
08/23/2025
https://www.facebook.com/share/p/19WhfBWbmg/?mibextid=wwXIfr
The Cardiac Neurodevelopmental Outcome Collaborative (CNOC) and the Congenital Cardiac Research Collaborative (CCRC) want to partner with parents of children with congenital heart disease. Our goal is to create a family-centered approach that guides research, education, and awareness around developmental follow-up. To do so, we need to hear about what is important to parents and what their experiences have been around their child’s development. We have designed a brief survey for parents to share their thoughts on this topic.
Attached is a flyer with a QR code to the survey. Please consider partnering with us by completing the survey. Please also share this survey with others. We want to hear from as many parents as possible!
https://redcap.wustl.edu/redcap/surveys/?s=8K9LN8MWFHX7N7AC