Adrenal Insufficiency Kentucky

03/16/2022

Please find us at this page. 💙

11/13/2020

Our families have shown such strength during , but this virus has also increased barriers to the services they need. Kentucky Cabinet for Health and Family Services offers a wide range of resources, from mental health services, nutrition and housing and so much more. Visit https://chfs.ky.gov/agencies/ccshcn/Pages/familyresources.aspx to learn more about family resources throughout Kentucky and in your area.

11/13/2020

Covid Act Now has real-time COVID data and risk level for your community. See how your community is doing at covidactnow.org.

04/03/2020

Is someone in your home sick with COVID-19? Before eating or preparing food, make sure to wash your hands with soap and water for at least 20 seconds. If you handle dishes used by the person who is sick, wash your hands right away. https://bit.ly/33vrmod

11/24/2018

Please help AIU reach its fundraising goals this Tuesday.

https://mailchi.mp/39808626668c/aiu-conferencegiving-tuesdaysale?e=66463b9357&fbclid=IwAR0ZDv99Kry4j9n_FVbdMGOC_ZYW3s1Zbb49InqdTgnz3Kq84Uxh-AVhEBE

Last year on Giving Tuesday Adrenal Insufficiency United raised $17,000 with an additional $6,000 in matching funds for a total of $23K! We hope to repeat our success from last year and need your help.You can donate right on our FB page using the donate button under the banner/ or if you wish to cr...

01/17/2018

Registration for AIU's first conference on Adrenal Insufficiency is now open!

11/10/2017

Please like the new page. This page will be archived soon.


https://www.facebook.com/pg/Adrenal-Insufficiency-AL-KY-MS-TN-159048068165275/events/?ref=page_internal

Show your support for those living with Adrenal Insufficiency, by joining our page. Let's bring the

11/06/2017

HELLO! To help make our pages more dynamic and active we will be organizing states into regions. Kentucky, Tennessee, Alabama and Mississippi will be merged into one page. We will also do the same on our website with a soon to be added interactive map so we can post events or opportunities for get togethers. The name of the page will change to Adrenal Insufficiency SouthEast.

10/28/2017

"ACTION ALERT: Tell Congress to Keep the Orphan Drug Tax Credit! http://bit.ly/2zSih9K
We need this!! Without it there would be even less options for those with rare disease."

NORD works closely with partners across the rare disease community. Learn about the different types of membership and join today!

10/26/2017

"The major findings of the report are as follows:

The Orphan Drug Act has been highly successful for 35 years in encouraging the development and approval of orphan drugs. The Food and Drug Administration has approved almost 600 orphan drugs since 1983. It has made possible treatments that have resulted in cost savings in treating many diseases.

The Orphan Drug Act has not been a significant driver of healthcare spending in the U.S. The volume of prescriptions for orphan drugs is relatively low because of the small patient populations. Orphan drug spending represents a small percentage of total healthcare spending. Of the $460 billion spent on drugs in the U.S. in 2016, only 7.9 percent was for orphan indications of approved drugs.

The Orphan Drug Act is just as important now as it was in 1983, when it was enacted by the Congress, and while it is worthwhile to evaluate the law to see if any improvements are needed, great care must be taken to assure the original intent of the law, which was to stimulate the development of new orphan drugs."

Orphan Drugs Account for Only 7.9% of Pharmaceutical Spending in the U.S. Washington, D.C., October 17, 2017—Orphan drugs accounted for only 7.9% of total drug sales in the U.S. in 2016, according to a study issued today by the QuintilesIMS Institute. The study, commissioned by the National Organiza...

10/26/2017

You can shop and support AIU here. You can also use Amazon Smile. At this site, you may need to search for Adrenal Insufficiency United to find it.

Take 30 secs to get Gumdrop by Goodshop, which automatically finds and activates coupons wherever you shop online. When you shop, a % goes to Adrenal Insufficiency United. Best saving & donating hack ever!

10/24/2017

You may need to access the full article through your local college/university or public library.

"Fibromyalgia syndrome is associated with hypocortisolism."

https://www.ncbi.nlm.nih.gov/pubmed/20458566

Int J Behav Med. 2010 Sep;17(3):223-33. doi: 10.1007/s12529-010-9097-6. Research Support, Non-U.S. Gov't

10/24/2017

A 10-year-old boy with a rare condition that keeps him out of school is trialing a robot to send to class in his place.

10/21/2017

Living with a chronic illness is stressful enough. Here's some tips and ideas on how to remove extra stress when you have a chronic illness.

10/18/2017

PLEASE READ! This is VERY IMPORTANT information regarding child medical abuse!

10/17/2017

PLEASE READ. There will be more information to come.

10/14/2017

Have you checked the aiunited store lately?

10/13/2017

Remember that self-care is important. :)