Amanda's CTEPH Relief Updates

03/27/2025

Yesterday was my 1 year zipperversary from PTE at UCSD! While I still feel like I have a ways to go, I cannot believe how much improvement I've made since surgery. Thanks again to the CTEPH team down there and my local pulmonologist. Who knows where I would be now without your support and aid. 💙💜🫁

04/17/2024

Hello all!

Collette here, with an update on Amanda!

Amanda was given restrictions in regards to how much she can lift, apply pressure and moving her arms. She can't lift more than 5 pounds, and cannot move her arms back more than a few inches. Sleep has been difficult as she wakes up when the pain management wears off and due her limitations, she has been very sore. She had a difficult time sleeping in San Diego, but has gotten more sleep since we've been home.

Amanda is keeping a positive attitude, and through it all remains resilient.

We will keep y'all updated!

Love always,
Amanda's CTEPH support team
💙 💜

04/03/2024

Heather here with an exciting update! Amanda was released from the hospital today. All the hospital staff were super impressed with her progress. We went out and had a celebratory after discharge. Claps and snaps for amanda recovering so quickly!

03/29/2024

Hello folks!

Today is a great day for a few reasons! One of Amandas closest friends, Heather, came to visit Amanda for a few days!

Amanda also took a walk around for a bit to get her blood flowing. She had another line removed from her neck, and has been impressing her respiratory therapist. Ya love to see it!!

Thank you all for your support,

Her CTEPH team- 💙 💜

03/29/2024

Hey hey hey!

This is Collette with a really cool update. Amanda is out of the ICU! She has been working with physical therapists, respiratory therapists, and occupational therapists to help her body adjust. Alot of nurses say that today is the hardest day, in terms of pain. Amanda continues to impress those around her with her kindness, and good humor.

03/27/2024

Hello!

This is Collette.

Amanda is awake! The nurses and doctors are currently working with her to remove various tubes that were helping her breathe, and keeping her body safe while under anesthesia and healing. During this process they will do every thing they can to keep Amanda as comfortable as possible.

We are SO proud of her. Fingers crossed we get to see her tonight. Please keep her in your thoughts while she begins a tough healing journey.

Love always,
Her CTEPH team 💙 💜

03/27/2024

This is Collette with an exciting update:

Amanda met with her anesthesiologist this morning at 6am, and shortly after was rolled away to the Operating room. At about 3pm this afternoon, we got a call from her surgeon confirming they got all the clots out of her lungs, and that the surgery went very well.

We are on our way to see her, right now! She is in the ICU for the next few days. Today she is still in the ventilator and asleep. They plan on waking her up tomorrow, and hopefully taking the breathing tube out.

Thank you all for reading!

-Her CTEPH team 💙 💜

03/21/2024

Hello again!

This is Collette with another update! Amanda was approved for PTE surgery, and will be admitted to the hospital Monday the 25th. That evening she will get to meet her surgical team, and they will review the surgery process with her. Tuesday morning she will undergo a 8-10 hr PTE surgery.

We will keep updating as we hear back!
-Her CTEPH team 💙💜

03/21/2024

Hello all!

This is Collette with an update! Amanda just went in for her right heart Catherization. Afterwards, we will meet with her doctor to review images from the procedure, discuss treatment options and if PTE surgery is her best option.

Be sure to stay tuned for further updates!

-Her Support team 💙 💜

03/20/2024

Hello all! This is Collette dropping by with an update!

We made it to Sandiego, CA! Over the past couple days Amanda has had a few tests done including labs, chest xrays, and a VQ scan. Tomorrow she will have a right heart catherization, and a pulmonary angiogram. After these tests have been completed, we will meet with her doctor who will confirm if Amanda is eligible for a Pulmonary Thromboendarterectomy surgery. The staff at UC Sandiego are so kind, and informative. We will keep you all updated as we recieve information from her medical team!

Signing off till next time!
- Her CTEPH Team 💙💜

03/13/2024

Hello everyone!

We are just THREE DAYS away from heading out to UC San Diego for testing and, hopefully, surgery!

We want to say thank you again to everyone for all the support and help as Amanda navigates this journey.

We are reacging out to ask if anyone is able to share or donate to her gofundme.

Stay tuned to the page for updates on San Diego and CTEPH.

Love you all

Her CTEPH Team 💜💙

In May of 2023 Amanda was diagnosed with a rare complication from bilateral pulmonary emboli t… Cat Hubin needs your support for Support Amanda's CTEPH Relief

03/01/2024

February 29, 2024 is Rare Disease

Cheers to Amanda on her CTEPH Journey and thank you to everyone who has been keeping up to date, share or support her resources!

The theme for this Rare Disease Day is share your colors.

CTEPH's colors are Periwinkle!

Love from
Her CTEPH Team

Raising awareness for patients, families and carers around the world that are affected by rare diseases.