Hearts for Lucy

Hearts for Lucy Lucy has an ultra-rare genetic condition called SMARD1. Follow her story and watch her grow!

That’s a wrap on Lucy’s kindergarten year! Including several cute pics of her at school from her last week, including on...
05/21/2026

That’s a wrap on Lucy’s kindergarten year! Including several cute pics of her at school from her last week, including one holding hands with a friend! (She doesn’t look happy in the photo but in real life she loved it!) And a sweet photo of her and her beloved nurse from today.

Lucy wishes a Happy Mother’s Day to all the mamas out there! Our family celebrated with lots of family time and a trip t...
05/11/2026

Lucy wishes a Happy Mother’s Day to all the mamas out there! Our family celebrated with lots of family time and a trip to the zoo to see all the Animals Aglow lanterns!

05/03/2026

🌈 April with Lucy! 🌈

Another exciting delivery today — a new stander! The one we had before this was a First Steps loaner she used since she...
04/30/2026

Another exciting delivery today — a new stander! The one we had before this was a First Steps loaner she used since she was a chubby little one year old. 😮 We were definitely ready for an upgrade and were so happy to pass the other one on to another family.

Miss Lucy got some new equipment this week! So far she loves her P Pod chair! It’s pretty bulky but she’s comfy in it an...
04/24/2026

Miss Lucy got some new equipment this week! So far she loves her P Pod chair! It’s pretty bulky but she’s comfy in it and we were able to get a base with wheels to make moving it around easier.

Friday was a HUGE day for Lucy — her first field trip! We joined her kindergarten class for a trip to Big Joel’s Safari ...
04/18/2026

Friday was a HUGE day for Lucy — her first field trip! We joined her kindergarten class for a trip to Big Joel’s Safari to see some animals… but Lucy’s favorite part was riding the BUS! She has been saying “beep beep” ever since. She was so excited 🥰

Happy Easter from Lucy — she had a great day!
04/06/2026

Happy Easter from Lucy — she had a great day!

04/03/2026

💚 March with Lucy! 💚

Lucy had tons of fun over spring break! We flew our first kite, went to the library, explored the aquarium at Union Stat...
03/30/2026

Lucy had tons of fun over spring break! We flew our first kite, went to the library, explored the aquarium at Union Station, met the Easter Bunny, and spent lots of time outside!

03/26/2026

I’ll share more pics later, but everyone needs to see how much Lucy loved reaching over to this water table at the aquarium today! That’s about as happy as it gets 😊

Lucy had a Peppa-tastic 6th birthday party!
03/22/2026

Lucy had a Peppa-tastic 6th birthday party!

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63303

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