch singer-songwriter Analise Twemlow has released her first single to raise funds for Tourette’s Association NZ. The teenager lives with Tourette’s Syndrome but isn't letting anything stop her dream to pursue music. Written in lockdown, ...

NJ Center for Tourette Syndrome

Tourette Syndrome (TS) is an inherited, neurological disorder characterized by uncontrollable sounds and movements called tics. TS is much more common than most people think, affecting as many as 1 in 100 individuals.

In 2004, NJ Center for Tourette Syndrome & Associated Disorders, Inc. (NJCTS) received funding from the State of New Jersey to create a Center of Excellence that would provide programs and services to support families, public outreach and awareness campaigns, and education for schools and healthcare professionals in every corner of the state.

More than 10 years later, that funding has also helped NJCTS expand its reach beyond New Jersey through programs such as educational webinars, virtual support groups, the NJCTS Tim Howard Leadership Academy, and the NJCTS Family Retreat Weekend.

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Videos (show all)

Put Your Voice into Action
The Power of Social Media: Part of the NJCTS Empowerment Advocacy Series
Global TS Teen Summit Starts Tomorrow!
Marty Retirement
TS Awareness Day Celebration
Frank Walks for TS
Jenna's Proclamation Request
A Day in the Life of Christine
NJCTS Education Outreach
Dr. Jay Tischfield Accepts HINJ Research Recognition Award

Location

Telephone

Website

Address


50 Division St, Ste 205
Somerville, NJ
08876

General information

There are as many as 1 in 100 individuals with Tourette Syndrome or other tic disorder – most of them undiagnosed, misdiagnosed and misunderstood. NJCTS provides answers for these kids and their families through referrals to programs and services, education and training so that families, peers and professionals will be better qualified to help those with TS, and support of research programs so that we can find better treatments and a cure.

Opening Hours

Monday 08:00 - 16:30
Tuesday 08:00 - 16:30
Wednesday 08:00 - 16:30
Thursday 08:00 - 16:30
Friday 08:00 - 16:30
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