02/20/2025
I'm posting this for my dear friend, Dagur Larsson and ANYONE ELSE LIKE US. As some of you know (some of you don't know)surprise surprise this is why you haven't heard from me in a coon's age. I have a rare autoimmune disease that they can't pin point right now. They can only treat my symptoms as they come about. Which all of them are invisible and very isolating, debilitating, and overwhelming at times. So I'm totally understand and empathize with others like me. At The Unity of Mind Body & Soul LLP, I have taken time to reflect and do some rediscovering and redirection. I am taking my healing journey live for anyone who wants to join me in the pursuit of better medicine known as "me." Thank you, Dagur. I love you, my dude. We will rise to the challenge!
🔥 Hot Tip 🔥 screaming for those in the back with your noses in your phone's ……if you get into a committed relationship with someone that has chronic health issues please please please understand that that person may not be able to do anything for themselves for weeks to months at a time and a large burden is going to fall on you. Take the time to make sure you're able to handle it before you commit.
I didn't ask for my body to fail.
My favorite quote from my doctor was last week, “it can’t really be that bad if you are still working and doing everything you do. “ I told him I didn’t know I had a choice. 🤷♀️
Years in pain, tired, and the many changes in me for no reason or apparent reason ... Hiding everything from literally everyone else, pretending to be doing better than I am; until it no longer works. No matter how strong you want to be.
Then the moment comes when they tell you what you have ... You have mixed feelings: you finally know what you have, but how do you deal with it?
Lack of encouragement, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.
Then, the daily responses, "Why did you get so fat?" “I have this great diet if you just go out and exercise.
That once beautiful hair of yours is now awful, and it falls out.
What happened to you??....
This is all true, and that's why I'm sharing it!
Silent and invisible diseases do exist ...
When you have an invisible disease, it is difficult to argue from your perspective with ignorant people.
Life takes a lot of turns !!!
Tired of being told:
* Did you go to the doctor?
* Have you tried this?
* Have you tried that?
* I don’t know what else we can do for you...
Yes! I tried and still try everything !!!
Doctors say this disease is forever. That I will not heal. However, I am not giving up, but I want to make others realize:
* A nap will not cure me, but it will help me ...
* I am not lazy, I take medication, and it sometimes makes me sleepy.
* I am not angry but sometimes cranky with pain.
* I struggle daily with pain, mobility problems, fatigue, and the criticism of my environment.
Most frustratingly, people look at me and say, "It can't be that bad; you look good."
Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good. It is an "invisible" disease.
This disease affects me physically, mentally, and emotionally. Because rare autoimmune diseases can not be seen, but we feel them.
And they are there ... Silent attack but extra painful.
I AM LOOKING AT THOSE WHO TAKE TIME TO READ THIS POST TO THE END.
The following request is sent with this intention.
Please, for me and in honor of all who are affected by named or no name like myself with autoimmune. Come join me in a fight with the purpose of changing what was into a healthier, best version of what is now. Here are just a few that I have been tested and will be tested for. Let's have a meeting of the minds and rallies with purpose and healing.
-ALS
-Ankylosing Spondylitis
-Lupus
-MS
-POTS
-Dysautonomia
-Crohn’s Disease
- Ménière’s Disease
-Addisons Disease
-Hashimotos Disease ***
-Graves Disease
-FND
-Depression
-Anxiety
-Autoimmune disease
-Sjogrens syndrome
- Polycystic o***y syndrome.
-Kidney Desease
-Rheumatoid arthritis.
-Chronic pain
-Endometriosis. ***
-migraines
- Multiple sclerosis.
-Myasthenia gravis.
- Pulmonary hypertension.
-Epstein Barr syndrome.
-Chronic fatigue syndrome.
-Diabetes
-Fibromyalgia.
-Raynaud and Scleroderma.
-Neuralgia of the trigeminal
-Epilepsy
-Cancer
-Hypothyroidism
-Arachnoiditis
-NEAD
-Vasculitis
-Alpha 1 antitrypsin deficiency
-Long Haul Covid
or some other disease you don't see, but you feel, and modern dr.s are at a loss with what to do for you. This message is to show that "WE" are always here when you need us. For that, someone who needs to talk and be heard to make a plan and take action with purpose.
