As many as 1 in 100 individuals live with Tourette Syndrome or other tic disorder. NJCTS provides answers for families through referrals, education, and training so that education and medical professionals will be better qualified to help those with TS.
The New Jersey Center for Tourette Syndrome (NJCTS) is a not-for-profit organization committed to the advocacy of children and families with Tourette Syndrome and its associated disorders.
Mission: Dedicated to delivering high-quality services to children and families with Tourette Syndrome and its associated disorders, NJCTS recognizes the importance of educating the public, medical professionals, and teachers about this disorder through programs and affiliations with public schools, health centers, and universities. To ensure that individuals with Tourette Syndrome are contributing members of their communities and society at large, the Center is committed to leading the promotion and development of diagnostic and treatment therapies and actively supporting research for a cure.
Back-to-school season is coming up, and some families still don’t know where and how their child will be learning. For kids who are heading back to school buildings, the CDC has issued safety guidelines for reopening. That means school is going to look very different this year.
Here are some common worries families have about back-to-school this year.
understood.org School is going to look very different this year. If you’re concerned about your child going back, you’re not alone. Learn about common worries parents have.
Our next NJCTS Family Game Night is scheduled for Wednesday, July 22 at 7 p.m. Register now so you will be reminded to sign on. :) All are welcome for a good time with our host Kelley.
Congratulations to NJCTS Youth Advocate Jacob who graduated high school last month and is off to Hofstra in the fall. Jacob was also a second place winner of an NJCTS Scholarship.
From his scholarship essay: "After my diagnosis, I made sure to tell everyone in school about my condition. I became a big believer in the power of knowledge and communication. How can you expect someone to understand something they have no knowledge of? You can’t!"
Good luck, Jacob!
If your child has difficulty with emotions, you may wonder why. Is it just taking longer for your child to develop coping skills? Or is something else going on?
understood.org Emotional control: Why do kids struggle with managing emotions? Find out what to look for if you have an emotional child, and what to do next.
New Jersey's own TS Advocate Shylah, known around the web as Simply Tourettes, appeared on Tourette's Podcast this week. The 13-year-old "opens up, smartly dissects the struggles of reckoning with a perceived-to-be-weird thing like Tourette Syndrome at her age, and finding ways to build structure around it."
Check it out! Great work Shylah!!
tourettespodcast.com You asked for it -- more teenage voices on Tourette's Podcast. Shylah, known around the web as Simply Tourettes, represents that voice dang well, and candidly so. She opens up, smartly dissects the struggles of reckoning with a perceived-to-be-weird thing like Tourette Syndrome at her age of 13, and
Martha “Marty” Butterfield has worn many hats with NJCTS. (She’s even eaten her hat when she lost a bet. It was chocolate, of course.) Now she is permanently taking off her NJCTS hat and retiring. But let’s take a moment to remember all the roles she played in the last 15 years.
njcts.org Martha “Marty” Butterfield has worn many hats with NJCTS. (She’s even eaten her hat when she lost a bet. It was chocolate, of course.) Now she is permanently taking off her NJCTS hat and retiring. But let’s take a moment to remember all the roles she played in the last 15 years. Office space...
World Series Champ Jim Eisenreich Didn't Let His Tourette Syndrome Stop Him From Playing Baseball
sportscasting.com Jim Eisenreich was diagnosed with Tourette Syndrome during his career, but he didn't let that stop him from winning a World Series.
Last month, YouTuber Anthony Padilla sat down with Twitch star Sweet Anita, comedian Samuel J. Comroe and UNLV Women's Soccer goalkeeper Emberly Sevilla to talk about what it's like to live with Tourette Syndrome. We want to thank them all for this honest, and humorous, conversation. #TSAwareness
I spent a day with people with Tourette’s Syndrome to learn what it’s like living with this often misunderstood neurological disorder. 🧨HUGE thank you to: ▸ ...
Shout out to our graduating NJCTS Youth Advocates!! This is Evan Patino who is headed to County College of Morris in the fall. Evan was also an NJCTS Scholarship winner.
"Tourette Syndrome is something I have known for my entire life, and although there are times I wish I did not have to deal with it, there are also times when I realize that without it, I wouldn’t be the person that I am today."
Congrats Evan. We'll be in touch!
The American Academy of Pediatrics says kids should be in school for in-person learning this fall. “The importance of in-person learning is well-documented, and there is already evidence of the negative impacts on children because of school closures in the spring of 2020." Do you agree?
“Research shows that only 31% of Black and Hispanic adults with mental illnesses are receiving care.”
July is Bebe Moore Campbell National Minority Mental Health Awareness Month. Who was Bebe Moore Campbell?
zora.medium.com In a month dedicated to minority awareness, let’s honor her memory
We would like to announce that our current Webinar & Volunteer Coordinator, Marty Butterfield, is retiring. Today was Marty's final day at NJCTS. We cannot thank you enough for everything you have done for us and for our families. We wish you all the best in your retirement! Congratulations Marty!! We will miss you.
Thank you to Youth Advocate Sofia for a great NJ Walks for TS season!! 😍
patch.com One of your neighbors posted in Neighbor News. Click through to read what they have to say. (The views expressed in this post are the author’s own.)
Sharing from Tourette Canada
Tomorrow at my 1:00 PM briefing, I will be joined by New Jersey Department of Education Commissioner Dr. Lamont Repollet to discuss the guidance that the Department will be releasing regarding the reopening of schools for the 2020-2021 school year.
NJCTS supports the LGBTQ community, including those in our very own TS family. We stand in solidarity as we celebrate last week’s landmark U.S. Supreme Court ruling that the 1964 Civil Rights Act protects gay, lesbian, and transgender employees from discrimination. We believe that #loveislove. Happy Pride Month!
Whether it's high school, college, kindergarten or medical school.......Congratulations to our graduates – we are so very proud of each and every one of you! - Faith Rice and the NJCTS staff
Keep an eye on our page as we highlight our graduating Youth Advocates and all of our scholarship winners in the coming weeks!
Thank you to our friend Dr. Seonaid Anderson for this article.
psychreg.org Tourette syndrome (TS) is a complex neurological condition.
A few of our friends and advocates put together this video of encouragement for our friends during this trying time. We know things can be especially tough for those in the TS community and we hope that you are all doing well. Please reach out if you need anything!
New Jersey Department of Education (DOE) released guidance that allows Extended School Year (ESY) services for children with disabilities to be provided in-person as of July 6. The guidance states that schools can provide ESY services in-person, remotely, or a hybrid of both.
Happy Summer! Looking for activities to do with your children now that remote learning is done? Kidsbridge Tolerance Center offers free resource for parents that develop social-emotional skills in children.
Activities last between 10-45 minutes and include:
SOCIAL-EMOTIONAL: Feelings, mindfulness, personal strengths, resilience, empathy
PROBLEM-SOLVING: Bullying prevention, ally actions, how to be an UPstander
AWARENESS of OTHERS: Diversity, media literacy, stereotypes
kidsbridgecenter.org FREE resource for parents and teachers of five at-home activities per week that develop social-emotional skills in children.
As promised yesterday, Tourette Talk with Brad Cohen is here!! It's a long video (my video editor wasn't allowing me to split it up into 2 parts like I wanted to), but I promise you will not regret listening/watching this one!
Brad has been such an inspiration to my life and I still to this day tell everyone to watch his film Front of the Class to not only find out more about Tourette Syndrome, but to be inspired. He is such a genuinely kind man and it was my honor and pleasure to do this interview with him. Speaking to him was a dream come true for me and I truly hope you all enjoy it!
#tourettesyndrome #tourettetalk #oneticatatime #bradcohen
Join us for Game Night this Thursday at 7 p.m. NJCTS host Kelley will lead you and your family and friends through a Scavenger Hunt!
Haven't participated in any of our Game Nights yet? Please consider joining us for the fun and an opportunity to connect to other NJCTS families.
Join NeurAbilities Neuropsychologist, Dr. Azlen Theobald, tomorrow, June 17th, as she discusses parental burnout, strategies to help reduce conflict, and ways to manage mental health for both parents and children during this public health crisis in collaboration with New Jersey Center for Tourette Syndrome.
In the current pandemic setting, parents have very swiftly and without much preparation time started playing the role of parent, educator, behavioral therapist, and coach. For children with neurodevelopmental disorders, the COVID-19 environment has meant a drastic change from their daily routine and left parents and caregivers feeling overwhelmed and burned out.
Be sure to register below!
Be sure to sign up for Dr. Theobold's webinar this Wednesday night!
It’s the last day of #TouretteAwarenessMonth! NeurAbilities Neuropsychologist Azlen Theobold, PsyD, shares six things not to say to an individual with Tourette Syndrome.
In addition to the services we provide here at NeurAbilities Healthcare for individuals with Tourette Syndrome, there are also many other resources for individuals and their families in PA and NJ. Be sure to check out Tourette Association of America, Tourette Association of Eastern Pennsylvania, and NJ Center for Tourette Syndrome!
NJCTS in-service presenter and Director of the The Center for Emotional Health of Greater Philadelphia, LLC, Dr. Marla Deibler wrote an article about the importance of understanding Tourette Syndrome in an educational environment. Her article appeared in the Spring Newsletter for the New Jersey Association of School Psychologists. NJCTS has posted the article on our website. We encourage all educators to read it and for parents to share it with their children's teachers. Thank you Dr. Deibler!
njcts.org It is vital for educators to understand Tourette Syndrome in order to provide a supportive learning environment in which students may thrive.
Please check out Understood's podcast: In It: A Podcast on Raising Kids Who Learn and Think Differently.
Understood is dedicated to shaping a world where millions of people who learn and think differently can thrive at home, at school, and at work.
In recent weeks, Lele Pons has definitely shown her fans a more vulnerable side. Since the debut of her YouTube series “The Secret Life of Lele Pons,” the social media star has revealed that she struggles with “severe” obsessive-compulsive disorder.
In the most recent episode of her YouTube series, she also shared that she has secretly been living with Tourette syndrome her entire life.
“I have been hiding my tics for years, but I’ve finally accepted that it’s [a part] of who I am.”
New Free Episodes Every Tuesday at 9am PST / 12pm EST Watch Episodes Here ▶ https://www.youtube.com/watch?v=USfoQp_Py4I&list=PLmjMRs-v1tgRvIN1rqT2x35S2F5QvTW...
A treatment known as median nerve stimulation (MNS) can significantly reduce tic frequency, tic intensity and the urge-to-tic in people with Tourette syndrome, according to a new study at the University of Nottingham in the U.K.
psychcentral.com A treatment known as median nerve stimulation (MNS) can significantly reduce tic frequency, tic intensity and the urge-to-tic in people with Tourette syndrome (TS), according to a new study at the
TS Advocate Life's A Twitch gives us a little lesson on coprolalia, copropraxia and coproskepsi. Thanks Emma for continuing to educate!
This video is about Coprolalia, Copropraxia, and Coproskepsi! I also throw in some information about Coprographia. Also, here is a resource you can use with ...
Join us today at 3:30 as several of our NJCTS Youth Advocates discuss their college experiences! They have just completed either their first or second year of college, and are going to be sharing what their journeys have been like. We do have specific questions that the Advocates will be answering, but please bring along a few of your own for the question and answer period. Can’t wait to see you!
Great job Baldwin family! Mantua Township held their meeting virtually but Deputy Mayor Robert Zimmerman made a special visit to deliver a TS Awareness Day proclamation. :) #TSAwarenessMonth #TSAwarenessDayinNJ
On behalf of the Township Committee, Deputy Mayor Bob Zimmerman presented a Proclamation to the Baldwin Family this afternoon in order to recognize June 4th as “Tourette Syndrome Awareness Day.” The presentation was done outside, with the use of social distancing and face coverings.
Second Grade Teacher Tara Loughlin went above and beyond for a student adjusting to a life with Tourette Syndrome. Now she is the NJCTS Educator of the Year!
njcts.org Second Grade Teacher went above and beyond for student adjusting to a life with Tourette Syndrome. NJ Center for Tourette Syndrome and Associated Disorders has awarded the 2020 Educator of the Year to Tara Loughlin, a second grade teacher at Wemrock Brook School in Manalapan. Loughlin was nominated....
Tourette Syndrome (TS) is an inherited, neurological disorder characterized by uncontrollable sounds and movements called tics. TS is much more common than most people think, affecting as many as 1 in 100 individuals.
In 2004, NJ Center for Tourette Syndrome & Associated Disorders, Inc. (NJCTS) received funding from the State of New Jersey to create a Center of Excellence that would provide programs and services to support families, public outreach and awareness campaigns, and education for schools and healthcare professionals in every corner of the state.
More than 10 years later, that funding has also helped NJCTS expand its reach beyond New Jersey through programs such as educational webinars, virtual support groups, the NJCTS Tim Howard Leadership Academy, and the NJCTS Family Retreat Weekend.
Research into the cause and treatment of TS is also of paramount importance, and NJCTS—the first and only Center of its kind in the nation—is at the forefront of addressing the need for more effective treatment options, as well as support and professional assistance for individuals with TS and their families.
NJCTS provides referrals for medical diagnosis, treatment and psychological services; coordinated family support among partner and community organizations; education and training at medical schools and universities to develop a new generation of professionals who are knowledgeable about TS and its associated disorders; and outreach to practicing physicians, educators, and medical professionals.
NJCTS also features the nation’s only university-based, standalone TS teaching practicum and psychological clinic at Rutgers University. In addition, Rutgers is home to the NJCTS Cell & DNA Sharing Repository, which makes genetic material available to qualified researchers worldwide as they work to understand factors that someday may lead to better treatments and, ultimately, a cure for TS.
In 2014, NJCTS partnered with U.S. Men’s Soccer goalkeeper and TS advocate Tim Howard to launch the NJCTS Tim Howard Leadership Academy, a four-day intensive program for high school students diagnosed with Tourette Syndrome held at Rutgers. The Academy provides a positive, respectful, safe, and accepting environment centered on self-empowerment, self-leadership, self-advocacy, and resilience.
As NJCTS powers ahead into its third decade of supporting the TS community, we invite you to partner with us as we seek to push the boundaries of education, treatment, outreach, awareness, and advocacy for every child, teenager, adult, and family affected by Tourette Syndrome. It doesn’t matter what makes us different when we focus on what makes us strong.
NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) and its directors and employees assume no responsibility for the accuracy, completeness, objectivity, or usefulness of the information presented on our website or page. We do not endorse any recommendation or opinion made by any speaker, member or physician, nor do we advocate any treatment.
You are responsible for your own medical, fiscal, and educational decisions.
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