HDSA Center of Excellence at Washington University

08/18/2025

https://huntingtonsdiseasenews.com/columns/how-help-children-cope-diagnosis-huntingtons-disease/?utm_source=HUN&utm_campaign=df738e0303-Email_ENL_US_HUN&utm_medium=email&utm_term=0_f42d6c3322-df738e0303-73211485

Columnist Carlos Briceño and his wife, Jill, both share advice on how to help children process a loved one's Huntington's disease diagnosis.

08/16/2025

Thank you for joining us at our August meeting - Anna Wilson, HDSA Missouri Chapter Social Worker (center, front)

We appreciate you answering all our questions! During her visit she announced a new Missouri virtual Caregiver Support Group. The first one will be Monday, September 22nd at 5:30 p.m. Please email Anna at awilson@hdsa.org for a link to join the meeting.

08/13/2025

Powerful!

Columnist Tanita Allen pens a letter to her past self who had just been diagnosed with Huntington's. Here's what she wishes she'd known.

08/13/2025

Congratulations to Julie Struble for her recognition by the The Kansas City Chiefs for her work on behalf of HD families in the Kansas City area.

After Julie Struble's husband was diagnosed with Huntington’s disease, she set out to help other families. Since 2004, their national organization has raised a million dollars!

Do you know someone making positive change like Julie? Nominate them: chfs.me/lhlegacyFB

08/12/2025

WashU Medicine's HD clinic social worker Stacey Krueger was recently interviewed by AARP's Paul Wynn for a story on rare diseases in midlife. The article is available here:

How to provide care through the uncertainty that follows a rare-disease diagnosis

08/11/2025

https://en.hdbuzz.net/carried-from-childhood-childhood-experiences-and-adult-mental-health-in-families-with-huntingtons-disease/

Some childhood experiences stay with us, quietly shaping how we feel as adults. For those raised in families with Huntington’s disease, this new study helps make sense of those feelings, and reminds us that healing is possible.

08/08/2025

https://huntingtonsdiseasenews.com/columns/dating-chronic-terminal-illness-taught-value-worth/

Dating with a chronic illness like Huntington's hasn't been easy for columnist Tanita Allen. But she's learned to protect her inner peace.

08/05/2025

https://huntingtonsdiseasenews.com/columns/power-telling-truth-about-your-body/?utm_source=HUN&utm_campaign=6c96c88b53-Email_ENL_US_HUN&utm_medium=email&utm_term=0_f42d6c3322-6c96c88b53-73211485

At first, columnist Tanita Allen worked to mask the effects of Huntington's. But telling the truth benefits everyone, she's learned.

08/04/2025

Nice to see this paper on HD that was done here at WashU Medicine by the folks in the Program in Physical Therapy.

Background/Objectives: Huntington’s disease (HD) is a neurodegenerative disorder involving the basal ganglia and is characterized by psychiatric, cognitive, and movement dysfunction, including gait and balance impairment. Given the limited efficacy of pharmacological treatments for HD motor sympto...

08/01/2025

https://en.hdbuzz.net/july-2025-this-month-in-huntingtons-disease-research/

July’s HD research roundup: Brain scans, gene editing, glial cells, and even smartphones reveal new ways to track and treat Huntington’s. From sleep to cell power, science is zooming in and bringing hope for earlier, smarter interventions.