Team Reed

Team Reed Reed is our son with a rare genetic condition along with severe combined immune deficiency.

Our sweet Reed Lyle gained his angel wings yesterday May 2nd at 10:18 AM in our arms surround by so many loved ones. Our...
05/03/2026

Our sweet Reed Lyle gained his angel wings yesterday May 2nd at 10:18 AM in our arms surround by so many loved ones.
Our hearts are shattered in ways we can’t even begin to explain.

You were so deeply loved from the very beginning, and you will be forever. You changed our lives in the most beautiful ways, and we will carry you with us in everything we do. You fought so dang hard baby boy.
As hard as this here, you get to live in a pain free, hospital free place. We know you are being taken care of up there but gosh I wish I could’ve went with you.
I don’t know how I am going to live this life without my baby. My heart hurts so bad. I’m completely broken.
We miss you more than words could ever say.
Fly high, our precious boy 🤍

Tonight we finally got to hold our baby boy again ❤️The past few days have been really hard, Reed remains stable right n...
04/29/2026

Tonight we finally got to hold our baby boy again ❤️

The past few days have been really hard, Reed remains stable right now.

Today his dialysis line stopped giving blood return. So he is off of it for the night and we are going to talk in the morning as for what’s to come next. The big question is, is all of this prolonging or actually helping him heal. And we have a big care team conference on Thursday to talk about everything.

Please pray we get some answers ❤️

Tonight felt calm, we got to love on our baby. But also with that comes extreme worry, constantly watching the monitors and numbers and making sure he could handle being held. He is so fragile right now and his little body is so tired but still fighting! ❤️
The strongest boy 🫶

Reed remained stable all day! He made tiny improvements, baby steps towards the right direction is all we can ask for! T...
04/27/2026

Reed remained stable all day!

He made tiny improvements, baby steps towards the right direction is all we can ask for!
Today was so much calmer, and Reed was comfortable❤️
Taking it all day by day.

Thank you for all the support and prayers. 🫶

Reed has again taken a turn for the worst. He’s struggling to breathe. Putting the breathing tube back in will not heal ...
04/26/2026

Reed has again taken a turn for the worst. He’s struggling to breathe. Putting the breathing tube back in will not heal his lungs. His kidneys cannot function without the dialysis right now, his heart has been having some weird rapid beats they are unsure of.
Overall his body is tired, Reed is tired.
Please pray during this really hard time. 😭❤️

so much support for our sweet boy 💙
04/23/2026

so much support for our sweet boy 💙

We want to express our heartfelt thanks to the school staff, students, and families for the incredible love and support ...
04/23/2026

We want to express our heartfelt thanks to the school staff, students, and families for the incredible love and support shown for our sweet boy by having everyone wear Bluey/ blue to show our boy so much love. This thoughtful gesture meant more to our family than words can fully express. During such a difficult time, seeing everyone come together in kindness and solidarity brought us comfort, encouragement, and so much joy. Your compassion has reminded us that we are not facing this journey alone, and we are deeply grateful to be part of such a caring community. Thank you for lifting our spirits and surrounding our child with so much love.
They sent us some pictures of everyone and it brought tears to our eyes. (I am not going to share those for privacy reason). Thank you from the bottom of our hearts. 💙

Reed got extubated this morning!!!!! He is doing great!!! He is still on dialysis but hopefully in a few days will not n...
04/22/2026

Reed got extubated this morning!!!!!

He is doing great!!! He is still on dialysis but hopefully in a few days will not need it anymore!

Thank you all for the continuous prayers, they sure are working!! ❤️

No really new update, which most of the time is a good thing!! Reed is remaining stable! Still breathing better with the...
04/20/2026

No really new update, which most of the time is a good thing!!

Reed is remaining stable! Still breathing better with the dialysis taking fluid off of him. We are not sure how long he will need the dialysis.
We are still just all trying to keep him as comfortable as possible.

We are so proud of our boy for fighting so dang hard.
This is not just his fight. We are are standing right with him fighting for him!

Thank you all for the prayers, we are so lucky.
Hoping the next big step is extubation!

04/16/2026

The dialysis is doing exactly what we need it to be doing. Reed is breathing so much better and has been able to be weaned a tiny bit on the vent because the fluid being moved out of him. His kidneys are getting the time to recover that they need. He still is very positive in fluid so they will keep the dialysis for a few more days at least.
He is improving that is what matters! ❤️

This boy has beat every odd.
He is so strong. He has been through so much. He doesn’t deserve this. Thank God he is strong but he shouldn’t have to be.
No kid should have to be this brave. Fighting battles he never asked for.
As much as I wish I could take it all away I can’t. But I can promise him
I will fight for him. I will be his voice. His protector and safe place.
This is all so exhausting, we are all tired.
We miss home. We miss the Reed we once had and are fighting to get back there! 🤍
Thank you everyone for the prayers, we are having much better days and can only pray for him to keep improving.

please please say some extra prayers. Reed has gotten progressively worse. He has too much fluid that is affecting his l...
04/14/2026

please please say some extra prayers. Reed has gotten progressively worse. He has too much fluid that is affecting his lungs. He is on very high vent settings and still struggling. They are placing a line and starting dialysis as soon as possible this morning.
💔

04/12/2026

Now today they are saying they can’t go as quick as they were hoping. They had to go up on his vent setting because he’s not ready. His chest X-ray looked worse and the back of his lungs are barely moving air. They can’t push the fluid off because his kidneys are too hurt. So now we have to give the kidneys time to recover. If he doesn’t move more air in the lungs tonight they will have to put him on his belly tomorrow and that means way more sedation and a paralyzing drug. :(
As soon as we think he is improving things start to back track.
Still have not found a source of the pneumonia.
We are just taking things day by day and praying he starts moving the right direction again. They were very honest with us today that even after he gets the breathing tube removed he has a very long road of recovery ahead.
We just want them to continue doing what’s best for Reed and keep him comfortable while doing so. ❤️

Thank you all for praying and thinking of our baby, we appreciate you all.

Address

One Children’s Place
St. Louis, MO
63110

Website

Alerts

Be the first to know and let us send you an email when Team Reed posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category