01/08/2020
Mom wants to express her deep gratitude for the outpouring of love, kindness, and gifts for her happy birthday and also basic life needs. She came home Tuesday and we've been adjusting to our new reality.
I guess on some level we were both just seeing "July 28, yay out of hospital" and knowing but yet not knowing how much work, adjustments, and challenges lay before us.
We've had several people from home health care visit for evaluations. I am so glad I attended almost all of her therapy sessions in the rehab hospital. I learned so much and am applying all that knowledge into our daily lives. I believe my sister Marie can learn and apply some of these things as well.
The ramp that John built for back door is way too steep, so John is coming over tomorrow to build another ramp from the front door. We live in a very old house with narrow doorways and I just didn't think the chair would fit through front door but it does.
Our other huge challenge right now is the bathroom. We are utilizing bedside toilet for now and that's ok. But again, bathroom is very narrow and her mobility is not at the level to get her in for bathing. Sponge baths and dry shampoo will do for now but she hasn't had a shower since Monday. HhC said they might be able to schedule something for next week.. I'm actually thinking about renting an accessible motel room just so she can have a shower.
Mom and I both want to express our deep gratitude for our beautiful daughter/sister (respectively)Charlene. She's been here all week to help with transition from hospital to home. She bought and then put together Moms new bed. She also spent hundreds of dollars paying for some of Marie's needs so Mom doesn't have to worry about it for a couple of weeks. She's rearranged furniture, decluttered drawers and shelves, and come up with numerous creative and inspiring ideas . I do not know how we could have made it through this week without her. I'm so grateful to have the honor of sharing sisterhood with her.
We're trying to create a new schedule for all of us. We're going to adopt hospital schedule of PT, OT, and SP every day. I've learned lots from the hospital and I also have some of this knowledge from working with special needs children.
Mom's been having a lot of anxiety since she came home.. It's all so scary. We finally got her on the walker yesterday; she was too panicked to even try the first few days. She walked 42 feet yesterday... And this morning she was able to touch her chin with her right hand! She also started working on a crossword puzzle today.
Again, thank you all so much! I know my Mom and I would normally send personal "thank you" notes... But this will have to suffice.
With much love, gratitude, and peace
Sue and Michele
Pics are from yesterday, opening b'day gifts