Bailee's Fight

03/11/2022

When you have someone you care about, you hold onto that person and show them unconditional love. No matter what.

14/07/2022

https://www.hindtfuneralhomes.com/obituary/Bailee-Stackhouse

Share memories & support the family

17/06/2022

❤️❤️

Tonight, Mayo Clinic will light its buildings in orange for World Kidney Cancer Day (WKCD). Kidney cancer is the 13th most prevalent form of cancer and is an emerging health challenge. Worldwide, 1 in 442 men and 1 in 600 women are at high risk of developing kidney cancer. Statistics also show the disease is more prevalent among men than women.

Learn more about kidney cancer at: https://mayocl.in/3QpEC5G

11/03/2022

11/03/2022

Hello everyone… Most of you know that Bailee was diagnosed with stage IV cancer in January, 2021. The primary tumor was in the kidney and it had spread through her body into the lungs and lymph nodes. Prior to this diagnosis Bailee was just a happy two year old girl living a perfectly normal life with no known medical problems.

We have been through intense chemotherapy, radiation, and multiple surgeries on her abdomen and lungs. We had received heartbreaking news over and over again over the past 14 months. The tumors in her lungs continued to grow while on first line treatment, second line treatment, and third line treatment. Radiation therapy is supposed to work very well on Wilms tumor. We scanned before radiation started and at the end. It grew even during those intense daily treatments.

Of course this has been a living nightmare for the entire family. If you were to ask me three years ago my worst fear as a parent it would be this.

Our care has been done at Mayo Clinic, however they are not the only team of physicians working on a plan to help Bailee fight. Doctors around the country have given input on what to do. We had even requested an official second opinion to the Oncologist who was chair of the Wilms tumor panel for the Childrens Oncology Group. The therapies that should help are not working. It is just devastating.

I last posted just before Christmas. December 17th we found out that the ICE therapy had failed. Christmas Day was the first day of a new treatment. That regimen included chemotherapy that I needed to administer at home into her gastrostomy tube in addition to daily trips to the pediatric infusion center.

Now we are at a place where we know the treatment has failed and we are trying to give Bailee as much happiness as possible. We took a trip to Disney World and also traveled to Myrtle Beach to catch a RCTC softball game that Bailee’s cousin Zoe was playing in.

Bailee looks like a happy healthy girl on the outside. Nothing about Bailee would give you any indication that she is fighting such a battle inside. I’m so happy that she has had some great experiences that many adults never get to experience.

20/02/2022

Bailee was all giggles and smiles for her special private parade yesterday! Thank you everyone who came to make this a memorable day!

11/12/2021

If you’re looking for something to do tonight swing by the trail of trees in spring valley. Bailee has a super SWEET tree this year. Cannot wait to see it lit up. Bailee sure loves it!

07/12/2021

I feel like we are in a snow globe!! More Christmas craft projects to bring home 🙂

03/12/2021

Bailee was hospitalized Monday-Thursday this week for chemo and had an appointment for an injection into the leg today. Child life was there and she wrote a letter to Santa and put it into the mailbox. It put her in the Christmas spirit!!!

15/11/2021

Another busy busy week finished! Bailee had a CT scan Monday and we received some good news. The most concerning new tumor in Bailee’s lung has shrank in size! The other new tumors remained the same size, but we will keep moving forward. We were admitted to the hospital for chemo until Friday. Then we finished the week with an outpatient appointment on Saturday! We just continue to follow this busy schedule and Bailee continues to be amazing. I don’t know how she does it but she is such a sweet girl who continues to amaze me every day. We truly feel so appreciative of all of the people who show love and support to our family. Thanks to everyone for helping us get through this!! Let’s hope for more good news with the next scan.

14/11/2021

And the support from our amazing community continues! Thank you to all those awesome kids!

19/10/2021

Hey everyone, I can’t believe it has been a month since the last update on this page! We are on the third hospital admission since I last posted. Bailee is currently asleep in the hospital bed getting her chemotherapy etoposide.

We found out that Bailee’s cancer had relapsed on September 7th. The news was awful and it was very hard to hear. She was still in active treatment so it was unexpected that the cancer would grow when it was being treated so aggressively. On September 9th she started daily radiation. She was under anesthesia with each treatment. She couldn’t eat or drink anything prior to the appointments and it was almost noon when she met criteria to discharge. The day after we finished radiation we had another scan. That scan showed that there was even more new disease than on the 7th. I was not expecting that either… radiation was something that I thought would really work well. The doctors explained that the cancer is sensitive to radiation, so I was shocked to hear that there was more.

Our current plan is to commence treatment with a regimen called ICE. We started that immediately after radiation. It has been very hard on her, she has been inpatient and requires blood, platelets, fluids, and a lot of monitoring. She also feels very ill when she is neutropenic. We won’t know how things are progressing until the next scan. Her personality definitely continues to shine. She is so smart and remembers every detail. She also likes to fill the bed with toys and direct me what to do. Please continue to keep her in your thoughts and prayers.

02/10/2021

It's Never Cancer...

As we close out September, Childhood Cancer Awareness month, we'd like to leave you with some very special words from one of our Childhood Cancer Community moms. Thank you Sarah for sharing from your heart.

"The following really hits home, especially towards the end. I’ll remember forever Kadi asking me through tears if she was going to die. We only knew at that point she had a tumor and it had broken her fibula in half, we didn’t yet know the beast we were about to go to war with. I promised her she wasn’t going to die and I wish I hadn’t made that promise because it’s clearly one I can’t keep nor have any control over 💔😔😢" Sarah (Kadi's mom)

Make September Gold - Childhood Cancer Awareness by MKHC

🎗🎗Its Never Cancer🎗🎗

🎗Even in your wildest dreams or worst nightmare - it's never cancer.

🎗When you're sitting in the emergency room AGAIN with your child patiently waiting to see a doctor AGAIN - it's never cancer

🎗When you're at the GP's AGAIN with your child because the symptoms they have are just not going away - it's never cancer!

🎗When you hear your child crying at 5am because they are in tremendous pain and no one seems to know why - it's never cancer!

🎗When your child is missing school more and more because they are just not well enough to attend - it's never cancer!

🎗When you put your child having sleeps randomly after school because they are feeling exhausted down to them just being tired, busy or a bug - it's never cancer!

🎗When you watch your child struggling and struggling for weeks on end - it's never cancer!

🎗When you watch your child fading before your eyes and you wonder what on earth could be wrong with them - it's never cancer.

🎗When you hold your child close because they just feel so ill and rotten and you rock them to sleep in your arms - it's never cancer

🎗When they get blue lighted to hospital as an emergency - it's never cancer

🎗When they get test after test after test - it's never cancer

🎗When you're admitted onto the oncology Ward - it's never cancer

🎗When you notice all the bald children on the ward and wonder why your child is there - it's never cancer

🎗When you hear the words "cancer", but you clutch at straws and assume that they have made a terrible mistake and probably mixed up the results with another poor child who actually does have cancer - its never cancer

🎗When you child looks at you and asks you if they are going to die and you say "of course not" because you've still not processed that massive cancer bombshell yourself. You then panic and never forget that you said that in haste because "what if?" - its never cancer

🎗when they wheel them away for their first operation and you break down in tears as they take them away because they've never had a general anaesthetic before EVER and they are scared they won't wake up - it's never cancer

🎗when they do a biopsy - it's never cancer

🎗When you're sitting in a room with your oncologist as they prepare to tell you the diagnosis and subsequent treatment - it's never cancer

🎗Even in your wildest dreams or extreme worst case scenario - it's never cancer

🎗Until it is............

🎗September is Childhood Cancer Awareness Month🎗

25/09/2021

08/09/2021

After I posted the picture of Bailee in the CT scanner today we received a call. A terrible call from the Oncologist that feels like a kick in the stomach. Bailee has more cancer now than she did at her last scan. She is fighting an even harder battle now and we know the cancer is fighting hard to stay. We will continue the plan with aggressive Radiation this month and then start a new plan to try to beat this. Our hearts are broken. We are devastated that we are now much further from the goal than we had hoped for. Pray for Bailee to feel well with few side effects while we continue to fight.