St. Louis Sarcoidosis Support Group

04/01/2025

💜 April is Sarcoidosis Awareness Month 💜

Living with sarcoidosis presents significant challenges — but no one should have to face them alone.

This year’s Sarcoidosis Awareness Month theme, “Facing Sarcoidosis Together,” highlights the strength we find in unity. Whether you’re a patient, caregiver, advocate, or healthcare professional, we are stronger when we stand side by side to raise awareness, amplify patient voices, and fight for better research, treatments, and support.

Sarcoidosis is a rare and often misunderstood disease, impacting an estimated 1.2 million people around the world. It causes clusters of inflammatory cells — called granulomas — to form in different parts of the body, commonly the lungs, skin, eyes, and heart. Symptoms can be unpredictable, and diagnosis is often delayed.

But this April, we come together — to share stories, educate others, and push for progress. Together, we can bring hope, understanding, and meaningful change to all those affected by this complex disease.

👉 Join us. Learn more and get involved: https://loom.ly/SA4miFQ

04/01/2025

Are you signed up for the Foundation for Sarcoidosis Research (FSR) newsletter? Don’t miss out on the latest updates, events, patient resources, and breakthroughs in sarcoidosis research!

📩 Sign up today and join our community dedicated to advancing awareness, support, and hope for those impacted by sarcoidosis.

👉https://loom.ly/lMV1HBg

Stay informed. Stay empowered. Together, we make a difference.

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03/12/2024

During Pulmonary Rehab Week (March 10-16), let's shine a light on the crucial role of pulmonary rehabilitation for those with Pulmonary Sarcoidosis. With the lungs being the most commonly affected organ in sarcoidosis, these programs are essential for managing symptoms. Learn how these programs can improve quality of life. https://loom.ly/2YWEC5U

12/26/2023

Join FSR on Dec. 26th for a free, virtual event - Resolving to Thrive: Navigating Sarcoidosis in the New Year!

As we step into a brand-new year filled with hope and possibilities, it's the perfect time to reflect on our health and well-being as we navigate the sarcoidosis journey. Join us for a free, insightful webinar as we explore the intersection of New Year's resolutions and living with sarcoidosis.

Don’t miss out on the opportunity to listen to our expert Dr. Jinny Tavee of National Jewish Health, an FSR-Global Sarcoidosis Clinic Alliance Founding Member, who will be providing seven key resolution focus areas to take with you into 2024.

End the year on a positive note and roll that into the New Year! Learn more and register: https://loom.ly/GvBt3rM

10/28/2023

FSR Global Virtual Sarcoidosis Summit Find Your Community, Find Your Life For Patients, Loved Ones, and Supporters Registration: Patient/Support